I AM A TOTEM OF MY OWN BRANDING

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I’ve been told I’m a chronic pain in the ass

after all, it’s easy to destroy a child in an adult’s body

with past-tense words

and now in the time I’m meant to be at my strongest

chronic has visited me and stayed a long while

on a good day I think; This will not be forever

but temporary has always been a long way off

the doctors love to tell us; It’s incurable, get used to

living like this, hostage to something unknown and strange

as if that’s a normal thing to do

but if enough of us live with chronic illness, it will become normal

and that is not a good thing.

Before this …

I took chances, because you think

I’m invulnerable, sometimes I can fly

health, you take for granted

though I truly convinced myself, I had checked the boxes

right weight, exercise, organic, vegetables, no pre-made meals

(well, this is what I told my doctor, sometimes a couch counts as exercise, right?)

if I ate a slice of pizza, it was a treat with friends

though I like root beer, I never drank it

maybe making up for cigarettes, smoked in my twenties

but I thought if I keep jogging, if I keep living healthily

I won’t be felled, because you ARE WHAT YOU EAT.

A few months before I got sick, I recall

feeling strong, climbing through snow drifts and laughing

boundless energy, working long hours, feeling intensely alive

people saying; you look so healthy, your skin is radiant!

Those are not things people say now, unless

I apply a lot of make-up, to camouflage my fraying edges

instead it is me, who declines invitations

I am sorry I cannot go with you to eat, even though eating out

is the number one leisure activity where I live

because my stomach is ruined and I cannot digest much

I live plain and simple (and boring), like a nun and I am numbed

to the pleasures of wine and sauces and garlic, spices and oils

not recognizing my bloated mid section in the mirror

from the girl who once was told

she had an hour-glass figure, with a wasp waist

could run for buses and catch them in three-inch heals.

I know everyone has their burden

but when you get sick and it doesn’t go away

life becomes a series of scolds and let downs

you find out who really loves you and who harbored an anger

used the opportunity of your downfall, to insert a knife

it is the cowards way of course, but freedom of sorts

for none of us need, that kind of negativity in our lives

there is a blessing in disguise, when you find your tribe

the people who care and know the real you

not wanting to tear you apart, because it’s easy to kick you when you’re down.

But blessings do not salvage, the hours you spend sickening

remembering how you were rarely felled in past years

strong of body, sound of mind, juicing and walking ten miles

everything is turned upside down, inside out when you find

a burnt fuse, at the end of your outstretched arm.

There is no cure, there is no future

when you live, in a jar for the jarring

for a long while, I blamed myself

maybe in part, because someone I trusted told me;

“It is your fault, you must have somehow caused it”

easy to throw stones, at glass houses

I was a glass house, with many windows

break one and I cannot repair it

the wind will come in and make of my space

chaos

the sun will come in and make of my peace

madness.

Those things that brought me joy, were gone

instead, the regiment of illness strode in and stood firm

you cannot feel passion, when you are sick

ageing in hours, rather than decades, trying to stay above water

it is hard to feel hope

you rely upon the kindness of others

which is hard to do, if you are not used to it

and when they lift you to the light, you promise

if I can recover, I will try ever so hard to never be ungrateful

but with every mercy, is a dark day in hell

those days take it all out of you, like a scourge

the sickening can age you, more than a nightmare

one minute you recognize yourself, the next you are unknown

vulnerability, of not being able to take care of yourself

the expense and fear

your world crumbling around you.

These are things you get used to and when you have fallen

to the bottom and can no longer get up

that is where the truth lies

that is where you can find

your true self and the end of fear.

They tried to tell you that you were insane

making it up, all in your head, something’s wrong with that

crazy lady who pounds her fluttering chest in vain

tries to catch the eyes of doctors, with beseeching side-glance

SEE ME! HEAL ME! SAVE ME! WHAT IS WRONG?

WHAT HAS HAPPENED TO ME? WHY DID I WAKE UP ONE DAY

SICK AND IT NEVER WENT AWAY?

And yes ! Something was wrong with me and still is

not my doing, not my causing, not my dreaming

despite you saying; You bothered us, when you called and were upset

no mercy, no mercy, no mercy, that is not love.

Helped me let go. Don’t hold on to negativity.

Oh doctor, get it outt!

and if you can’t, then give me the key, the saw, the pick

so I may survive myself and somehow continue on.

