For Halo

My debt rests in your fur

as they light it

and it burns

and your form shrinks

from this world

your black and white paw limp against my clutching

fingers wishing you here

those images are cookie cut into my mind

called intrusive thoughts and flash-backs

I know them well

they are not my friend as you were my friend

I imagine what you feel and then recall

you no longer feel anything

though that does not seem right

without religion I am left unknowing

where you land next or if you will

awaken in paradise or remain slumbering

whether sleep or a void, if we can truly leave

and have nothing of ourselves remain

but ash and debris

it seems impossible that you were once

jumping onto the table and making me laugh

with your antics

only to be nowhere and gone eternal

I may not possess sufficient faith

to build castles in the sky but

your energy stays like stillness in

this empty house and from the corner of my eye

I still see your shadow slink just as

my grandmother’s voice is pitch perfect in my head

is that imagination or wishful?

Or do ghosts haunt us willing supplicants?

A bouquet of delusion to soothe our empty

arms or

will you live forever within me? And when I take

my turn at the Ferris wheel

our nothingness will reside near one another

I like the idea, all I have loved will

mingle as returned starlight in the ether

and touch one another with reminder

for being alone or worm food is

a cold dinner companion I wish not

to believe in

even if God turns his head from me and always has

for his man-made lack of female

and my rib is long and sticks into my gut

reminding me I am ever every man’s equal

and will never lay down to those dull prescriptions

of what constitutes truth from a man’s tongue.

Your fur was thicker than all the cats here

who grew up hot and listless on porches

you came with me in a pink plastic box

obscene in its garishness we laughed

putting it through customs

the harried lady at flight desk remarked

well there he goes as you were taken

hand delivered, to the pit of the plane

and I worried because I wanted you to be

on my knee but no madam, I’m afraid for long haul

he has to ride in cargo and don’t worry

few of them get upset, as if she were crouched among you knowing this

this seemed false as so many things do

when big decisions linger like absent friends

at the periphery of moments

too quick, too big, for staying still

briefly I wondered; Should I really be moving?

to this strange country I do not yet know and

burning this bridge indefinitely

it felt as wrong as right ever was and I stood

in the airport watching the thin man take you

behind a curtain and then as you were on your way

so was I.

You see …

I took my cue from you

quite often

and of the two of us when we landed

I think you looked less bedraggled

whilst I fought with immigration because one of my papers

was not ‘just so’ and they called and fussed because

immigrants are not very welcome in any country

and annoy those whose jobs it is to ensure

smooth sailing

and when we reunited

on different soil with the sound of cicadas or crickets

I was not sure in those days

you were hot against my grandmothers blanket

and had peed because they don’t let animals

out to the bathroom at 30,000 feet

which was exactly how I felt, hot and wet and stinking

at the same time, in this odd place where

people were outgoing and spurned shyness or other

attributes we both possessed

with aplom

following our dreams or maybe just mine

as your dreams were about mice or pigeons and later

lizards and snakes

as you learned the ways of the desert

and perhaps the tenor of your meow changed

to reflect the inflection of your adopted country.

It may seem easier but it is not easy for any of us

who come by boat, plane or smuggle, to

lands not our own, we each bring with us

that belly full of ache

and you were always able to

soothe mine with your purr and ever

reminder of our start beneath colder skies and

smaller streets with littler houses and narrow

rooms where we knew our place and here

we could only speculate or clumsily test

our sea legs against

the strangeness of being

with mistake and estrangement

our sole friends quite a while.

Unable even to drive I walked you down the road

for your first vet check and people gaped

from their large cars at the floundering Europeans

walking where no-one walks and everyone uses

big trucks to go one mile and purchase a giant

sippy cup and some Ding Dongs, things with

names that sound fun and 40 additives

my kind of humor and banter lost against

surge of habit, the vet seemed surprised I

had carried you rather than driven and tut-tutted

at your lack of dental hygiene

but remarked how beautiful your thick fur was

and how cats in these parts tend to have

snake skin, we all laughed at that, even you

cast a fish eye his direction like you

possessed the real secrets.

I remember those exploits and driving to Canada on another

exodus when stateless we began again

another groove in our fitful recording

the deep snow and your paw prints leading

me nearer and further

like ice fish we swam in our odd circumstance

always together, staring out stranger windows like

spectators at our own fair ground

in cold you slept beside me and purred

in your sleep to the sound of icicles

warming and falling into snow the

sky a heavy weight holding its breath

eventually we returned to the place of infernal heat

and sizzling side walks where no one but us

and straggly weeds dared to step and the years wound like

lost yarn beneath our odd foray

until you were old and fragile

and I barely noticing because I did not want to

believe you could quit being the little cat

in the pink plastic box glad to see me at the

first airport in our new world.

