The refugee heart

gratitude
Todd Davidson/Illustration Works/Corbis

Before hard faced words and tightened bouquets of spite,

came silence

The child swirled in embryo, unscathed by adult cast of hate

Yet unknowing we inhabit cruelty, like a brand in darkness will

light no way but vengeance, reflecting shadows of lost conscience

against petroglyph walls

stories dissipated in forgetting what is true.

This child who once had temerity and self-worth clad about her, the vestige

of some right to exist, perhaps.

An instinct, as weeds will thrive in exhaust and skinny cats climb insurmountable

to glut on that thrashing impulse, called survival

words now scarred, like badly bandaged souls do not forget the echo

of a tender heart turned wicked, nor that merciless piercing

through skin thought impenetrable, to embrace hot metal

as if it did not catch our very soul on fire.

Once, we all wished for, love, pure and unfettered, blooming as night rose

carrying her scent against warm air, inhaling vetiver magic, aware then, of all things

our cache of hope, restless in the waves, we yield, undulate and count

moon peal across black water, spinning youth into gossamer

too fine to hold us securely.

Those burnt coals raked certain, beneath the old impulse to run

mindful of how we grow, the thirst for something real remains

tantalizingly distant

against the roar of white waves, crashing tirelessly to shore

reducing our ankles frigid with the climb, a vaunted capture

of sea — receding against open hands to places beyond

our feeble reach.

As it grows light, the footsteps of those who walked ahead

finding debris of promises washed to shore, frozen by their spent fuse

and silvery starlight echoing her distant mockery of possessing any

certainty

those, who for some reason remain here, despite themselves

hollow in the want for familiar arms to gather them up whole

pressed to a beating heart, the murmur of security bound in

crescent sky.

A reddening brings the dream, she swoops low and achingly,

casting silvered birds from their reverie

that we not succumb to our collective despair

finding the drawers and cupboards of truth ransacked and emptied

by unseen robber

and instead, wait by the edge, long in the rising sear of sun

blackening our backs with shadow

for the sound of her footfall, across the dunes, sunk in splendor.

Her journey long, she made it anyway, even in the worst heat

of midday, when insects burrow against the burn and her mouth

opened in an O for the drink of your love

a beacon on a jutting rock, watching seagulls mock the air

with white foamy lift

wanting only for you to need

in equaled measure.

Perhaps you dreamed of me

kissingA few people said / write something succinct / shorter than your usual / elaborated rhetoric / don’t you know how to / edit and be precise in your / measurement of words / good writers don’t need / verbal diarrhea / they can mold meaning / certain as bending copper / to light.

She thought it over

Knowing it was possible

After all she’d written some very

Shaved and glutted poems

Once.

 

(It wasn’t her way and if you are not true to your way

then you may as well be another lemming / willing to leap / from cliffs edge

of course this precludes learning which is / a value immeasurable

sometimes you can learn everything and still / go back to drawing unrealistically).

 

Finding something – – – perhaps it’s not a poem or a form but a short story

In the elongation and manipulation of reality and precision. Imprecise then. Deliberately.

 

Long ago she had no words because she couldn’t spell well enough to write. So she drew. For hours. Reels of paper. Stories by picture. Things she needed to say. To no one listening.

When she saw Woman In A Red Armchair hanging in a burgundy room / the silence palpable aside / rain hammering outside / mercilessly / like a hundred mouths clamoring

she tried not to stare at the line that made the woman / female

but was drawn to it as she might have been / a real breathing woman

something exquisite and desirable / she longed to see a live flesh and blood girl

to touch her with her empty hands and run them over her / quivering flesh

until those colors swelled up / and she cried out / for the sheer torment and beauty

but

no girls existed / save those who / liked boys / there were plenty of them

why were they all heterosexual?

why wasn’t she?

In America she heard / there are entire schools / devoted or a byproduct perhaps / lesbians / and only-girls-schools / well don’t start on them …

living in the city / you’d think but you’d be wrong / a few pinches / mostly shorn / forlorn

empty eyed / emulating men / less female than / those who wanted to lie beneath them.

Where existed that / judge not / beauty / with /dark eyes

the missing / beat / savor / prosper / sail

to her / soul.

If she could have / found her all along / not searching years but moments / glimpsed

sight and immediately / both knew / this bond before / words spoken

even at 13

even before she were born

perhaps you dreamed of me

created in the stillness of your loneliness / that which you did not have / filling emptiness with yearning / I am born to be / the wet ink on your skin / a permanence / no longer waiting / arms outstretched / for dreams unnecessary / now we / are.

Never quite together / torn asunder / this year the blackcurrents come later / as if they knew / what wonders and nightmares / store / waiting behind the pitch / to come rushing / we tried / we failed / the frailty of emotion / it bleeds easily / like thin skin / gone a-blackberrying / on a listless day / no clouds nor movement / sky dim / with unspent rain / the longing stored up / causing pain.

Perhaps you dreamed of me.

I stood — uncertain — proud backed —

against the light

where shape can be outlined

most acutely

if then you’d looked — ephemeral — something unstated

in muted expression

what we do not say — what we hold inside — contains the greatest

message.

Return to me. Though you are gone. Through the shroud. Time be gentle. Time be cruel.

Different and the same. Recollecting nothing. There is the proof. Stained on our table. Where you cut yourself. On a sharp knife of desire. And I opened to you. Ballet within music. Rapture closed us together. Forgotten. How do you not remember.

