Notes of a common waiting room

The woman with one breast is friendly
She jokes about feeling lighter
We nod grimly

Gallows humor
Palpable energy shift from 20 year old gamer wearing graffiti hi-tops, and 60 year old with deflation in her eyes
The ravage of time and effect, painted on women of different shapes, scars like badges of honor except when they’re not

The old lady is marked by a blue gown to our uniform pink
She exudes weariment without lifting her head from its downcast slump
Her limbs look like they have been pickled and left in hot Texan sun
She has an old ring on her wedding finger
I want to say something
But the lump in my throat and her shuttered aspect stay my hand

Instead I nod to the New Yorker and tell her there’s a free seat
Nobody really wants to sit

They want to run
Be anywhere else
Anyone else
“I miss the days they just told you that you could go“
Says the tall woman with a burgundy hair band
The woman cooked in black garb might belong to a cult
She had an accent and glowers

She says she drove from Eagle Pass because they don’t have good medicine there

Simmering rage in her balled lacquered fists
The hiss of some impossibly expensive machine out of sight

everyone meets eyes over masks, the unsaid being
Is this good medicine?

We play occidental musical chairs

The magazines are gone because of the virus, we hide our faces behind our fabric hoping for modesty that has long fled

Nurses walk their daily steps in the shiny lino corridor, their hair gleams like peacock feathers, they are harried but kind eyed

I get a young woman tech who has quiet jazz
She talks of wanting children. Her brother is sterile. She’s afraid to get tested.

I urge her to try. Thinking of how not long ago I stood in her slightly less comfortable shoes
Imaging a future

How they unfurl and then dry up and close, ready for the rush hour drive back
Mascara lines running like train tracks on masks of horror

A scrawny woman with platinum hair asked me how to do something on her phone
etiquette is said to save us
Not in the time of Covid, I think

A high school had blossomed in the pit of the waiting room
Some have been here two hours
They divide solemnly into temporary allegiances
Some like the loud mouth
Others roll at the waiting and click their dry tongues
It reminds me of paper flowers put in water

Her grandchildren are visiting. The mute girl in the corner looks young enough to be one

I ache for her fledgling fear
Knowing

None of us are safe
From the words
“Come and discuss your findings with the specialist“

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eventually even the hypochondriac will be right

odd for the child

to fear drowning

when his life now is so long

stretching like taut ribbon in sun

he imagines like plain moths who drown themselves

in light emanating from dark

his own lifeless body buoyant on chlorinated pool

why he thinks of his death is anyone’s guess

perhaps the morbid humor of an intelligent mind

or the broken mosaic of life, beginning its downward cycle

once he asked his father, if the river levies bust

will I know I am dead before I am drowned or

will I wake in heaven first?

His father, a man who only worried about

whether his mistress was going to leave him for a younger man

did not spend time assuaging the boys fears

and he grew into a frightened soul who possessed

no mistress to sooth his night terrors

eventually even the hypochondriac will be right

maybe not this year

as she palpitates her breast for the forth time

crossing nervous fingers over heart, half prayer half search

malignancy her code red, flashing with every terrorizing headline

who invented social media? she mumbles beneath her breath

it was so much easier when we didn’t have access to all the maladies, we’ll one day die from!

Her hands cramp in late Winter cold, immediately she thinks

MS, MD, Fibromyalgia, the beginnings of CJD, maybe Parkinson’s

isn’t that a tremor? Or just too much coffee?

Her jittering nerves remind her, we are unable to compute

the exact day, hour, minute of expiry

all we know is our eventual death is an assured event

it’s the torment of those who are self-aware yet still ignorant

spinning in place, every migraine a brain tumor, every

sudden sharp pain a sign of pancreatic cancer, when a friend

discovers he has Multiple Myeloma (and he never touched asbestos his wife decries!)

she flicks through medical journals online searching for similarity

it’s not her wish to die, but a desire to live, control fate

keeping her on false tender hooks like owl without prey.

His life has been one of quiet dread, each day he inspects

the parts of him most likely to give out, checking his irregular heartbeat

the soft pounding of worry causing it to skip, feeling for swollen glands

skin cancers, lumps and bumps different from the day before

he knows his is an obsessive ritual, even as it soothes imagined

terrors, he sees the absurdity of living in fear bound to a wheel

perpetuated by hours spent researching ways of expiring

did you know you can develop throat cancer from invisible HPV

who knew love was such a sentence? He tells his eye-rolling neighbor.