It was naive or immature of me to forget

cats lives do not echo ours and mine seemed

suddenly far too long and yours bitterly short

a terrible echo of inequality I did not

have the strength to imagine losing you

when together we always were.

Even people who wrote said; ‘Dear Candy, Dear Halo’

as if they could see the join of your fur and my

burning skin against the other

I told myself I would be there when they

sent you to that place I could not follow

despite knowing in my mind the terrible pictures

would roam long and unbidden for many years

to look into your eyes and remind you how much you mean

to me and always how I will look for you

until we are reunited and then I expect

all this will be mere bad dreams and

again we can go forward, or side ways or

whatever direction the after world takes us

but please together, is all I want

for with you gone, I wait without watch

an absence greater than anguish

for you were my best friend in this lonely world

assuaging the hard edges and frayed corners

we came here together and still I am

more lost without you than when I arrived

for your bright eyes and happy tail

gave me courage Halo and ever shall I

look for you coming into the kitchen in

the morning with your half howl of greeting

starting my day and ending it with

putting you to your bed

never once thinking there could be a time

when you were not and I still went on.

Aristotle said it best; a relationship is

two bodies one soul

that is real love

and we are floundering when absent from one another

like the ice fish when it warms up

and water is all but gone.

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Preparation for our dissolution (3)

1_max_494Down the drain

Watch. Watch carefully. See. See clearly

The comforting sound of water retreating in circles

I used to say that water turned to milk

I used to think when cream mixed with transparency

Pearls swirled and ebbed like fire flies in dark.

Kept warm beneath tiny radiators stuck on walls like beige moths

Glowing against a 40 watt bulb

Don’t open the window it’s stuck, it’s stuck on being underground

We breathe in soot, we turn ebony in our effort to

Rise.

She couldn’t lift the baby carriage, in those days it weighed

More than she did and the stairs, sticky with linoleum were

Narrow like her little arms attempting to heft us toward

Light.

We mired in dark. We stayed still as stalagmite in caves

Children’s books. Detective novels. Smite the key in the lock

Green plants fitfully reaching. Reaching. Reaching

Your arm is never long enough.

Recall the smell of boar hair brush. Of Clinique blue bottles

Is it magic? How does it glow? Mouthwatering

How they had a misted outside, I ran my finger down and traced outlines

Someone in NYC designed this shape. The shape of places far and lettered.

She had wool, it got wet washing her hair, the edges frayed

It smelt like grandma’s farm with damp goat fur at 5am

Nobody had anything then. We opened our hands to emptiness

Paper lotus. Needle. Oh Lord. Darn a way out.

Everything is so different now. I did not learn how

To cooperate

How to join. How to thrive. What if you are

Born only of coal?

The heavy weight of circular plates laid over paving stones

A funeral of sorts, bury the mother, bury any off-spring

Only blood. Only letters after names. Knights and paupers

The history of war. Victors write. The rest rot beneath daisies.

She grew insufficiently, facing away from sun

Her skin parchment, knees knocked

The pain in her. Oh the pain in her! No words.

She closes her eyes. Turquoise like the stones found in New Mexico

When she was told that, she said; Yes I will buy a ticket

Board the plane, swallow the dream, take the red pill or

The blue.

It was so savage. The quiet. The silence.

When she left there was nothing but the brush and the bottles

Gathering dust, follicles left spinning in air

Are some of those skin cells, still her?

Reconstruct

Is it any wonder she knows best, people of vacillation

And change? She knows the feeling exactly when told one thing

Tomorrow another truth hangs primly in

Your narrow closet.

Her ear lobes are detached, she read once in a woman’s magazine

Attached ear lobes are a sign of beauty

She has larger knee caps than her shins

The skin barely covers her climb

Trees of white, pearl, honey, comb, hair brush, blue

Bottles.

They didn’t fix the streets they remain

On fire

And they ate coal in preparation

For their dissolution

“Il y a dans le coeur humain une génération perpétuelle de passions, en sorte que la ruine de l’une est presque toujours l’établissement d’une autre.” Rochefoucauld.