That long night we ran barefoot?

Flowers close their drowsy heads. Against night. Sleep. An eternity. Wakening. We are

strangers. Again.

Loss. A pressed red petal against Italian paper. Seeking its watering. I am so thirsty for your return. My love.

Don’t have that kid

xrays-for-hearts

The therapist leaned back in her chair

light from the window framing the space in-between

“Your mother didn’t leave you now, she left you at six, many years ago

you cannot grief for, what you have never had.”

I thought of this as the clock wound its message of time

always against us, years apart, years unlearning reasons to love.

“What purpose is served in trying to reconcile when you neither know

why she has never loved you, nor what you did to cause this latest eruption

and given the certainty of it, perhaps consider, it’s the other way around, not

whole then broken, but always broken and never fixed.”

I tried to remember the last time I saw my mother. For a moment

I could not recall her face, or what she was wearing that last time

and my chest felt tight with anger at myself until it came and she

was real once more. I reached out in my mind, the way I have been

doing since childhood and tried to touch her, the image as always

grew dim and receded.

“The history as I understand it is, you never resented your mother

for leaving you at six, you defended this action when others condemned her

because you just wanted her to be happy, that was always more important

than your own happiness.”

I nodded dumbly. Silent and unable to articulate any further

response.

“She clearly did not wish to have children, that is no shame upon her,

however she did have a child and she left that child, with little regard for

that child afterward.”

I thought of the brief lunches, the walks down shopping districts, my

wanting to carry her bags even when smaller than her, a protective

fierce desire to do something, anything to win favor. How time seemed

so very, very short in those days, of fleeting moments built on years.

Want being the predominant emotion, desire for, longing, missing,

apart from, that continuation of chasing shadows.

“She had her own life.” I replied. Thinking of one of our last conversations

where she said; “Candy I don’t understand this need you have to be close

to your parents, I was never close to mine, you are an adult, you should

have your own life, when I married my second husband he became

my life. That is how it should be. We should not hold onto our parents like that

it is not healthy.”

As much as it cut me, like that metal string used to carve cheese blocks

I knew a part of me agreed with the part of her

who spoke of practicality rather than ‘duty’ and freedom over

the slavish obligation to ‘feel’ a certain way about people whom

many times we did not have connection with.

I recalled how much she disliked her mother, who was gauche, and

could not spell and only wore trousers and sensible shoes, who laughed

a lot and could sing bawdy songs and may have been unpolished

but also did not really defend her daughter against things

unbidden in the dark.

“My mother saw me as being like her mother, whom she

was not fond of. I was not the sort of daughter she would have chosen

had she had a choice, I had some things going for me, that she was proud

of, like my ability to socialize and make friends, she was always quite

cerebral and found it fascinating. She liked how I was good at gymnastics

and physical things, but my mind was not her mind, I didn’t inherit

her abilities, I was too emotional, too needy.”

“Perhaps it’s human nature to have a favorite child, to see yourself in one

of your children over another, to have preferences, but

if you condemn a child just for being different you are

instilling a life time of approbation and it seems, she was

treated very well by her grandparents who thought highly of her,

even her parents, building an ego and self-confidence, something

she never did for you, instead knocking you down, where you

didn’t have the ability to be so egocentric even if you had

tried.”

I recalled the time she told me she had never forgiven me

for my past crimes, I could not recall what they were, I do not

think she could either, it was more of a sour feeling she had

which I reminded her of, a mistrust, we both have that in

common, an inability to trust anyone, we do not sleep

sitting up, we take a long time to switch off, I found this

similarity comforting, she did not know it existed or the other

things we had in common, there were many.

“If I believed in myself as much as her, I would surely have

gotten a different response. But it’s a self fulfilling prophecy, if

you taint the ground water, the flower never thrives.”

In her garden, she grew roses, her mother grew roses too, one

Birthday I bought her many plants, she said they died because

of the weather, I knew she had not watered them, I did not

know how to reach her or please her. Lord I tried.

“She made it clear to you she did not need you or want you

in her life, she said she had not forgiven you for past trespasses

suggesting the woman who proclaimed not living in the past

held grudges from the past toward her only daughter

quite thoroughly.”

I knew what the death knell was, I knew it was a combination

of speaking out about my grandfather, her father, what he

was guilty of doing, and this, not out of malice or a wish to shame

but a desire to move beyond, to save, to love. It was the worst

idea and despite not being from a place of hate, was taken

as a betrayal, she is a lot like me, she finds it very hard

to overcome betrayal, it stays with her a long time, she

may grow used to pretending she is okay with it, but

at the back of her mind she seethes.

The second death knell was when my father, who

most of his life gave the text book definition of impartial

uninvolved, stood up for me against my mother not

wishing to destroy anyone but due to my illness and seeing

how much I had endured, thinking kicking me when I was

down was not right, he said so, and she never, ever

spoke to either of us again. My father who had lost his

brother decided this was okay because he said, life is too

short, although in truth, we were

all more than that, far more than that, our blood was shared

in a maze of snakes, I wished so much it had not come to

this place of emptiness.

“Your mother knows how to love and protect herself and that is

about it, she may feign love for others, but the truth remains

she is mostly concerned about surviving and whatever it takes

and that does not include you, never has, you are really an

after thought or something to feel guilty for.”