If he counted the hours he took from his life

contemplating how he will die, when, what it will resemble

it’s quite mad

yet when he is lying in his childhood bed alone

impending dread crawling up his flannel spine

all he can hear are the waves calling

and then, a strange longing in him occurs

urging him to be done with bloody charades

join the onslaught and be carried out to sea

along with every child’s nightmare

and the stifled hiss of adults pressing their knuckles

closely to anguished mouths

for the pale mint waiting room seems

entirely too silent

an earie unsettled fog about it

waiting …

Submit your work to these two anthologies

BUT YOU DON’T LOOK SICK: THE REAL LIFE ADVENTURES OF FIBRO BITCHES, LUPUS WARRIORS, AND OTHER SUPER HEROES BATTLING INVISIBLE ILLNESS

AND

THROUGH THE LOOKING GLASS: REFLECTING ON MADNESS AND CHAOS WITHIN

Indie Blu(e) Publishing is thrilled to announce that we will be starting off 2021 with sister anthologies, But You Don’t Look Sick: The Real Life Adventures of Fibro Bitches, Lupus Warriors, and other Super Heroes Battling Invisible Illness AND Through The Looking Glass: Reflecting on Madness and Chaos Within.

The focus of But You Don’t Look Sick: The Real Life Adventures of Fibro Bitches, Lupus Warriors, and other Super Heroes Battling Invisible Illness will be on writing and art from those living with a chronic but invisible physical illness or disability, such as fibromyalgia, lupus, multiple sclerosis, cancer, digestive disorders, chronic fatigue syndrome, diabetes, migraine headache, dysautonomia, etc.

The focus of Through The Looking Glass: Reflecting on Madness and Chaos Within will be on writing and art from those who are living, or have struggled with, mental illness such as mood disorders, anxiety disorders, eating disorders, personality disorders, post-traumatic stress disorder, or psychotic Disorders.

Writers and artists are welcome to submit to either, or both, of these anthologies as applicable to your lived experience.

Given the high volume of submissions that we are expecting, we ask you to follow the submission guidelines as closely.  If you are submitting to both anthologies, please send your submission in two separate emails.  We will begin to review all submissions after January 1, 2021.

Please note that we are not able to offer monetary compensation or free print copies to contributors to these anthologies; however, all contributors will receive a PDF copy of the anthology they are published in. Indie Blu(e) Publishing has prioritized the accessibility of our titles and providing an outlet for artists and writers who might not otherwise get published over profits since we first launched in the fall of 2018.  Keeping 400 and 500 page anthologies affordable globally in a pandemic is challenging.

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But You Don’t Look Sick: The Real Life Adventures of Fibro Bitches, Lupus Warriors, and other Super Heroes Battling Invisible Illness

Anthology Submission Guidelines

SUBMISSIONS ACCEPTED: December 1, 2020 through December 31, 2020

SUBMIT TO: IndieBluSubmissions@gmail.com

SUBJECT LINE:  But You Don’t Look Sick Submission

SUBMISSION FORMATTING GUIDELINES 

• The maximum number of pieces for submission per writer/artist is six (6).
• Writing may include poetry, prose, short fiction, essay, and/or creative nonfiction
• Individual pieces of writing should not exceed 1,000 words

• Writing should be submitted as a single Word attachment to your submission email.  PDFs are the acceptable alternative if you do not have access to Word.  
  • Please use either 12 point Arial or Times Roman font with 1.15 line spacing.
  • Individual pieces of writing in your Word document should be titled, and separated by Page Breaks (not hard returns). A page break is achieved by using Control+Enter.
  • Special formatting is strongly discouraged.  Bold, italic, and multiple font sizes in a single piece are acceptable.
  • Please title all attachments starting with your first name,last name.  
• The exception to this is if you design your submission as a ‘camera ready’ JPG or PNG image that we can import into our publication as we would a photo. In that case, you may use any formatting you wish, but the image must be crisp, 300 DPI, and able to be reproduced clearly in black and white. If in doubt, please contact us at IndieBluSubmissions@gmail.com before submitting.  Your ‘camera ready’ writing must be accompanied by the text in a Word (or PDF) version.
• Artwork submitted for the Anthology must be crisp, 300 DPI, and able to be reproduced clearly in black and white
• You will be notified if your work is accepted. Please do not consider non- acceptance as any diminishment of your experience, but as with any publishing venture, we must try to fit the individual pieces together into a strong whole.
• All contributors to the anthology will receive a PDF copy of the finished book

BIOGRAPHY: All submissions must include a professional biography and cannot be adjusted once submitted. Bios should be 75 words or less long and may include your social media links.

