Fear – Candice Louisa Daquin — FREE VERSE REVOLUTION

Fear for a child is very different to the adult and exactly the same the child inhabits another decade, in the past, another life before they knew they were who they become the child wets the bed because she misses her mother who is beautiful, ethereal, slender and absent the smell of her still lingers […]

via Fear – Candice Louisa Daquin — FREE VERSE REVOLUTION

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The deepest cut

an-apple-rotten-on-the-inside

It doesn’t take much to knock a bruised fruit to the floor

watch it split apart like rotted glass, shards of damp skin in slow motion

try as I might, I AM that bruised fruit

try as I might, I cannot seem to recover myself back to where

once took for granted, the feeling of wellness

it doesn’t help when someone you loved abandons you

in the middle of your darkest hour

things like that aren’t supposed to happen

people who swear allegiance and loyalty aren’t meant to

be the ones leaving your side

such is the hour and fickle fan of illnesses devour

at least I know I’d never treat someone, that poorly

despite this and because of it, healing is slower

though I suspect anything less than fire would be

I didn’t know these things beforehand

the un-annointed do not possess future perspective

to see how illness strips your childish faith, cleaves you

bare and gasping

where family didn’t need to see me, even as I spent weeks in hospitals

it cut me to the quick, but it wasn’t the first or the last

maybe preparing the groundwork for your deepest cut

they say you get used to it in time

I never have

just as I never have truly understood the cruelty within some, who profess so hard to love

now, I am a changed person

I cannot make plans like I used to, thwarted by my body, haunted by ghosts

my illness is like a cobra, she stays quietly in the leaves

rearing up when I least expect or when I want most to escape

her possession of me, the way she knows how to tickle fear

with just enough venom until I am on my knees

I am sure some would say, this is therefore; psychosomatic

that it what they tell all women of hysterical turn

I saw in your eyes when I told the horror; your own disbelief

until doctors produced the proof, you still wondered

it became apparent to me, just like with sexual assault

being believed is paramount to recovery

alongside having faith in ourselves

I did not do a good job of the latter

finding myself more alone than when I started

and I thought I started pretty alone

I know I am a survivor and I was not destroyed

yet it feels like I was

when I look inside myself and find

so little left, a house without windows

it was only because of you, I kept trying

I told you that, I said, you were holding me up

when you let go

I fell to a place I did not know existed

I wanted to ask; Couldn’t you have just waited

long enough to see me through the worst?

but you wait for nothing except your own need

I had to find a way to stand even as everything crumbled around me

which is the biggest test I ever had and I failed it

I failed it again and again

walking through the lullaby of desiring to die for so many reasons

not least, the never-ending dance with sickness and pain

but somehow I did not die, I turned instead to stone

when people say I am strong now and ask; How did you get through it?

I don’t tell them; I am not through it

I still lurch and shake in the throes of unnamed demons and at night

I feel like an arythmic god has taken me and is spinning me

on high-speed like all my parts are made of jello

I want to ask that god; what is it you are trying to shake loose?

surely you know by now there is no more fruit left

not even the rotten kind

that fell and split and sunk into earth, a long, long time ago

it is only me remaining now; leafless, without sturdy branches

I cannot rely upon myself, I cannot rely upon promises

no longer a young, untouched tree with green shoots

I am damaged, broken and hobbled, by this specter and the unknown

as much as by those I knew and trusted

asking why to the imploring void; why are we stricken down?

to what do I owe my continuing? Even as it is, insubstantial

can they see in my eyes, when I pretend, I am trying not to gag?

my appetite spirited away by the scourge and never returned

I would die of hunger and not know it

were it not for some strange determination

I don’t know where that comes from

but as I stand, it must be a place within me

does not give up, as she did not, all those years ago when

the flames licked the top of my house and burned, everything I knew to cinder

I am not like the rest of the world; stronger for my poison

nor am I able to disguise my scars

if I were asked what recommended me; I could not answer

I would probably open my mouth and howl

because you can reinvent yourself, a million times it seems

I am just one incarnation, coming apart at badly mended edges

you, who are able to vault life in gentle sprint, must mock

I am after all, just a fallen fruit, lasting as long as she can

in imperfect, bruised skin

Not even ourselves

Why and when did people stop being interested?