“I didn’t want her to feel guilty.” I said, thinking of

our conversation when she left, I am six, I sit in bed, my toys

are watching in the dark, their glass eyes gleam, she is crying

I have not seen my mother cry but maybe twice, I sense

she is on the edge, I want to help her fly, it doesn’t matter how

I feel it matters only that I save her, I tell her I love her and she

must do what she needs to. I meant it then, I mean it now, and

yet she thinks I am her enemy

which destroys me, every time I think about it, with her

father, the true enemy of us both, but she cannot allow this

truth to exist, as he is her maker, she must venerate his memory

even as he caused this breakage, even as we pay him homage in

our exile, she would choose him over me, the daughter whom

despite her belief otherwise, has never betrayed her, has never

been against her. I hear her say to me; “You must talk badly about me

as you criticize your father to me, you must equally condemn me to

him when you speak, you are two-faced, I have never trusted you.”

Words can be knives, they can be sharper than nightmares

piercing our armor, our very life blood, the sustaining force

we try to hold together with rags and pins, I wanted to scream and

say; “Please do not see me this way, you say I scared you with my

illness and you can not handle me calling upset, or afraid, yet

your husbands ex wife called regularly with just the same, you did not

banish her, and your husbands daughters did nothing of what

I did all those years, yet they are never wrong, how can this

double-standard exist when you know the truth?” My last

words; “I will always be here for you.” Asking her to speak to

me, be in my life, give me nothing but that, and she has

that power to say no, which she uses.

She would not hear because she has her version

although truth has no version only truth

I wish so much she could see how things really were

how beautiful we could be in those moments when

it worked and we laid down any grudge in favor of joy

life after all, is so short, so very, very short.

When you don’t matter to your own mother it is

hard to imagine why you should ever matter to

anyone

this is probably what I have struggled with the most

all of my life, though that is my fault for not being

stronger

feeling I am not worthy and there is no reason anyone should

want me or love me, or not betray me

I try hard, but I fail, again and again

it does not help that nightmares come true, you fear

and so it happens, she walks away, she does not

look back.

I hear her laughing somewhere, I hear her

living her life without me until one of us is gone for good

and then it will be forever too late

“She told me she read a poem I wrote years ago where

I wished that she was dead, but that was not the poem

I wrote, I wrote that I had felt the loss of

her all this time as if she were not alive, because when you lose

someone who is alive, it is worse in some ways than

when they are dead. That is what I meant, but she chose

to see it as my wishing her dead, which is the opposite

of every prayer I have ever had. As a child I would beg

the God I did not believe in, to save my mother

to keep her from harm. And the God I did not believe in

would not reply. Angered maybe that I did not, could not

believe or have faith,

in anything.”

The therapist remained silent, I knew from experience

a mixture of wishing I could just get over my goddamn

childhood and grow the fuck up, or is that me talking? Is

that my mother? I hear her voice often, sometimes she is

singing at a piano in the bar where she met my father

and I am as yet born, I go up to her, I am wearing a black

jacket and it has piping down the sides, I ask her not

to keep the pregnancy; “Take it from me lady, it’s better that

way, if you believe one thing, this is it, don’t have that kid.”

And I have a Southern Drawl which of course I have

never possessed, but how I wish she heard me and

I was never consummated, even as friends decry this, with

platitudes of; “Oh but think of the difference you have had

on this world!” Oh give me a break, none of us really matter

and if we could undo our existence, is that so bad? Is it as

wrong as taking an overdose? No, of course not, so get

over it.

I recall once she said I would

never be as talented as her and I could not write and then

I showed her my novel and she actually liked parts of it, yes

she cannot help condemning and criticizing, it is who she is;

The Editor, someone who knows and has a red pen

the very opposite of her parents, her weak mother who

did not stand up for her, her father who loved her the

wrong way, but what is wrong between blood? A lot I think.

When she liked a part of it, much as she tried to say it was

all irredeemable, I saw the surprise on her face and that

tendency toward hurting me and I felt happier than I ever

had just for a moment, before it was lost, thinking she was

proud of me. “You can’t take that away.” I shout up to

The Fates who have decided we are not to be together

in this life time and since there is no other (life time)

this is it, a separation, every day I live knowing she lives

and we are apart, it feels like someone has a hot iron

they are pressing it against my heart. Maybe it makes me

who I am, someone who cares too much, not everyone’s

cup of tea. Some people hate me on sight. Just like that.

I wonder, did she? Did she? Did she?

She said; Don’t lie about who you are,” but

we have all done it, it’s part of our fantasy, especially

if we hate ourselves, the only choice, else we’d not be able

to do anything and that was my father’s choice, one I

didn’t want to emulate, I had to find a way to function

without excuses, she couldn’t understand, she has a lot of

self faith, I had none, she abhors liars, but she lies too, only

better.

You see, I looked up to my mother

she used to say; “Never have idols, they are unhealthy.” She also

told me not to drink orange or apple juice, I did listen and

now I have no cavities, that is her doing, many things are

her doing, good things along side holes and pits. But

she was her own idol just as she was mine, so really

that’s a moot point, for a little child, watching her mother

who is always out of reach, I hear myself say; “Please. Please

don’t go away, don’t do this again.” Maybe that is

why she did, because she had the power, over me

who else would ask her to stay? Who else wants her?