You will be contacted directly through your email when your work is safely received for submission.  If your work is accepted for the anthology, you will receive an agreement letter that you need to complete fully, sign and return to us within 10 days. 

PREVIOUSLY PUBLISHED WORK We will accept previously published work but must have written permission by the previous publisher attached with your submission if they retain rights to your work.

If you own the copyright, your permission and the date and title of the previous publisher must be included at the bottom of your submission. 

---

Through The Looking Glass: Reflecting on Madness and Chaos Within

Anthology Submission Guidelines

SUBMISSIONS ACCEPTED: December 15, 2020 through January 15, 2021

SUBMIT TO: IndieBluSubmissions@gmail.com

SUBJECT LINE:  Through The Looking Glass Submission

SUBMISSION FORMATTING GUIDELINES 

• The maximum number of pieces for submission per writer/artist is four (4).
• Writing may include poetry, prose, short fiction, essay, and/or creative nonfiction
• Individual pieces of writing should not exceed 1,000 words

• Writing should be submitted as a single Word attachment to your submission email.  PDFs are the acceptable alternative if you do not have access to Word.  
  • Please use either 12 point Arial or Times Roman font with 1.15 line spacing.
  • Individual pieces of writing in your Word document should be titled, and separated by Page Breaks (not hard returns). A page break is achieved by using Control+Enter.
  • Special formatting is strongly discouraged.  Bold, italic, and multiple font sizes in a single piece are acceptable.
  • Please title all attachments starting with your first name, last name.  
• The exception to this is if you design your submission as a ‘camera ready’ JPG or PNG image that we can import into our publication as we would a photo. In that case, you may use any formatting you wish, but the image must be crisp, 300 DPI, and able to be reproduced clearly in black and white. If in doubt, please contact us at IndieBluSubmissions@gmail.com before submitting.  Your ‘camera ready’ writing must be accompanied by the text in a Word (or PDF) version.
• Artwork submitted for the Anthology must be crisp, 300 DPI, and able to be reproduced clearly in black and white
• You will be notified if your work is accepted. Please do not consider non- acceptance as any diminishment of your experience, but as with any publishing venture, we must try to fit the individual pieces together into a strong whole.
• All contributors to the anthology will receive a PDF copy of the finished book

BIOGRAPHY: All submissions must include a professional biography and cannot be adjusted once submitted. Bios should be 75 words or less long and may include your social media links.

You will be contacted directly through your email when your work is safely received for submission.  If your work is accepted for the anthology, you will receive an agreement letter that you need to complete fully, sign and return to us within 10 days. 

PREVIOUSLY PUBLISHED WORK We will accept previously published work but must have written permission by the previous publisher attached with your submission if they retain rights to your work.

If you own the copyright, your permission and the date and title of the previous publisher must be included at the bottom of your submission. 

Le repas

The way she cleans

puts away the day

into lopsided drawers that do not shut

well even on easy days

their contents lost in shuffle and exploit

planes over head, mornful drone, a whine

of grief as they attain height

her hands chapped from slapping herself

back to life

rivets run like zippers down her nails

a light somewhere is extinquished

another turned on, sudden furnace, shadows

vanquished, she has not drunk

all day, for the trembling in her hands

betrays the wait.

Dusk smears sky, oranges hang like

tired bosoms pressed in a woman’s dress

amidst plump leaves, blue-black birds

caw their hunger into the cavernous pitch, cats

with arched tails, disappear potently, eternally

her ankles swell with want, her thyroid

a box of treasure, alight with waiting in chocolate dusk

she dozes in her reverie, business put away

the calm of darkening, a hot bath scalding

dry air with its promise, oils filling her nostrils

pungent and wistful, infusion of sorrow

she remembers when

they lay together without fault

or breakage

the outline of their union

a mandala, with complicated lines leading back to circles

drawn in henna, indigo, cheap car paint, permanent in bare footed sprint

poured into a tattoo gun in the wild hinterlands of Canada

stabbed in little sticcatto for her eternal, sea sick

pleasure.