Am I to label myself chronically ill, or in recovery?

Surviving or dying or all of the above?

how do you define what doesn’t go and doesn’t kill?

Spending all your money on alternative treatments that

don’t even know what they pretend to cure

how do you describe one good day, followed by one in hell?

others won’t understand, because they are well

what I would give to return, to that safe water place

but even if I did, I would not be the same

you live years with a loaded gun to your head, everything changes.

I am not me anymore

I cannot see out of my left eye

I cannot lift heavy things, with my weak foreign arms

I can walk ten miles and not break a sweat despite this and be told

by friends and foes; OH YOU DON’T LOOK SICK

I am an apparent scar of contradictions and pain

I hurt every day, my stomach feels like

something is eating me from the inside out

it convulses and retorts and shouts

“you will never win, you will bathe in pain the rest of your life”

but I will still try

because I don’t know how to give in to enemies, I cannot see

and even as I cannot eat normal food

one day I am good, the next I am dying green

even as nausea, has become my constant companion

and bottles of pills and vitamins rattle in my pit

even as I fight to be gracious in the eye of the storm

and those I thought would stand by me, try to drown me instead

I know there is still a moment

I am well enough to remember who I am

never to find that peace of mind again

but maybe recover to another state of being.

I wake in the night covered in sweat and the disinterested doctor says

“get used to not sleeping, get used to all of this, it is what you must suffer and many others do”

as if it is normal to be like this, as if it is something we should not mention

I will never think it is normal to be hijacked!

I jog into the forest, because it reminds me I am still living, my feet still work

I fight with wilted hands, when they tell me there is no hope

that I should just consign my former glories to a picture album and put

my feet up for a fifty year occupation of sofas and couches and day time oblivion

because THE POWER OF ME can overcome the power of negativity and this I believe

as I see in the mirror a girl who doubts but stares back unblinking.

I have lost my will at times

I do not write as much,  I have less energy

the last time I had a romantic dinner was in a dream and I

sleep with a heating pad on my stomach every night instead of a lover

but I still pay my own way and my own bills

I have a pride in pushing back against status quo

DEFYING the prescription of HOPELESSNESS.

they tell me go on disability. Just give up

I am not going anywhere, but to the finish line

I learned

by losing everything and having nothing but

the sheer will and dim light of my existence

I can do this without those I thought I had in my corner

because I am stronger than I realized

and this grieves me, as well as reassures me

but I come from a long line of stoic, strong women

and it seems sicker than I am, that we should hate each other

because life, surely we have found out, is fragile

and love is all that makes sense

but even without love I will continue and not

let the flame go out.

Sometimes I ask myself why?

why not just give in? Take the knife, swallow the pill

to oblivion or some non-sign-posted destination

I don’t have children to protect

it would be easy to slip out of this world and its sword edge of pain

but somehow I feel I should protect myself

maybe because others did not

maybe because you defend yourself in the end

when everything else is fallen and you are still

somehow, standing.

I am weak and tired and prematurely aged into

a hunched over version of myself

hair greying with shock, skin is sloughing off and my

body is tied to the rhythm of a sickness that purges and gluts

I was told this kind of disorder was permanent

but nothing I have found, is ever guaranteed

so I have chosen to ignore this and believe

we can all fight and overcome

anything

even a death sentence

even betrayal

even silence

and when we know this

when we are strong for our weakness

realize our tears are just water and salt

burning the frustration of our visiting menace

then, we know nothing can hurt us, more than it already has

and we are free to dream

of a future without so much pain

where death stands to the side and lets us regain

some of our former dignity

for there is nothing dignified in sickness

and you don’t know me when you said I was glamorous

that is the last thing I am

I am beautiful for my courage

beautiful for my fear

beautiful for my survival

beautiful for my defeat

beautiful for my mercy of those who have no mercy for me.

And life is a wax and a wane

life is a torture and a friend

I am the totem of my own branding

I may live in a time where nobody else of my kith and kin remain

and once that would have filled me with pain

now I know you cannot rely upon

labels of safety

it is only by looking into the hearts of those

who stayed by your side when the storm hit

even if it is one, even if it is naught

you remain behind

the tempest cannot roar forever

eventually even agony ceases.

I wish now, to be everything you were not

to love others unconditionally

care for those who are in need

be the change I want to see

I want to find myself

at the end of all of this

I want to tell you, sickness

you do not win

you are just a miasma

I am a spirit with a soul

I will endure you

the me, of me, will remain

long after, to remember her worth.