Or any of us? Who? Foolishly I thought as we grew

older she would need me, that was a really stupid

thought, I berate myself, I never did predict her,

she is quite wild and untamed, a good thing, my heart

has loved her unwaveringly all these years

it has made me who I am in so many ways

good or bad, such as it is, I have grown on

a mixture of pain and loss, like a thin weed

can make life from between two stone slabs

but usually come the first flood or drought

it will be the first to

wither. She said; “You caused yourself to get sick”

I could tell her what the doctors said about smoking

during pregnancy or how my stomach has never been

okay, how can a child cause their own sickness even

before they get sick? No. No. It wasn’t me.

She is rarely sick, she has the fortitude of someone

who would will away sickness, I believe it. I try, I do not

succeed. Many times daily I speak to her in my

head just like when she brought me a marzipan frog

from a trip and I could not eat it, as it would mean

losing something of hers, so I coveted it, and she said;

“that’s so pathetic, you always do that, look now it’s spoiled and you

did not even get to taste it.” I could not tell her

“Oh yes I did, every night, when I looked at it, I thought

of you and hoped you loved me, and this gave me

so much joy, I was literally grown fat with it.”

The song of her

white and black mountain
Photo by Nikhlesh Tyagi on Pexels.com

My fantasy was placed in a velvet box,  buried at garden end where the ivy grew heavy

those were the days gone now, or perhaps forgotten, where fantasy was all you had

walking into bars, confronting realities better spared

shadows in corners, leaning, lurching, enveloping, retreating

you did not exist, we did not exist

our images were not part of the collective, the minority, the clique or the open space

wide and tumbling with questions, a loneliness at the core, the petals red

filaments of each others minds like fire flies without dark to make of it light

had you existed then, I would have traveled continents, just to know

feel your long black hair trace my need to be, closer than possible

only books, only songs, only walks on moors with other people’s dogs in tow

I imagined meeting you, what you would say, how we would get to know each other

and somehow shape the magic to follow

but it was only ever like the rain, predictive in falling but without control

impotent magicians we, beseeching the moon her unearthy feminine

pieces of me, pieces of you, strewn in directions not able to connect

I stayed young in getting old and before you know it, you’re no longer there

hunched over youth, abundant in dream, filled with need

chewing the heads off time, gnawing the bones of ancestors who disapprovingly gaze

instead you have learned to bottle your desire that the world create girls who love

from marigolds and pieces of ourselves cast to the wind

put it somewhere you won’t be ridiculed, join the line of other pursuits, a job, a direction, all taking me away from fantasy becoming true

the lines on my face, the fall of my skin, these things that shock and horrify

only remind me of what I once was, bright teeth, shy smile, large heart, empty pockets

how I longed for you to take my mittened hand in yours and

drag me out of myself, let me know you don’t have to fit in with the crowd

to feel love

in petrograph, in Kodak camera moments, in the unmade bed in the corner of my desire

I wanted you before you could put words to desire

I was born alone in my 1 or 2 percent of the world

a girl who loves other girls

yet it wasn’t plural, it feels when I touch it

circular

as everything I did and everything I lost

returns to this moment and winds around my wrist

showing my scars, developing an image in chemicals

of two girls even if they had to wait

after the storm and before the calm

did I mention I would stay here forever if I had to?

It is my wish we could rewind time and begin again when both of us

were new and shining

but such things are not always possible, and fantasy is rarely permitted her turn

in you I find proof of life

miracles, however tired exist in your eyes

they have fine lines like you are ever squinting against the sun

I find myself tracing the shape of you

over and over

until my fingers are numb with joy

maybe born too late, but oh we were born

in this aching world of few and far between

I listened closely and you gave up your song

Ode to E — hijacked amygdala

I used to turn down drugs with frequent kiss of teeth from 13 years old when they came in the sticky palms of acne faced kids at parties all twinkly and bold, I said I didn’t need them, my teddy and my hope were salvage enough from any monsters, what need had I of medicated […]

via Ode to E — hijacked amygdala

Possess no place

ghost_on_stairs_lg-57c74ae55f9b5829f47ec990

a day may show itself

long or near from now

where pain and fear possess no place

their greedy place at your table outstayed

uninvited guests

came into your life, wrecking balls

fathomless of the despair they could put

as wicked times will have us ensnared

forgetful of former peace

hostages to the ease with which

sickness makes strangers of us.

Who inhabits this body of pain?

when did normalcy include such horror?

what lurks behind the shell of our discontent?

masking the urge to cry out with futile restraint

who do we hide our agonies from? Or is it that obscene need to appear

while and strong? While behind public doors we collapse in mock

no succor for the actor of their own wellness

Give me hope we clamoring souls sing in our flung prayer and rage

let me believe

believe again

find the keys, the healer, the drug, the end of

this

or I think I wish

I never existed

a thought I’ve had many times before

though none are without regret

some of us excel at impoverished thought.

I do not remember the me before

mornings of hurt, nights of pain

was she a creature capable of delight and desire?

did I feel alive?

Sometimes it’s hard to know

the fall is long down rabbit hole

make me

myself again

whomever she was

a better dream

than this

slow living just above not existing

hardly realized

quiet in accepted

thirst

for another grasp at hope

for any

recourse

where fear and pain

possess no place

We cried a long time ago. We don’t cry anymore.