She lay then, thinking of

burning up

like fireworks

set alight to bloom and bloom till dry of pollen

in empty skies void of furtherment

she wanted to melt

the snow as she walked back

alone and hurting, wounded by her own loathing

a cigarette in her mouth

pressed against clenched, chipped teeth

and you? You were far off like winking lights in sea storm

and you were so far then… gone
without being gone

As is so much of life. Waiting. Closing curtains. Wrapping away disappointed hours

to bed, to claim, to screaming beneath wedged pillows

till the thankless clock in the downstairs anteroom chimes not

and without putting our heads in the oven even once

we are done
Done
Done.

Pushing away

one day in the future they will come up with little pills and little bottles

to ‘cure’ this illness when it is not

even tangible

but something made of fibers

unseen to the eye

that set you off galloping

one day you sit quiet and rested in the sun

and just a little thing can start it all

the discrepancy of something said

the feeling of being on the outside looking in

a lie you cannot call someone out for

because they have more lies than you’ll ever

have room for

so you turn

without even thinking

second nature

and run in the opposite direction

shut down close off

never give them a second thought

it is the protection of the flower

who must open daily

and close when it is dark

she can be so sudden in her dismissal

it’s what she knows best of all

that feeling of nothing

that familiarity of naught

and if it happens they’ll eventually

call it an illness

but it’s no more sick than

stones who adapt to water

by becoming

heavier

to move

if I happen to

switch off and stop

I won’t be coming back

and it’s only the ones who

claim the deepest of my heart

whom I cannot stand to reject

who stay with me til the end

burrowed in my being

where few can ever find

entrance.

 

What was it about you?

let yourself right away in

demolished every rule, every tendency I had

an exception we bow asunder to

feathers gleaming against cold sunlight

 

The deepest cut

It doesn’t take much to knock a bruised fruit to the floor

watch it split apart like rotted glass, shards of damp skin in slow motion

try as I might, I AM that bruised fruit

try as I might, I cannot seem to recover myself back to where

once took for granted, the feeling of wellness

it doesn’t help when someone you loved abandons you

in the middle of your darkest hour

things like that aren’t supposed to happen

people who swear allegiance and loyalty aren’t meant to

be the ones leaving your side

such is the hour and fickle fan of illnesses devour

at least I know I’d never treat someone, that poorly

despite this and because of it, healing is slower

though I suspect anything less than fire would be

I didn’t know these things beforehand

the un-annointed do not possess future perspective

to see how illness strips your childish faith, cleaves you

bare and gasping

where family didn’t need to see me, even as I spent weeks in hospitals

it cut me to the quick, but it wasn’t the first or the last

maybe preparing the groundwork for your deepest cut

they say you get used to it in time

I never have

just as I never have truly understood the cruelty within some, who profess so hard to love

now, I am a changed person

I cannot make plans like I used to, thwarted by my body, haunted by ghosts

my illness is like a cobra, she stays quietly in the leaves

rearing up when I least expect or when I want most to escape

her possession of me, the way she knows how to tickle fear

with just enough venom until I am on my knees

I am sure some would say, this is therefore; psychosomatic

that it what they tell all women of hysterical turn

I saw in your eyes when I told the horror; your own disbelief

until doctors produced the proof, you still wondered

it became apparent to me, just like with sexual assault

being believed is paramount to recovery

alongside having faith in ourselves

I did not do a good job of the latter

finding myself more alone than when I started

and I thought I started pretty alone

I know I am a survivor and I was not destroyed

yet it feels like I was

when I look inside myself and find

so little left, a house without windows

it was only because of you, I kept trying

I told you that, I said, you were holding me up

when you let go

I fell to a place I did not know existed

I wanted to ask; Couldn’t you have just waited

long enough to see me through the worst?

but you wait for nothing except your own need

I had to find a way to stand even as everything crumbled around me

which is the biggest test I ever had and I failed it

I failed it again and again

walking through the lullaby of desiring to die for so many reasons

not least, the never-ending dance with sickness and pain

but somehow I did not die, I turned instead to stone

when people say I am strong now and ask; How did you get through it?