Before this all began and through it, learned

only the fierce remain

only those willing to FEEL

and not those who run from feeling

with the ease of the damned.

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Faith

My love

it is so hard to keep

faith

with every day there are changing shades from day to night

sometimes I am comforted by fireflies and evening moth

who dual beyond the porch, betrayed by flicker and swat

I imagine the patterns of her wings, that magic sting of light

so short their lives compared to ours, so rich and meaningful I would infer

sometimes it is the exclusion of pain gives me rest

when I can at last unroll my carpet and forget

carrying the weight all day, a vase of ache absent of flower

to place this nowhere and have it melt away

I lie in the bath and heady steam dissipates reality

in those musings there is only the delight of a girl

seeking her passion in lingered meandered imagining

and you come to me, full of health and unharmed yet

by cruel flint and staunch of your absent conscience

and you lay me down and make of me what you will

a thousand pieces of me broken and rebuilt

which I give with my all, for you were and you remain still

far more than sense can convey

in the hour of day when dreams are gone to sleep

I see the cruelty of your take and take and take

the hunger of your keep and how I was but a thing, in your

cabinet of curiosities to be taken out and squeezed when you

thirsted or when times were hard and you needed the succor of

kindness to tuck you in, nothing of you was sincere or loving

all that I held dear possessed the sound of my own breaking

it was as if I had become pupil to mistreatment

learned many times on illiterate whip of inheritance

children soon become acquiescent to disregard

I didn’t know how to be worthy and you took my pain

pinned it to a velvet card and called me Opodiphthera Eucalypti

my blush and powder, the soft rubbed fur and bleed of color

round and round my pattern and maze, sucking from thistle

the gypsy without, I live in silk and attraction to light

pollinating only the fruit of predators like yourself

as you pinch my wings with your greed and whisper

my lunar, my atlas, spin your silken web across my longing

for I have never learned my worth and you wish to

gobble on my spirit as you may an Autumn apple

the fragrance of your dissection

my love

it is too easy

to stay my life in wait of your call

watching others continue onward and myself find

nothing but the covet and anguish of a prisoner

if I had the strength to

I’d hurl myself against the glass

leaving a smudge of myself in technicolor

for children to press their noses against and wonder

oh what ever life could make such a kaleidoscope

and in these mixings of burning and yearning

parched by want and crushed to nothing

the dancer emerges broken and fragmented

to spirit into night her ether and the longing

she is free of her torment and bound to the wax and wane

of one who has rubbed against and been caught by

a terrible rope, woven with obsidian, the shade of pain

my love

it is too hard to remain

faithful

to your brand of hurt

and live in dying with every pursuit

I have long imagined I am already prepared

for the hour, the moment, pain exceeds its curse

and slipping like oil and water and vinegar bound

we change from solid to infinity and beyond

where only the stain of who we were and what we bore

that burning need to consume, that hunger for

all the poison within your sickening and how

never did you rest until the very perish was wrought

standing still like a girl reaching for

something invisible

my love

it is the fresh unopened rose

and her tightly closed promise

shall see tomorrow and claim

the glory

for I will not be there to witness

this new day and those trespasses for this comforts

me in such a depth as if every kind of anguish

were salved by the knowledge this too shall end

and you will dissolve in time

beyond the fragment of what has been

into the very air like things we cannot yet see

whirling and catching the air in relief

for moths have never lived long enough it seems

to know their beauty and how it is

for us who live sometimes too long

and rise to see another day, alone

Fog

Light

Sieved from sky

Silence save the clock

False time

Gregorian or

Are you real?

Was it yesterday?