as kids we would sit on benches and talk about our pain

there seemed then, such a mercy in the air

it hung like cobwebbed dew around us and

despite the hardships we bore, our friends were

our succor

Why and when did people stop being interested?

and grief was labeled an annoyance?

why does growing-up mean we no longer write

poems like this

do we no longer feel the same

or just hide it away?

and if it is hidden how does it stay so

with the swell and the surge and the blistering salt

I hear rain falling into a tin can somewhere

and briefly I remember eating out of cans in summer

my lips sticky with apricot

it was a luxury then and my grandmother carefully

spooned each peachy globule out and added ice-cream

I hated the taste of ice-cream and I loved

the feeling of lying high in a big tree smelling apple leaves

in those days

when tragedy struck

we children who are called resilient

had the hope or the armor of youth

and the cherish of our friends

I saw her running toward me across the fields separating our houses

her red hair and freckled face red with exertion

we ate stale cucumber sandwiches left over from her mother’s

garden party and she held my hand in her own

clammy seedy palm

as if I were a starfish

I told her of my disappointments and the ache in my chest

all those who had forsaken and gone their own way

with the wisdom of child she wrinkled up her eyes against the sun

told me what I needed to do was pretend I didn’t care a damn

because one day you’ll grow up and nobody will be able to hurt you

I held onto that advice like a piece of paper framed in my chest

but it wasn’t true it wasn’t true

and I wonder where she is now

if she has children

if she is the same kind of mother she was as a friend

if I could see her again I would say

thank you for giving me the hope to get to this point

maybe it wasn’t true, maybe adults fool themselves into

thinking they are not children with ageing hearts and

brittle bones

maybe being an adult is harder than any childhood

because you don’t have afterwards to dream of

and the future as yet unsummoned

with all your magic and all your wistfulness

seen through the eyes of someone not old enough

to know the reality

I would tell her don’t tell your children the truth

let them dream as we did just a bit more

where I can still hear my grandmother knocking over pots

as she makes an apple pie and the smell

of summer is all about us in a haze

and your red hair makes mine look blonde

and your freckles tan your legs whilst mine remain blue

and your hand in mine is the first hand of friendship

I would thank you for running when I called

because nobody has run since and I suspect

adults have ways of doing things

us children never quite understand

I’m thinking if I could choose a side

I’d go through time and clasp your wrist and run

into the high grass fields out the back and where

nobody would find us

not even ourselves

years from now

Last call to Submit Writing and/or Art for “We Will Not Be Silenced” Anthology

Midnight, Monday 15th October is the deadline for submitting art/writing/poetry, this is an important, very timely project at a critical stage in history, your voices need to be heard!

Bruised But Not Broken, Whisper and the Roar, Indie Blu(e), and Blood Into Ink are joining forces to publish an anthology about the lived experience of sexual harassment and assault. We believe that it is more important than ever before that more voices speak out and reclaim their strength by owning their survival stories. All contributors, female and male, can submit up to three pieces of creative work- these can include; Poetry, Prose, Essay, Short Fiction, Prose, or original Artwork, but should be limited in length (under 1,000 words) considering that this is an anthology. You will be notified if your work is accepted. Please do not consider nonacceptance as any diminishment of your experience, but as with any publishing venture, we must try to fit the individual pieces together into a strong whole.

  • Submission of previously published pieces is acceptable if you still own the rights to your work.
  • Artwork can be submitted in black and white OR color but all artwork should be black and white compatible.
  • Using a pen name or publishing anonymously is acceptable.
  • All submissions should be sent to bloodintoink2017@gmail.com by midnight, Monday, October 15, 2018.