I don’t tell them; I am not through it

I still lurch and shake in the throes of unnamed demons and at night

I feel like an arythmic god has taken me and is spinning me

on high-speed like all my parts are made of jello

I want to ask that god; what is it you are trying to shake loose?

surely you know by now there is no more fruit left

not even the rotten kind

that fell and split and sunk into earth, a long, long time ago

it is only me remaining now; leafless, without sturdy branches

I cannot rely upon myself, I cannot rely upon promises

no longer a young, untouched tree with green shoots

I am damaged, broken and hobbled, by this specter and the unknown

as much as by those I knew and trusted

asking why to the imploring void; why are we stricken down?

to what do I owe my continuing? Even as it is, insubstantial

can they see in my eyes, when I pretend, I am trying not to gag?

my appetite spirited away by the scourge and never returned

I would die of hunger and not know it

were it not for some strange determination

I don’t know where that comes from

but as I stand, it must be a place within me

does not give up, as she did not, all those years ago when

the flames licked the top of my house and burned, everything I knew to cinder

I am not like the rest of the world; stronger for my poison

nor am I able to disguise my scars

if I were asked what recommended me; I could not answer

I would probably open my mouth and howl

because you can reinvent yourself, a million times it seems

I am just one incarnation, coming apart at badly mended edges

you, who are able to vault life in gentle sprint, must mock

I am after all, just a fallen fruit, lasting as long as she can

in imperfect, bruised skin

And that someone was you

Most of my life I had a steadfast rule:

only date people capable of love

who have the courage to show you their heart

preferably girls who wear glasses, have larger hands, broader shoulders

it was a thing you see …

to stop me feeling like a beast

I had been told repeatedly when little

you’re a damn ungainly child

look at your monstrous Frankenstein shoulders

see your long white witches fingers

myopic squinting from behind trees

coke bottle glasses, badly cut hair, missing front teeth

that’s what I see, when I look in the mirror now

the girl with a fistful of neglect and a dragon tail.

…

I felt like a freak from the get-go

patch over one eye because it was lazy

wetting the bed into double-digits

work on your personality child it’s the only damn thing you’ll have

I was the girl who lived in a coal filled basement

eating would-be-diamonds in French

going out at night picking flowers before they saw sun, turning them into moon shine

then you broke all my rules

in that way you have, that’s unapologetic, visceral and bittersweet

you with your California tan and your miniature temper

you with your indigent words about love and how

some of us just don’t go there

I’d been hiding in my coal mine most of my life

my mouth was blackened from eating rocks, my teeth all broken

you shone a light on me and said

how about being something different tonight?

what would it feel like if you didn’t need promises

what did they bequeath you anyway?

egalitarian, aiming in the same direction all the time

repeat the pattern, more the fool

how would it be, if you left your rule book at home

tripped the light fantastic with me?

…

I’d built up my arguments for everything

they hung in rows like early Danish tulips

I didn’t want to be an ungainly laughing-stock

didn’t want to be the spectacled girl people rejected

don’t want to be told I was no good anymore

you showed me; if you stop having expectations

just let go, then you’re free

I’d spent my life reacting to what I’d seen

my handsome father sleeping around, my mother’s absence

promises broken, lovers lying, the torture of romance

now I realized, it’s not cute anymore, to keep repeating bad patterns

how about you do what you want for a change?

…

I wanted you

as much as I’d wanted anything

I wanted this moment

not tomorrow or yesterday

but now

I wanted your cocksure attitude and

the relief of your certainty, things don’t last

I wanted the sell by date and the last dance of the evening

because I’d be the one taking you home

and you, you were fresh-faced and confident

like only a girl who is sure of herself can be

with your straight back and your ballerina’s neck

it took this long to find out; I’d just been following ghosts

not letting myself out of my own trap

to feel the circumference and shine of life, without fear

find in my escape from self-hate, a world outside rules and confinement

something real and

that someone was you

for 24 hours or a year

suddenly time didn’t matter or what people avowed

you see, nobody knows, and nothing is real

except now

you and me

a girl with dragon tail and penchant for seeing

the glitter of sweat on your thin collarbone

Unrecoverable

TLDR is bogus / we should read, we should care and take the time

TLDR is now in the dictionary (which I think is pathetic). Unfortunately this post is going to be too long and you don’t have time to read it fair enough but I’m writing it anyway because I have to.

…

Today I found out a very lovely girl I recently met (nothing is random) has Gastroparesis. It really affected me. See I had put all the awful horror of last year and the early part of this year into a box and avoided it. That’s what you do when you feel traumatized and are just trying to get your life back. How lucky am I to even have that opportunity?