You told me and I believed

Using the last of my faith

Conserved for this

Waste

Blown down empty highways

Back to silence and strangers

Not my mother’s face

Someone I don’t recognize

How I wish it were her

With all my longing

Still

You cannot

Create worlds

From dust and indifference

It is cold

Without you

Telling me I matter

Validation

Shouldn’t

Be necessary

Yet oh it is

When you are alone

Listening to clocks

Tick down to menopause

The things undone

Lay without stitch

On cold tile

My cat is beneath earth

My car is sold

The seat still warm

Where I cradled your shining head

The smell of roses

Losing their petals

A crucifixion

Pull up your tights and

Leave the empty bedroom

The single pillow

Stark against

Inexplicable

I remember the taste of your mouth

The feel of your fingers

And I am hollow

A prayer lost

For disbelievers

I am

Made to say goodbye

To all I love

Even the hummingbird

No longer comes

Even your hairbrush

When the door closed

Even years later with roles reversed

No daughter to shun

No one

To blame

I wanted only something

Already leaving

Catch the last train

If you can

They never clean

The fog

From the windows

Those sounds made in silence

In the flat hand of glass

Reflects an outside world

Cold Winter sun calls through curtains

patient window pane lover

trees lose last of their leaves

surrendering to unclothed nakedness with the bravery of a wedding night

disiduous remain full, evoking woody balsam and night spore

surviving knife’s turn in weather

holding heat and color in humbled defeat of season

much like humanity

some can bearly stand the ravage

others seem to make a game of it

sustaining themselves on pride of survivorship

not long ago

I was a tree who lost her green

standing frail and nude

cold uneven feet on linoleum

my insides dissected by machines and tubes

the absurdity of being in pain and still

apologising to the technician

for my exposure, those things I had not adequately prepared

for who shaves their legs to ride in an ambulance?

or waxes bikini line in preparation for colonoscopy?

more men in my cavities than my entire sex life

humor in the macabre on the edge of the world

as all is falling around, the condemned laugh

I think of people fucking in hospitals and

it strikes me as the sanest response

take a stranger’s hand, strike your name on the dance card

feel the strong beat of their heart even as

their valium eyes tell you other stories

we escaped just, but we escaped

touch me where I was piecemeal

finger my edges with your need to validate

desire swells when we don’t die of our maladies

to feel once more, the warm assurance of another

weighing us back to earth

80 pounds, 90, 100, we climb through mist

to gain entrance

I sat in the coffee tinged dayroom

the same sun, the same season, a year ago

what a difference a year makes

then I was as light weight as a dry leaf

last fat pealing off me like a hot coat

nurses, seeing my bones, were mothering to me

they did not know how much that meant

because I have honed the art

of never showing my true feelings

I could be smiling as I wept inside

and you would only remark, how bright your eyes

illuminate the darkness, my love, my love, my love

which is why I need to dance

it is the only time, I am myself

aside when sexing the cherry and that I cannot speak of

for I hardly recall, what it feels like to be held

only the sheer joy of remembering touch

a hand reaching through blizzard

the nurse brought me breakfast

sat me in the iron wrought chair

in a soft voice asked me to try to eat

her caring eyes were my feast

it had been so long since anyone saw me

crumbling beneath my layers, sickness

devouring will

the illness brought me out of my exile

heart thundering

where you had placed your sharp arrows

all of you, who used me for target practice

did you think I hadn’t noticed?

I’ve been your punching bag longer than memory

it’s hard not to fight back, but I stand alone either course taken

so I packed my bags and sailed away

just to stop hurting, the ribbons of life lines

each year grief-stricken like those fish you got

in Christmas crackers, good Jews we weren’t

that curled on your outstretched palm

one direction meant fickle love, the other,

who knew? I was always left-handed

wherever you go, there you are

still injured, the pain lingering like unrepentant stain

a dying man sat down, began telling me his life

he said I was beautiful, did I want a date?

both of us in our backless gowns, how absurd

parody of finer times, when you took me in your arms

spun me around, bit my neck, caressing the

pulse

soon enough, early snow fell, sun still shone

I told myself you were waiting for me, when I got out

but you had lost your mind, many years ago

you didn’t mean any of it, those years didn’t exist

they were flakes of water turned to ice

deceptively beautiful

afterward, I drove over the speed limit, windows down

just to remind myself I was alive

but alive for what? To fall and empty myself in therapies chair

to have so much to say and nothing to share?

secrets in their eyes, glittering there

like drops of Winter, another year passing

how our roles change and still hurting

a nurse put her hand on my shoulder

don’t give up, she bent her lips to my cheek

kissed me like my mother did

once, when I was a good child

feeling in my belly, the sickness and defile

of many months lost and found

where are you now? In the woods?