AR-180119488

A warbling, holding, green glass pain

Like joined hands make paper cut

Invisible like girl in crowd, falls

Deep as ink without light

Stinging with clamoring cymbal

Tears almost bare themselves as first night lovers, tremorous

Retreat beyond the naked streets

It is not brutal gnashing strength

But soft lipped resignation

And a little elipsing hope

For bare faced ceasement

Lain like prayers and rushes and thrown flowers wetting paving stones

No ceremony. Only, black cars devoid of dust

A trail without salt. They bent lower to seek. Not yet.

It’s hard to say it. The wind chokes words. Before.

We walk on. Omphalos in fatigued lament

Toward reprieve, illuminate in muted tempest.

I AM A TOTEM OF MY OWN BRANDING

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I’ve been told I’m a chronic pain in the ass

after all, it’s easy to destroy a child in an adult’s body

with past-tense words

and now in the time I’m meant to be at my strongest

chronic has visited me and stayed a long while

on a good day I think; This will not be forever

but temporary has always been a long way off

the doctors love to tell us; It’s incurable, get used to

living like this, hostage to something unknown and strange

as if that’s a normal thing to do

but if enough of us live with chronic illness, it will become normal

and that is not a good thing.

Before this …

I took chances, because you think

I’m invulnerable, sometimes I can fly

health, you take for granted

though I truly convinced myself, I had checked the boxes

right weight, exercise, organic, vegetables, no pre-made meals

(well, this is what I told my doctor, sometimes a couch counts as exercise, right?)

if I ate a slice of pizza, it was a treat with friends

though I like root beer, I never drank it

maybe making up for cigarettes, smoked in my twenties

but I thought if I keep jogging, if I keep living healthily

I won’t be felled, because you ARE WHAT YOU EAT.

A few months before I got sick, I recall

feeling strong, climbing through snow drifts and laughing

boundless energy, working long hours, feeling intensely alive

people saying; you look so healthy, your skin is radiant!

Those are not things people say now, unless

I apply a lot of make-up, to camouflage my fraying edges

instead it is me, who declines invitations

I am sorry I cannot go with you to eat, even though eating out

is the number one leisure activity where I live

because my stomach is ruined and I cannot digest much

I live plain and simple (and boring), like a nun and I am numbed

to the pleasures of wine and sauces and garlic, spices and oils

not recognizing my bloated mid section in the mirror

from the girl who once was told

she had an hour-glass figure, with a wasp waist

could run for buses and catch them in three-inch heals.

I know everyone has their burden

but when you get sick and it doesn’t go away

life becomes a series of scolds and let downs

you find out who really loves you and who harbored an anger

used the opportunity of your downfall, to insert a knife

it is the cowards way of course, but freedom of sorts

for none of us need, that kind of negativity in our lives

there is a blessing in disguise, when you find your tribe

the people who care and know the real you

not wanting to tear you apart, because it’s easy to kick you when you’re down.

But blessings do not salvage, the hours you spend sickening

remembering how you were rarely felled in past years

strong of body, sound of mind, juicing and walking ten miles

everything is turned upside down, inside out when you find

a burnt fuse, at the end of your outstretched arm.

There is no cure, there is no future

when you live, in a jar for the jarring

for a long while, I blamed myself

maybe in part, because someone I trusted told me;

“It is your fault, you must have somehow caused it”

easy to throw stones, at glass houses

I was a glass house, with many windows

break one and I cannot repair it

the wind will come in and make of my space

chaos

the sun will come in and make of my peace

madness.

Those things that brought me joy, were gone

instead, the regiment of illness strode in and stood firm

you cannot feel passion, when you are sick

ageing in hours, rather than decades, trying to stay above water

it is hard to feel hope

you rely upon the kindness of others

which is hard to do, if you are not used to it

and when they lift you to the light, you promise

if I can recover, I will try ever so hard to never be ungrateful

but with every mercy, is a dark day in hell

those days take it all out of you, like a scourge

the sickening can age you, more than a nightmare

one minute you recognize yourself, the next you are unknown

vulnerability, of not being able to take care of yourself

the expense and fear

your world crumbling around you.

These are things you get used to and when you have fallen

to the bottom and can no longer get up

that is where the truth lies

that is where you can find

your true self and the end of fear.

They tried to tell you that you were insane

making it up, all in your head, something’s wrong with that

crazy lady who pounds her fluttering chest in vain

tries to catch the eyes of doctors, with beseeching side-glance

SEE ME! HEAL ME! SAVE ME! WHAT IS WRONG?

WHAT HAS HAPPENED TO ME? WHY DID I WAKE UP ONE DAY

SICK AND IT NEVER WENT AWAY?

And yes ! Something was wrong with me and still is

not my doing, not my causing, not my dreaming

despite you saying; You bothered us, when you called and were upset

no mercy, no mercy, no mercy, that is not love.

Helped me let go. Don’t hold on to negativity.

Oh doctor, get it outt!

and if you can’t, then give me the key, the saw, the pick

so I may survive myself and somehow continue on.

Am I to label myself chronically ill, or in recovery?

Surviving or dying or all of the above?

how do you define what doesn’t go and doesn’t kill?

Spending all your money on alternative treatments that

don’t even know what they pretend to cure

how do you describe one good day, followed by one in hell?

others won’t understand, because they are well

what I would give to return, to that safe water place

but even if I did, I would not be the same

you live years with a loaded gun to your head, everything changes.