…

Seeing those who continue to be sick, year in year out, through no fault of their own, makes you so grateful for any renewed health. After getting suddenly and violently ill last year in March with a suspected Noro virus, I got better quickly but remembered the awful feeling of unending nausea. I had two more brief bouts in May and June the last one sent me to the ER for the first time in my life because I had what felt like heart palpitations. Then in August of last year I got violently ill out of the blue, half way through the day, and didn’t get better for nearly a year. One of the hardest parts is how badly let down you can be, by people you thought cared about you, but on the upside, you also find out who really loves you and who doesn’t and that can be powerful and freeing.

…

I had to quit work for the first time in my adult life, I went into massive medical debt and I was suicidal for the first time in my life. I’m not saying this to make anyone feel sorry for me,I feel lucky. I’m saying this because I didn’t know ANY of the stuff surrounding this before, I was taking my health for granted, I thought being healthy living meant I would avoid bad things, it doesn’t always work like that.

…

It is thought Gastroparesis and other similar extreme illnesses are primarily caused by either Diabetes, complete breakdown of your autoimmune system, physical causes like gastric-bypass surgery or something you are born with, but most commonly is considered to have NO CAUSE. However if you do some research it becomes clear that VIRUSES cause the latter onset. Why women get it 9/1 over men and why pre-menopausal young, fit, healthy women get it, is also unknown, although studies show having a full Hysterectomy can reverse it so it clearly has a link with ESTROGEN.

…

I was told after being so violently ill for months without ANY cause found that I must have Gastroparesis. Gastroparesis is actually very rare but has become a catch-all umbrella term for anything the medical industry doesn’t understand. Supposedly the ‘gold standard’ test for this is the gastric emptying test but I found it is very unreliable and can vary from day-to-day. I was put on REMERON which is supposed to help a bit, if anything it made me worse. Fortunately for me, the city where I was at that time living in, San Antonio has one of the best Gastric Research Centers in the US I was able to see them and what I was told was life-changing.

…

My doctor told me I definitely did NOT have Gastroparesis and that in his experience 8/10 people diagnosed with non-diabetic Gastroparesis don’t have it. I had an EGG which showed my stomach was literally flipping and lurching and not emptying fully because it was ‘dumping’ too fast – this is called Gastric arrhythmia and is almost the opposite of Gastroparesis. I was horrified that they could have got it so wrong.

…

I was put on a very low dose of a medication that slows your stomach down. I’d lost so much weight it was dangerous, I couldn’t eat, I was throwing up all the time, I had constant diarrhea (which interestingly most Gastroparesis patients don’t have but they completely ignored how illogical it was to have constant diarreah despite this being almost the opposite of what you’d think of when you imagine a ‘frozen’ or non-working stomach which is the definition of Gastroparesis). The medication changed my life.

…

I had been suicidal for the first time ever because I decided if this didn’t get better I would not want to live. It was too awful. I didn’t have any family support, I felt so alone day in day out, that’s the worst part about something like this. That’s why my heart bleeds for those who are going through it. I had so much medical debt and couldn’t work and was nauseous (really, really severely not a little bit) 24/7 it ruined my life. The medication changed everything I’m still sick but I can finally work again, I can eat normally although my appetite never came back and I have to force myself which sucks. I have put on more weight than what I weighed before I got sick (as a precaution) and I am on the road to recovery. BUT I keep thinking of those who are still going through this.

…

I feel finding out today this lovely friend has what they thought I had, not only means I must do more to help others, because I KNOW how they feel, and what they suffer, but because we need to find out why this disease and others like it, are happening so often now when they used to be super-rare. It isn’t because people aren’t eating organic, most of the people I know with these things did eat well. Many of the doctors dismissed the link to Epstein Barr Virus and it was my PCP who finally decided to test me. My results showed I had EXTREMELY high titers of EBV in my blood. I worked out after contracting the Noro Virus last March I must also have either had a reactivation of EBV from childhood (90 percent of us get it as children or young adults) or I had never had it and got it for the first time.