 

Faith

My love

it is so hard to keep

faith

with every day there are changing shades from day to night

sometimes I am comforted by fireflies and evening moth

who dual beyond the porch, betrayed by flicker and swat

I imagine the patterns of her wings, that magic sting of light

so short their lives compared to ours, so rich and meaningful I would infer

sometimes it is the exclusion of pain gives me rest

when I can at last unroll my carpet and forget

carrying the weight all day, a vase of ache absent of flower

to place this nowhere and have it melt away

I lie in the bath and heady steam dissipates reality

in those musings there is only the delight of a girl

seeking her passion in lingered meandered imagining

and you come to me, full of health and unharmed yet

by cruel flint and staunch of your absent conscience

and you lay me down and make of me what you will

a thousand pieces of me broken and rebuilt

which I give with my all, for you were and you remain still

far more than sense can convey

in the hour of day when dreams are gone to sleep

I see the cruelty of your take and take and take

the hunger of your keep and how I was but a thing, in your

cabinet of curiosities to be taken out and squeezed when you

thirsted or when times were hard and you needed the succor of

kindness to tuck you in, nothing of you was sincere or loving

all that I held dear possessed the sound of my own breaking

it was as if I had become pupil to mistreatment

learned many times on illiterate whip of inheritance

children soon become acquiescent to disregard

I didn’t know how to be worthy and you took my pain

pinned it to a velvet card and called me Opodiphthera Eucalypti

my blush and powder, the soft rubbed fur and bleed of color

round and round my pattern and maze, sucking from thistle

the gypsy without, I live in silk and attraction to light

pollinating only the fruit of predators like yourself

as you pinch my wings with your greed and whisper

my lunar, my atlas, spin your silken web across my longing

for I have never learned my worth and you wish to

gobble on my spirit as you may an Autumn apple

the fragrance of your dissection

my love

it is too easy

to stay my life in wait of your call

watching others continue onward and myself find

nothing but the covet and anguish of a prisoner

if I had the strength to

I’d hurl myself against the glass

leaving a smudge of myself in technicolor

for children to press their noses against and wonder

oh what ever life could make such a kaleidoscope

and in these mixings of burning and yearning

parched by want and crushed to nothing

the dancer emerges broken and fragmented

to spirit into night her ether and the longing

she is free of her torment and bound to the wax and wane

of one who has rubbed against and been caught by

a terrible rope, woven with obsidian, the shade of pain

my love

it is too hard to remain

faithful

to your brand of hurt

and live in dying with every pursuit

I have long imagined I am already prepared

for the hour, the moment, pain exceeds its curse

and slipping like oil and water and vinegar bound

we change from solid to infinity and beyond

where only the stain of who we were and what we bore

that burning need to consume, that hunger for

all the poison within your sickening and how

never did you rest until the very perish was wrought

standing still like a girl reaching for

something invisible

my love

it is the fresh unopened rose

and her tightly closed promise

shall see tomorrow and claim

the glory

for I will not be there to witness

this new day and those trespasses for this comforts

me in such a depth as if every kind of anguish

were salved by the knowledge this too shall end

and you will dissolve in time

beyond the fragment of what has been

into the very air like things we cannot yet see

whirling and catching the air in relief

for moths have never lived long enough it seems

to know their beauty and how it is

for us who live sometimes too long

and rise to see another day, alone

The Nightingale

Only anger

where there should be love

until we let it go

become nothing but empty

as we were before

ever finding

fickle road to emotion

all its vanity and its glory

the good and the not so

and in between, days of roses

turning their thorns into pricks of

passion and belonging

for I surely

have never dwelt in another place so deeply

as that space of you

nothing left after the hurricane

all memory fled and closed

like a cuckoo clock without bird

a hollow tree absent of owl

the indigo night and no

stars

lighting our way back

now, we can only go forward

stumbling blindly

a snowstorm, desert, running out

of reasons to put

one step in front of next

yet as humans we have this penchant

for survival at any cost

it is not always a pretty thing

sometimes our hair is gnarled

our very hide, matted and overgrown

we may never recover

the girl within who

let you in

but still in mornings earliest hour

before most things awake

there is a stillness, a hush

an abundance of hope

in slow shadows and still warm hearth

a wisp of your hair remains

caught in my brush

I will let no-one use it

it stands testimony

proof of breakage

I am not the girl I once was

coming to you with flowers

plaited with fullness of trust

we are both much older now

turning from copper

the green of rivers drowning

those early wants

carrying lightness down stream

leaving us in perpetuate shade

where you tell me to go on

without you

turn your back

becoming stone

on which I pound

my small fists until they

bruise, turn purple like

spring crocus pushing through

late snow

if saying it changed anything

you’d never leave

if love were a superpower

you’d always stay

but birds always migrate

come first cold night

every year they return

changed

still searching for

meaning in the

wetlands of life

I suppose I am

your soundless bird who fell from her

cage

wishing you would

scoop me up, make me

in your image

with the press of your devour

and when you

were absent long enough

the wide sky outside did not

beckon

I became a

nightingale

I inhabit

darkness

like a needle can pierce

velvet and leave

no

discernible

mark

When a lover replaces the ghost

je-tu-il-elle-1976-007-naked-women-lying-on-bedYou always said I was so beautiful

in your arms I let myself believe

in many things

now I do not have those assurances

it’s like being born again and starting over

i want to tell you, because I think you’d understand

whom else would I ever share this with?