I am not me anymore

I cannot see out of my left eye

I cannot lift heavy things, with my weak foreign arms

I can walk ten miles and not break a sweat despite this and be told

by friends and foes; OH YOU DON’T LOOK SICK

I am an apparent scar of contradictions and pain

I hurt every day, my stomach feels like

something is eating me from the inside out

it convulses and retorts and shouts

“you will never win, you will bathe in pain the rest of your life”

but I will still try

because I don’t know how to give in to enemies, I cannot see

and even as I cannot eat normal food

one day I am good, the next I am dying green

even as nausea, has become my constant companion

and bottles of pills and vitamins rattle in my pit

even as I fight to be gracious in the eye of the storm

and those I thought would stand by me, try to drown me instead

I know there is still a moment

I am well enough to remember who I am

never to find that peace of mind again

but maybe recover to another state of being.

I wake in the night covered in sweat and the disinterested doctor says

“get used to not sleeping, get used to all of this, it is what you must suffer and many others do”

as if it is normal to be like this, as if it is something we should not mention

I will never think it is normal to be hijacked!

I jog into the forest, because it reminds me I am still living, my feet still work

I fight with wilted hands, when they tell me there is no hope

that I should just consign my former glories to a picture album and put

my feet up for a fifty year occupation of sofas and couches and day time oblivion

because THE POWER OF ME can overcome the power of negativity and this I believe

as I see in the mirror a girl who doubts but stares back unblinking.

I have lost my will at times

I do not write as much,  I have less energy

the last time I had a romantic dinner was in a dream and I

sleep with a heating pad on my stomach every night instead of a lover

but I still pay my own way and my own bills

I have a pride in pushing back against status quo

DEFYING the prescription of HOPELESSNESS.

they tell me go on disability. Just give up

I am not going anywhere, but to the finish line

I learned

by losing everything and having nothing but

the sheer will and dim light of my existence

I can do this without those I thought I had in my corner

because I am stronger than I realized

and this grieves me, as well as reassures me

but I come from a long line of stoic, strong women

and it seems sicker than I am, that we should hate each other

because life, surely we have found out, is fragile

and love is all that makes sense

but even without love I will continue and not

let the flame go out.

Sometimes I ask myself why?

why not just give in? Take the knife, swallow the pill

to oblivion or some non-sign-posted destination

I don’t have children to protect

it would be easy to slip out of this world and its sword edge of pain

but somehow I feel I should protect myself

maybe because others did not

maybe because you defend yourself in the end

when everything else is fallen and you are still

somehow, standing.

I am weak and tired and prematurely aged into

a hunched over version of myself

hair greying with shock, skin is sloughing off and my

body is tied to the rhythm of a sickness that purges and gluts

I was told this kind of disorder was permanent

but nothing I have found, is ever guaranteed

so I have chosen to ignore this and believe

we can all fight and overcome

anything

even a death sentence

even betrayal

even silence

and when we know this

when we are strong for our weakness

realize our tears are just water and salt

burning the frustration of our visiting menace

then, we know nothing can hurt us, more than it already has

and we are free to dream

of a future without so much pain

where death stands to the side and lets us regain

some of our former dignity

for there is nothing dignified in sickness

and you don’t know me when you said I was glamorous

that is the last thing I am

I am beautiful for my courage

beautiful for my fear

beautiful for my survival

beautiful for my defeat

beautiful for my mercy of those who have no mercy for me.

And life is a wax and a wane

life is a torture and a friend

I am the totem of my own branding

I may live in a time where nobody else of my kith and kin remain

and once that would have filled me with pain

now I know you cannot rely upon

labels of safety

it is only by looking into the hearts of those

who stayed by your side when the storm hit

even if it is one, even if it is naught

you remain behind

the tempest cannot roar forever

eventually even agony ceases.

I wish now, to be everything you were not

to love others unconditionally

care for those who are in need

be the change I want to see

I want to find myself

at the end of all of this

I want to tell you, sickness

you do not win

you are just a miasma

I am a spirit with a soul

I will endure you

the me, of me, will remain

long after, to remember her worth.

Before this all began and through it, learned

only the fierce remain

only those willing to FEEL

and not those who run from feeling

with the ease of the damned.