…

Either way I realized EBV TRIGGERS Gastroparesis and Gastric arrhythmia. Somehow the autoimmune aspect of all Herpes Family viruses (like Shingles too) trigger various illnesses. The most common you think of with EBV are ME, Chronic Fatigue, MS, Fibromyalgia, Stomach Cancer. But more and more doctors are seeing stomach issues like Gastric Arrythmia and Gastroparesis. The medical industry says Gastroparesis is incurable. I don’t believe it is. I have read that if you can get your EBV down you can get over Gastroparesis. Many times if this is the cause then beating the virus beats the symptoms.

…

The only current treatment for EBV is high dose Vitamin C. I could never handle the acidity of Vitamin C. I found that Dr. Mercola made a Lypoic version that doesn’t hurt your stomach and I began to take 4000mg daily. Ideally if you can then IV Vit C works even faster and better. Once the EBV is reduced in your body the symptoms of the Gastroparesis may abate. The information online is awful and inaccurate, it basically says you will have it for life, but I have known people who overcame it, through diet modification, managing stress (which can exacerbate any serious illness) , adequate rest and treating the CAUSE which doctors never talk about because they want to treat the symptoms.

…

During this time many things changed in my life, at first I thought those changes were bad but I have come to see sometimes you have to force yourself to change, and what you think is a bad change, actually is a blessing in disguise. This illness forced me literally to reexamine my life, I realized I needed to make changes, which included moving and living elsewhere, as well as redirecting my energies into things I’d neglected such as teaching dance again and not giving up on my writing. I had let the awful experience dampen my hope and the truth is, when you survive something that awful it gives you a chance to find your joy again which I have in so many ways. I’m still on the road to recovery, I still have pretty bad days, but I am mindful of how far I have come and that along with support from loved ones makes all the difference.

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If anyone you know is having severe stomach issues and they need help please give them my details because I want to help people. So often people are isolated and uncared about when they are sick. I have known many who have chronic illnesses and they are neglected by their families and invisible in our society. I felt totally alone when I was at my sickest it was the worst feeling in the world, which happens to most who experience long-term illness. The hardest part being since serotonin and other brain chemicals are actually made in the stomach, when you have severe stomach problems you get extremely down and anxious. On top of that Gastric arrhythmia produces a physical anxiety that had me crawling out of my skin, something I never had before.

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I am truly blessed for having a chance to recover, but I believe in paying forward and I also believe if any of you know someone suffering, some of this information can help that person. The doctor I saw was in San Antonio, Texas and he was really, really good and I’d even say flying there to see him would be worthwhile, he is the clinical director of the National Gastroenterology Research Center in America.

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If it wasn’t for him, those who love me and doing research I KNOW I would have either killed myself or spent the rest of my life suffering. I want to help anyone else get as well as they possibly can. I truly believe viruses are the cause of most things (cancer, etc) and we can fight them. You are NOT alone. Pass this on please to anyone you know who may be suffering. Thank you for reading if you did. We need to bring awareness to rare diseases like this that are growing in number and striking healthy young people in their prime. Never give up.

debris of the unsaid

Once

the storm

predicted and prepared for

still

blew away the thatch of your house

sent water pouring like words with lament

and whilst

i was sickening

i thought I heard you row

across the expanse of us

holding your roof as umbrella

your feet bare and needy

opened my cabinet of questions

gave you a draft of why?

to which you descended beneath brackish waters

places submerged in lost question

claiming to surface

a moment where you spun in orange pekoe light

sitting stroking Gato before he

tested his claws on a tree the buyers tore down years hence

i climbed that tree in my high heels

you took a photo aping for the camera

and one fixing your sink in mini skirt

that’s my girl you said

we bathed because then you had a bath and I had heated arms to wrap you whole

the ocean of the past drawing in and receding

with it, debris of unsaid and unchained

time behind and unrecoverable

…

Once

i told you I was sick and couldn’t swim

you held me above waves with your will

till you decided I weighed too heavy

on the stitch of your skin to keep

we both

and neither of us

strangers and familiar

deciding and without decision

lost that year to the storm

as it set its pulse on our sundial and drank all hope in its spiraling eye

(there are many forms of love, you chose certainty over depth)

and once

i took a raft made of need and dragged the silty water

searching for what was lost

of us

who we were and were not

for you told fate you never knew me after all

an error of thinking … no more

then the storm left and all we knew was flat and broken

even trees we climbed were crushed like sad-faced dolls

as if an avalanche had glossed over the details

leaving behind a shiny surface and no more beneath

but dull reflection