how difficult it is for your girl

to no longer be that person

I have to grow up, grow beyond you

I’ve been living in your rule book and my own intoxication

maybe it’s like a recovering alcoholic

we took our share of hard knocks

I’m going out on my own and it scares me

I hear your voice in my head saying I can do it

find myself believing I can

on the far side of pain and loss, meeting myself again

leaving the sick room and its soft slow death

closing the door on you when you passed from me

there was only the outline left in cooling sheets

someone unrecognizable in your place

an effigy, an imitation with nothing of your gentle ways

I want to tell you I found someone

a girl who leaves me breathless, with eyes like french glass

but there’s things we can’t speak of

for some wounds, carry their own salt

we were the best of friends by the end

still, neither of us needs to know

when a lover replaces the ghost

I still feel so alone since you died

thinking I can hear your answers

on the breath of each nighttime wind

maybe I imagined you all this time

slowly forgetting what it felt like to be whole

and silence has always been my music

now I lay you down here, in the quiet dark earth

to rest, become a memory without strength

for we who continue to live must

shed the weight of sorrow

rising beyond what we thought possible

run forward when we are beckoned

until we can

run no longer

Unrecoverable

TLDR is bogus / we should read, we should care and take the time

TLDR is now in the dictionary (which I think is pathetic). Unfortunately this post is going to be too long and you don’t have time to read it fair enough but I’m writing it anyway because I have to.
Today I found out a very lovely girl I recently met (nothing is random) has Gastroparesis. It really affected me. See I had put all the awful horror of last year and the early part of this year into a box and avoided it. That’s what you do when you feel traumatized and are just trying to get your life back. How lucky am I to even have that opportunity?
Seeing those who continue to be sick, year in year out, through no fault of their own, makes you so grateful for any renewed health. After getting suddenly and violently ill last year in March with a suspected Noro virus, I got better quickly but remembered the awful feeling of unending nausea. I had two more brief bouts in May and June the last one sent me to the ER for the first time in my life because I had what felt like heart palpitations. Then in August of last year I got violently ill out of the blue, half way through the day, and didn’t get better for nearly a year. One of the hardest parts is how badly let down you can be, by people you thought cared about you, but on the upside, you also find out who really loves you and who doesn’t and that can be powerful and freeing.
I had to quit work for the first time in my adult life, I went into massive medical debt and I was suicidal for the first time in my life. I’m not saying this to make anyone feel sorry for me,I feel lucky. I’m saying this because I didn’t know ANY of the stuff surrounding this before, I was taking my health for granted, I thought being healthy living meant I would avoid bad things, it doesn’t always work like that.
It is thought Gastroparesis and other similar extreme illnesses are primarily caused by either Diabetes, complete breakdown of your autoimmune system, physical causes like gastric-bypass surgery or something you are born with, but most commonly is considered to have NO CAUSE. However if you do some research it becomes clear that VIRUSES cause the latter onset. Why women get it 9/1 over men and why pre-menopausal young, fit, healthy women get it, is also unknown, although studies show having a full Hysterectomy can reverse it so it clearly has a link with ESTROGEN.
I was told after being so violently ill for months without ANY cause found that I must have Gastroparesis. Gastroparesis is actually very rare but has become a catch-all umbrella term for anything the medical industry doesn’t understand. Supposedly the ‘gold standard’ test for this is the gastric emptying test but I found it is very unreliable and can vary from day-to-day. I was put on REMERON which is supposed to help a bit, if anything it made me worse. Fortunately for me, the city where I was at that time living in, San Antonio has one of the best Gastric Research Centers in the US I was able to see them and what I was told was life-changing.
My doctor told me I definitely did NOT have Gastroparesis and that in his experience 8/10 people diagnosed with non-diabetic Gastroparesis don’t have it. I had an EGG which showed my stomach was literally flipping and lurching and not emptying fully because it was ‘dumping’ too fast – this is called Gastric arrhythmia and is almost the opposite of Gastroparesis. I was horrified that they could have got it so wrong.
I was put on a very low dose of a medication that slows your stomach down. I’d lost so much weight it was dangerous, I couldn’t eat, I was throwing up all the time, I had constant diarrhea (which interestingly most Gastroparesis patients don’t have but they completely ignored how illogical it was to have constant diarreah despite this being almost the opposite of what you’d think of when you imagine a ‘frozen’ or non-working stomach which is the definition of Gastroparesis). The medication changed my life.