The fear of others, becomes the dismissal

Long before now

there was a time I did not write

could not write, would not write

I danced, I moved, I climbed, I painted

with our heads together like arrows, friends and I

toy rabbits, ladybugs, a glow in the dark star

would entertain ourselves with crayons and pastels

plasticine and Lego, wooden blocks, old socks, foil and glue

I built fortresses in the woods near my grandmothers

house where she looked out occasionally, a glass in one hand

erected camps in trees fallen in the storms

or beneath protesting furniture that wasn’t meant to be moved

turning into a gypsy tent, bedding, blankets, string

anything the imagination could seize and shake out into magic

I did not write

even then I felt

words were just words

so glib and easy

words like; ‘have a good birthday’ from

people staying absent

words like; ‘you know I care’ from

people not caring

I couldn’t spell, so I didn’t reply

I didn’t enunciate, so I didn’t call them back

the phone would ring in the distance, mournfully

if it got too loud, I turned the music up

all this by the age of ten

I was free of words, they were not my language

a song and the movement it encouraged was

an elongation of expression and urges

and later, a dance club, even at 14, seemed safer

than three sheets of echoing, empty paper

rubbing shoulders with strangers who sought like me

to raise their arms through the strobe lights in search

of something missing

not seeking drugs or sex but the fury and beauty

of dancing away their sadness

I didn’t know it then

acting upon instinct

the instinct to run, when you cry

dance when you want to jump

push away those who clamor for attention

stop feeling the pain you do, every single day

whilst some of my friends who were depressed

listened to The Cure and other sorrowful LPs

I scorned anything sad and

stepped into the light of disco, rock, electronica

in time I found there were other things you could do

to turn off the hurt

and I did them ALL, every damn one

There is an honesty to admitting to yourself

I don’t know what’s been happening, but I’m in pain

everything I should rely upon has gone or never been

I am alone and I am scared, I haven’t yet grown up

nobody will help me so I have to help myself but

I don’t know how

I learned it felt good to lie in bed with someone

even if they were nothing more than warmth and key strokes

I learned it felt good to give rather than receive

because you protected those parts of you, rarely revealed or wanted

I learned drugs were not a menace but a street form

of antidepressant for kids who couldn’t tell their hurt

didn’t know where to begin or how to heal the

emptiness and anger growing in their bones

I learned if you are crushed badly enough, time and again

you grow a skin of fur and you become a feral creature

not human anymore

but living for the night, pulse of music playing

brief flicker of excitement, when you forget being yourself and all that comes with that

the disappointment, the heartache, the rejection

you’re just a shivering wretch, gaining admittance into forbidden light

you’re just a body that can move and shake and vibrate

beneath the waves as they engulf the roar and scream

every morning I swam 25 laps

every night I ran in heels for the bus

every stroke of midnight I transformed into anyone but myself

it felt good, it felt more real than trying to

inherit the mantle of despair and unwanted closing walls

I climbed out and didn’t go back

I never wrote down a word

not even when I received

another letter stating things that were never real

words were lies, words were lies

I’ve always been drawn to truth

Somewhere in those years, something changed

maybe you get lazy, maybe you forget your way

or the pain becomes something you think is who you are

or the hurt is a coat you wear without knowing you do

I stopped swimming in the mornings

I quit dancing in the evenings

in my blood lay a virus of dormancy and despair

it grew and grew like a wild flower teasing out of concrete

until I’d forgotten my way through the elaborate maze

I was just another lab rat, waiting to live their life, turn to ash and regret

Now the irony is, I’m writing all the time

I write how I feel, I write how you feel, I write out

the hollow cries kicking from inside out

but words are fickle, they are not your friend

words convey what you mean, and equally they contradict

words don’t get things done

words are on pages, often unread

If it would work I’d burn my thoughts

watch them light up the night on the 5th of November

put on my running shoes

go to you

take you by the shoulders and shake

all my words out of your head

run with you down the highway

find the place we can be in my mind

get on the dance floor, pull you with me

try another communication

another way of getting through

anything but the languages that leave us empty

mistrustful, doubtful, not waiting for more

we’ve both been there before

at the end of a letter

shaking our heads

for all that was done, versus said

is often quite the opposite

you tell me, if I knew you, I would not like

the person I came to know

but you are wrong, so very wrong

it is in the imperfect there is wonder

I’m used to people backing off, going cold, erecting walls

it’s what I experienced every day

the fear of others, becomes the dismissal

there is another way

let me show you

but not like this

let me show you

in between words

with every gesture of my soul

give me this

Compulsion

I just watched the amazing film Bohemian Rhapsody. Let me ask you something … if I begin this post with; “And I wanted to talk about being gay” How many of you would stop reading? Ask yourselves, what does that really say about you?

I want to talk about being gay. Watching the story of Freddie Mercury it struck me (again) how the tiny minority of people who are gay (not bisexual) still struggle. You may ask why or point to more worthy causes to talk about …

Imagine being 1/2 percent of the population. Maybe you already are. That’s how many women are lesbians and men are roughly 2/3 percent. Bisexuality is far more prevalent, however 85% of women who are bisexual end up married to man, which begs the question, is there such as thing as ‘true’ bisexuality’ or is there just a desire to play both sides until you settle down, invariably with someone of the same gender?

Either way, ‘true’ queer women are rare. For men, those who are bisexual tend to end up being with men. It begs the question – do these stats indicate being a lesbian is not a life style many people choose or want to adopt? Or simply, that most women have a tendency toward heterosexuality as their preference?

My unscientific viewpoint for what it’s worth is; Men who have sex with men tend to be with men maybe because to ‘go there’ is almost indelible? Whereas sexuality for women is more fluid, and whilst they may like having sex with another woman and find her attractive, it’s not enough of a hook. Is sexuality and gayness a preference? I don’t think so, which means the ‘true’ number of gays is smaller than we even credit.

I personally don’t understand why more men are gay than women, as I am biased and see a lot more to be attracted to in a woman than a man (although they are harder to go out with because they are more demanding and selfish and less romantic). Irrespective, a man who is attracted to men, doesn’t go back and forth as much, a woman who is attracted to women may well end up with a man as other considerations come into play. To me, this isn’t being gay – it’s just having fun. Maybe I’m saying being gay is massively different to being bisexual.

I would imagine the negatives about bisexuality are; judgment from both sides, and that’s about it. If you are totally gay then the negatives include persecution, ostracizing, not fitting in, having no role models, no representation and most of all – feeling weird because 99/98 percent of the world doesn’t ‘get’ you and where you are coming from.