as the sun sets and night falls

ushering creatures from their lairs

I walk beneath the moon and think

of how I am alone, wherever I am

giving up the part of my heart

who always hoped

I feel I have been awake a year

tossing and turning, reaching for

your touch like a thirsting pilgrim

lost in nightshade

you were never

there

only the moon and those sounds

made in silence

as we live and we age and soon

we return to earth

what we take with us

the memories of

wanting you like

flame burns wood

to create brightness

even as they both lived

one must consume other

in this mad

world

Fear – Candice Louisa Daquin — FREE VERSE REVOLUTION

Fear for a child is very different to the adult and exactly the same the child inhabits another decade, in the past, another life before they knew they were who they become the child wets the bed because she misses her mother who is beautiful, ethereal, slender and absent the smell of her still lingers […]

via Fear – Candice Louisa Daquin — FREE VERSE REVOLUTION

I wish I had never existed

The deepest cut

an-apple-rotten-on-the-inside

It doesn’t take much to knock a bruised fruit to the floor

watch it split apart like rotted glass, shards of damp skin in slow motion

try as I might, I AM that bruised fruit

try as I might, I cannot seem to recover myself back to where

once took for granted, the feeling of wellness

it doesn’t help when someone you loved abandons you

in the middle of your darkest hour

things like that aren’t supposed to happen

people who swear allegiance and loyalty aren’t meant to

be the ones leaving your side

such is the hour and fickle fan of illnesses devour

at least I know I’d never treat someone, that poorly

despite this and because of it, healing is slower

though I suspect anything less than fire would be

I didn’t know these things beforehand

the un-annointed do not possess future perspective

to see how illness strips your childish faith, cleaves you

bare and gasping

where family didn’t need to see me, even as I spent weeks in hospitals

it cut me to the quick, but it wasn’t the first or the last

maybe preparing the groundwork for your deepest cut

they say you get used to it in time

I never have

just as I never have truly understood the cruelty within some, who profess so hard to love

now, I am a changed person

I cannot make plans like I used to, thwarted by my body, haunted by ghosts

my illness is like a cobra, she stays quietly in the leaves

rearing up when I least expect or when I want most to escape

her possession of me, the way she knows how to tickle fear

with just enough venom until I am on my knees

I am sure some would say, this is therefore; psychosomatic

that it what they tell all women of hysterical turn

I saw in your eyes when I told the horror; your own disbelief

until doctors produced the proof, you still wondered

it became apparent to me, just like with sexual assault

being believed is paramount to recovery

alongside having faith in ourselves

I did not do a good job of the latter

finding myself more alone than when I started

and I thought I started pretty alone

I know I am a survivor and I was not destroyed

yet it feels like I was

when I look inside myself and find

so little left, a house without windows

it was only because of you, I kept trying

I told you that, I said, you were holding me up

when you let go

I fell to a place I did not know existed

I wanted to ask; Couldn’t you have just waited

long enough to see me through the worst?

but you wait for nothing except your own need

I had to find a way to stand even as everything crumbled around me

which is the biggest test I ever had and I failed it

I failed it again and again

walking through the lullaby of desiring to die for so many reasons

not least, the never-ending dance with sickness and pain

but somehow I did not die, I turned instead to stone

when people say I am strong now and ask; How did you get through it?

I don’t tell them; I am not through it

I still lurch and shake in the throes of unnamed demons and at night

I feel like an arythmic god has taken me and is spinning me

on high-speed like all my parts are made of jello

I want to ask that god; what is it you are trying to shake loose?

surely you know by now there is no more fruit left

not even the rotten kind

that fell and split and sunk into earth, a long, long time ago

it is only me remaining now; leafless, without sturdy branches

I cannot rely upon myself, I cannot rely upon promises

no longer a young, untouched tree with green shoots

I am damaged, broken and hobbled, by this specter and the unknown

as much as by those I knew and trusted

asking why to the imploring void; why are we stricken down?

to what do I owe my continuing? Even as it is, insubstantial

can they see in my eyes, when I pretend, I am trying not to gag?

my appetite spirited away by the scourge and never returned

I would die of hunger and not know it

were it not for some strange determination

I don’t know where that comes from

but as I stand, it must be a place within me

does not give up, as she did not, all those years ago when

the flames licked the top of my house and burned, everything I knew to cinder

I am not like the rest of the world; stronger for my poison

nor am I able to disguise my scars

if I were asked what recommended me; I could not answer

I would probably open my mouth and howl

because you can reinvent yourself, a million times it seems

I am just one incarnation, coming apart at badly mended edges

you, who are able to vault life in gentle sprint, must mock

I am after all, just a fallen fruit, lasting as long as she can

in imperfect, bruised skin