I had been suicidal for the first time ever because I decided if this didn’t get better I would not want to live. It was too awful. I didn’t have any family support, I felt so alone day in day out, that’s the worst part about something like this. That’s why my heart bleeds for those who are going through it. I had so much medical debt and couldn’t work and was nauseous (really, really severely not a little bit) 24/7 it ruined my life. The medication changed everything I’m still sick but I can finally work again, I can eat normally although my appetite never came back and I have to force myself which sucks. I have put on more weight than what I weighed before I got sick (as a precaution) and I am on the road to recovery. BUT I keep thinking of those who are still going through this.
I feel finding out today this lovely friend has what they thought I had, not only means I must do more to help others, because I KNOW how they feel, and what they suffer, but because we need to find out why this disease and others like it, are happening so often now when they used to be super-rare. It isn’t because people aren’t eating organic, most of the people I know with these things did eat well. Many of the doctors dismissed the link to Epstein Barr Virus and it was my PCP who finally decided to test me. My results showed I had EXTREMELY high titers of EBV in my blood. I worked out after contracting the Noro Virus last March I must also have either had a reactivation of EBV from childhood (90 percent of us get it as children or young adults) or I had never had it and got it for the first time.
Either way I realized EBV TRIGGERS Gastroparesis and Gastric arrhythmia. Somehow the autoimmune aspect of all Herpes Family viruses (like Shingles too) trigger various illnesses. The most common you think of with EBV are ME, Chronic Fatigue, MS, Fibromyalgia, Stomach Cancer. But more and more doctors are seeing stomach issues like Gastric Arrythmia and Gastroparesis. The medical industry says Gastroparesis is incurable. I don’t believe it is. I have read that if you can get your EBV down you can get over Gastroparesis. Many times if this is the cause then beating the virus beats the symptoms.
The only current treatment for EBV is high dose Vitamin C. I could never handle the acidity of Vitamin C. I found that Dr. Mercola made a Lypoic version that doesn’t hurt your stomach and I began to take 4000mg daily. Ideally if you can then IV Vit C works even faster and better. Once the EBV is reduced in your body the symptoms of the Gastroparesis may abate. The information online is awful and inaccurate, it basically says you will have it for life, but I have known people who overcame it, through diet modification, managing stress (which can exacerbate any serious illness) , adequate rest and treating the CAUSE which doctors never talk about because they want to treat the symptoms.
During this time many things changed in my life, at first I thought those changes were bad but I have come to see sometimes you have to force yourself to change, and what you think is a bad change, actually is a blessing in disguise. This illness forced me literally to reexamine my life, I realized I needed to make changes, which included moving and living elsewhere, as well as redirecting my energies into things I’d neglected such as teaching dance again and not giving up on my writing. I had let the awful experience dampen my hope and the truth is, when you survive something that awful it gives you a chance to find your joy again which I have in so many ways. I’m still on the road to recovery, I still have pretty bad days, but I am mindful of how far I have come and that along with support from loved ones makes all the difference.
If anyone you know is having severe stomach issues and they need help please give them my details because I want to help people. So often people are isolated and uncared about when they are sick. I have known many who have chronic illnesses and they are neglected by their families and invisible in our society. I felt totally alone when I was at my sickest it was the worst feeling in the world, which happens to most who experience long-term illness. The hardest part being since serotonin and other brain chemicals are actually made in the stomach, when you have severe stomach problems you get extremely down and anxious. On top of that Gastric arrhythmia produces a physical anxiety that had me crawling out of my skin, something I never had before.
I am truly blessed for having a chance to recover, but I believe in paying forward and I also believe if any of you know someone suffering, some of this information can help that person. The doctor I saw was in San Antonio, Texas and he was really, really good and I’d even say flying there to see him would be worthwhile, he is the clinical director of the National Gastroenterology Research Center in America.
If it wasn’t for him, those who love me and doing research I KNOW I would have either killed myself or spent the rest of my life suffering. I want to help anyone else get as well as they possibly can. I truly believe viruses are the cause of most things (cancer, etc) and we can fight them. You are NOT alone. Pass this on please to anyone you know who may be suffering. Thank you for reading if you did. We need to bring awareness to rare diseases like this that are growing in number and striking healthy young people in their prime. Never give up.