How many times have I been told by a woman that they find other women attractive but they can’t really understand wanting to be with a woman for any length of time – interestingly not because of sex, most women like oral sex, but because of the high maintenance being with a woman entails and how nice it is when a man romances you. It is true, it’s rarer and finding it with a woman, well you often end up having to do all the work and while men are good at that, women aren’t as much.

Hence why of those relationships that last, the classical butch/femme roles tend to work out best because the lesbians who are butch want to imitate a man and romance the woman and the femme is happy. I realize that’s a negative stereotyping of female-female relationships but there is also some truth.

Thinking about the AIDS era (which has never entirely left us and now that there are new drugs that people can take to reduce their likelihood of HIV exposure, where’s the incentive to continue to practice safe sex?) and how many gay men (and others) died and the terrible things that were said about them and how generations exist now that know nothing of this and how it will be forgotten …

I remember I was very young but I heard people say things like; “AIDS is killing the queers its divine justice” That told me early on that gay people were not equal and would never be treated equally behind closed doors. At one point in my life I was in the closet because it was easier and unlike a person of color, a gay person can often be in the closet to avoid prejudice. I’d not been in the closet before and suddenly I was privy to the things straight people said about gays when they didn’t think one of them was listening. I realized that this had all been said of me when I wasn’t in the closet but behind my back.

Then the other aspect to consider is the gay community and how judging and excluding it can be and how for many queers, fitting in with their own gay ‘family’ doesn’t always come easy or at all. I personally tend not to get on with gays, I have found them to often possess the worst traits of heterosexuals which deeply disappoints me. Lesbians judge you for not being queer enough, or act like swaggering men. Gay men can be such divas that they own the sarcasm and bitchiness in the room.

Does it mean you’re a ‘bad’ queer if you don’t feel in with ‘your people’? And yet … why assume just because you share one thing in common, you’ll get along? I’m sure I share something in common with Trump as well … point made.

The female gay world is divided into sections, either you’re a successful, educated career person in which case you go to exclusive things and judge those who are not on your level. You only date those who are like you, and you have high expectations as well as demanding those women you date are athletic, social and above all, status and financially successful.

The other group are the more neighborhood based gays, and the clubs teem with liars, frauds and fakes alongside players, druggies and alcoholics. If you imagine being heterosexual and reducing the number of options you have from roughly 48% to 1/2% you probably wouldn’t find someone you liked either. And let’s for not forget, if you’re straight and you see someone in the street or anywhere, you can essentially flirt with them without fear. But how can you tell when someone may be gay? Contrary to popular opinion, the gay-dar doesn’t work THAT well. So you are further restricted to mind-reading, falling in love with heterosexuals or going to gay clubs where the worst reside.

Boo Hoo right? A hard life. But not nearly as hard as many others. Combine that with a co-morbidity of higher rates of depression/anxiety (no wonder) and all the accompanying aspects that may accompany homosexuality and a life time of being shamed, ridiculed, the odd one out, and it’s not simply one issue, it’s everything.

There have been times I wished fervently not to be gay. I got fed-up of having a crush on my straight friend who wouldn’t like me if I were the last person standing, I saw how well men can treat women, I envied the heterosexual world. That’s why being gay is no choice, as most who had one, wouldn’t choose it.

That said it’s not all negative. Some of the best parts of my life have been as a result of being gay. Watching the film on Freddie Mercury really affected me profoundly because it reminded me that only a few years ago in my city there were stickers condemning gays having the right to marry, that my own life has been severely disrupted/destroyed for several reasons related to being gay, and how many gays have suffered over the years.

I may not be a huge fan of this modern world – 2018 onward – and I may hark beck to ‘better’ eras as I perceive them, BUT I know things are improving for gays and I hope one day, being gay is not something that will pull you down and give you pain. It will be what it is meant to be, a natural minority who see things differently but are in every other way part of us all.

Spare a thought for gays even as you think they have all their rights now and should stop complaining. It is not as simple as possessing rights. Gays are still more likely to commit suicide, have addictions, mental illness, be ostracized from family and be beaten up and murdered. Gays can often be very isolated, their pain not taken seriously, and feel alone even among ‘their kind’ and it really does make a difference to us when someone, irrespective of gender, befriends us and likes us for who we are, without being uncomfortable around us.

A friend for a gay person has twice the value because we never take it for granted and we always feel so lucky. After all, most of us living, remember a time when admitting you were gay would guarantee nobody would be your friend. Therefore, thank you for all who show kindness to us, and remember, compassion is the only thing that compensates for the erstwhile damage human beings have historically wrought, both on minorities of all kinds and our planet.

I dream of a world where it will be okay to walk down the street and not worry about holding hands with the person you love, when it will be comfortable to kiss someone you’re with, in public, without fearing being beaten up. Just as women worldwide, dream of walking down a street without being raped. I believe this day can come, if all of us have the patience to see the value of talking about this and not saying ‘I’m so fed up with the gay agenda or the feminist agenda’ and switching off. Until we have true equality, the only thing we can do is bring awareness and hope in turn, it produces change.

Oh, and to those bisexuals? Yeah. Sorry. But on the other hand, I’ve got a point. Can’t you sometimes choose the girl? 😉

Go see Bohemian Rhapsody. It’s incredible.