Writers and artists will retain the publishing rights to their individual submitted pieces. Indie Blu(e) will retain the rights to the collection We Will Not Be Silenced.

Pieces accepted for the Anthology may be used in whole or in part to promote the Anthology. All writers and artists will be appropriately credited in all promotional materials.

Should the royalties from sales of the Anthology exceed the costs of publishing and promoting the Collection, 70% of the royalties above these costs will be donated to organizations that support survivors of sexual harassment and sexual assault.

 

TLDR is bogus / we should read, we should care and take the time

TLDR is now in the dictionary (which I think is pathetic). Unfortunately this post is going to be too long and you don’t have time to read it fair enough but I’m writing it anyway because I have to.
Today I found out a very lovely girl I recently met (nothing is random) has Gastroparesis. It really affected me. See I had put all the awful horror of last year and the early part of this year into a box and avoided it. That’s what you do when you feel traumatized and are just trying to get your life back. How lucky am I to even have that opportunity?
Seeing those who continue to be sick, year in year out, through no fault of their own, makes you so grateful for any renewed health. After getting suddenly and violently ill last year in March with a suspected Noro virus, I got better quickly but remembered the awful feeling of unending nausea. I had two more brief bouts in May and June the last one sent me to the ER for the first time in my life because I had what felt like heart palpitations. Then in August of last year I got violently ill out of the blue, half way through the day, and didn’t get better for nearly a year. One of the hardest parts is how badly let down you can be, by people you thought cared about you, but on the upside, you also find out who really loves you and who doesn’t and that can be powerful and freeing.
I had to quit work for the first time in my adult life, I went into massive medical debt and I was suicidal for the first time in my life. I’m not saying this to make anyone feel sorry for me,I feel lucky. I’m saying this because I didn’t know ANY of the stuff surrounding this before, I was taking my health for granted, I thought being healthy living meant I would avoid bad things, it doesn’t always work like that.
It is thought Gastroparesis and other similar extreme illnesses are primarily caused by either Diabetes, complete breakdown of your autoimmune system, physical causes like gastric-bypass surgery or something you are born with, but most commonly is considered to have NO CAUSE. However if you do some research it becomes clear that VIRUSES cause the latter onset. Why women get it 9/1 over men and why pre-menopausal young, fit, healthy women get it, is also unknown, although studies show having a full Hysterectomy can reverse it so it clearly has a link with ESTROGEN.
I was told after being so violently ill for months without ANY cause found that I must have Gastroparesis. Gastroparesis is actually very rare but has become a catch-all umbrella term for anything the medical industry doesn’t understand. Supposedly the ‘gold standard’ test for this is the gastric emptying test but I found it is very unreliable and can vary from day-to-day. I was put on REMERON which is supposed to help a bit, if anything it made me worse. Fortunately for me, the city where I was at that time living in, San Antonio has one of the best Gastric Research Centers in the US I was able to see them and what I was told was life-changing.
My doctor told me I definitely did NOT have Gastroparesis and that in his experience 8/10 people diagnosed with non-diabetic Gastroparesis don’t have it. I had an EGG which showed my stomach was literally flipping and lurching and not emptying fully because it was ‘dumping’ too fast – this is called Gastric arrhythmia and is almost the opposite of Gastroparesis. I was horrified that they could have got it so wrong.
I was put on a very low dose of a medication that slows your stomach down. I’d lost so much weight it was dangerous, I couldn’t eat, I was throwing up all the time, I had constant diarrhea (which interestingly most Gastroparesis patients don’t have but they completely ignored how illogical it was to have constant diarreah despite this being almost the opposite of what you’d think of when you imagine a ‘frozen’ or non-working stomach which is the definition of Gastroparesis). The medication changed my life.
I had been suicidal for the first time ever because I decided if this didn’t get better I would not want to live. It was too awful. I didn’t have any family support, I felt so alone day in day out, that’s the worst part about something like this. That’s why my heart bleeds for those who are going through it. I had so much medical debt and couldn’t work and was nauseous (really, really severely not a little bit) 24/7 it ruined my life. The medication changed everything I’m still sick but I can finally work again, I can eat normally although my appetite never came back and I have to force myself which sucks. I have put on more weight than what I weighed before I got sick (as a precaution) and I am on the road to recovery. BUT I keep thinking of those who are still going through this.
I feel finding out today this lovely friend has what they thought I had, not only means I must do more to help others, because I KNOW how they feel, and what they suffer, but because we need to find out why this disease and others like it, are happening so often now when they used to be super-rare. It isn’t because people aren’t eating organic, most of the people I know with these things did eat well. Many of the doctors dismissed the link to Epstein Barr Virus and it was my PCP who finally decided to test me. My results showed I had EXTREMELY high titers of EBV in my blood. I worked out after contracting the Noro Virus last March I must also have either had a reactivation of EBV from childhood (90 percent of us get it as children or young adults) or I had never had it and got it for the first time.
Either way I realized EBV TRIGGERS Gastroparesis and Gastric arrhythmia. Somehow the autoimmune aspect of all Herpes Family viruses (like Shingles too) trigger various illnesses. The most common you think of with EBV are ME, Chronic Fatigue, MS, Fibromyalgia, Stomach Cancer. But more and more doctors are seeing stomach issues like Gastric Arrythmia and Gastroparesis. The medical industry says Gastroparesis is incurable. I don’t believe it is. I have read that if you can get your EBV down you can get over Gastroparesis. Many times if this is the cause then beating the virus beats the symptoms.
The only current treatment for EBV is high dose Vitamin C. I could never handle the acidity of Vitamin C. I found that Dr. Mercola made a Lypoic version that doesn’t hurt your stomach and I began to take 4000mg daily. Ideally if you can then IV Vit C works even faster and better. Once the EBV is reduced in your body the symptoms of the Gastroparesis may abate. The information online is awful and inaccurate, it basically says you will have it for life, but I have known people who overcame it, through diet modification, managing stress (which can exacerbate any serious illness) , adequate rest and treating the CAUSE which doctors never talk about because they want to treat the symptoms.
During this time many things changed in my life, at first I thought those changes were bad but I have come to see sometimes you have to force yourself to change, and what you think is a bad change, actually is a blessing in disguise. This illness forced me literally to reexamine my life, I realized I needed to make changes, which included moving and living elsewhere, as well as redirecting my energies into things I’d neglected such as teaching dance again and not giving up on my writing. I had let the awful experience dampen my hope and the truth is, when you survive something that awful it gives you a chance to find your joy again which I have in so many ways. I’m still on the road to recovery, I still have pretty bad days, but I am mindful of how far I have come and that along with support from loved ones makes all the difference.
If anyone you know is having severe stomach issues and they need help please give them my details because I want to help people. So often people are isolated and uncared about when they are sick. I have known many who have chronic illnesses and they are neglected by their families and invisible in our society. I felt totally alone when I was at my sickest it was the worst feeling in the world, which happens to most who experience long-term illness. The hardest part being since serotonin and other brain chemicals are actually made in the stomach, when you have severe stomach problems you get extremely down and anxious. On top of that Gastric arrhythmia produces a physical anxiety that had me crawling out of my skin, something I never had before.
I am truly blessed for having a chance to recover, but I believe in paying forward and I also believe if any of you know someone suffering, some of this information can help that person. The doctor I saw was in San Antonio, Texas and he was really, really good and I’d even say flying there to see him would be worthwhile, he is the clinical director of the National Gastroenterology Research Center in America.
If it wasn’t for him, those who love me and doing research I KNOW I would have either killed myself or spent the rest of my life suffering. I want to help anyone else get as well as they possibly can. I truly believe viruses are the cause of most things (cancer, etc) and we can fight them. You are NOT alone. Pass this on please to anyone you know who may be suffering. Thank you for reading if you did. We need to bring awareness to rare diseases like this that are growing in number and striking healthy young people in their prime. Never give up.

The Analyst & Peter Pan

Holding tears beneath excessive eye-make-up

not smart when pealing secrets from heartache

I noticed the Analyst had cut her hair

in Jewish faith, hair is a woman’s greatest vanity

to cut it, often a sign of extreme despair

I cut mine when I was sick, it fell like a lambs tail

to the floor in red scissored ribbons

in the mirror I looked like a shorn stranger

trying to climb out of familiar eyes

reminding me of the time I sheered it off at 16

my lover left me soon after, he did not care for short-haired girls

I told the Analyst I liked her new look

wondering if there was a story behind it

the never-never velvet glove of Pan’s world

his need not to be a he or she or have a Wendy

instead to be free as we are at ten when

nothing of this world can truly touch us

gender becomes a learned yoke in the future

she recalled her sheer days of freedom

wishing to return as we all do, to a kinder time

I do not know if I am this or that

but I know what I am not

I felt it was honest, when you do something big

there is always more of a story behind an act

I sat looking out of the small office window

remembering sitting there before

sick and heaving

thin and fat

slump shouldered, bare-faced and dolled up in war paint

I remembered

driving to you and dancing in my limbs

as I saw you look up and wink

changing the light with your smile

knowing

I will never leave that office and find you again

because you were gone even then

I just hadn’t known it

too sick, too set on denial and fever dreams

perhaps when you know you will never experience

that feeling again

it is harder to let go, watch such a large part of you, fade into background

you are grieving she said

her short hair in her face

I thought of you and the pulse, laying like a long empty road, between us

my heart squeezed with a terrible pain

children flying from an open window into stars

tears splash on my skin, like your touch

which I will not feel again in this life time

so you pronounced with granite in your eyes

and I nodded

dumbly

unable to say anything more

but watch the light

skip in and out of the small windowpane

where once I held

as much pure love

as Peter Pan

The outsider

38638686_1843766582406138_8072796370370560000_nshe wasn’t like them, so they didn’t like her

to her face they smiled and said ‘nice things’

which she knew were lies

behind her back they laughed

and made dirty-lezzie jokes

because it made them uncomfortable

to think about what they thought she did

it made them feel a bit disgusted

like when you stand too close

she looked like them in superficial ways

wore at times, nicer dresses and had longer hair

the fact that she liked girls wasn’t in their

comfort zone

when it was summer time they had

BBQ’s and invited all the neighborhood kids

wondering if she would be safe around minors or

would do something inappropriate

when they started a mommy running club

she wasn’t invited because she was neither

a mommy or someone they wanted to

bare their secrets with

what would she understand of husbands?

maybe their husbands liked her

because she was unavailable

when it was Halloween they made candy and

knocked on all the doors but hers

because the other mothers said best to avoid

what they did not care to know

that’s why she lived a harder life than she had to

for there is almost nothing worse than pretend friendliness

leaving you more alone than if they said what they thought

and spat in your face

if you think that’s an exaggeration or she feels

sorry for herself

think on the tiny percent of the world

where being gay is safe or legal

and the huge part of the world where it is forbidden or punished

think on how many lament at

the shift in culture toward acceptance

calling it a ruination of our society with all

those damn fags

compare it to those who truly feel inclusive

how every day isn’t the same

when you have to contend with not fitting in

making everyone else feel uncomfortable

just by existing

nor can you talk about what matters to you

just in-case visual images abound and people

begin to change the subject

if it were a choice … a lifestyle … few would make it

yet she exists

wishing sometimes the phone would ring

another girl like her would say

I know how you feel

would you like to go for a walk?

she is a gay princess in a tower

and her princess

is somewhere in the world perhaps

thinking the same thoughts

two outsiders

unable to find each other