Stand in radiance

I think of you as I might

the collected soil outline of a beloved plant, died in Wintered frost

slow the creep toward perish, I hold back, I do not want to enter that room

with its antiseptic smell, lolling tongues of linoleum stretching like vast desert

here nothing thrives

not you, in your beige iron bed with metallic purr of machines overhead

nor the sucking out of sight sound of life being apportioned and gentle knock and brush of clutter off stage

I have learned to manage my desires, like labeled things put away and forgotten

they seem inconsequential in the gravity of this moment, elongated into a maw, disabusing itself in perpetuate howl

the green eyed girl who sat astride you devouring your skin with the hunger of the famished, is just a filament of memory, drowsy with being taken out and examined many times

what is real feels false, we fall apart with rules, we are well behaved in chaos

as rain falls, drowning response, we are free briefly, to call for Gods who are sleeping against their fatigue of us

I look down at my fingers entwined in memory, carving the halls of you with journeys taken to your very core

wish I could write like a girl who didn’t need to rinse her eyes of salt and her mouth of violence

there are no mirages in this sterile land, only the abundant hygiene of fear, roasting itself on impotence

here even you, are forgotten to yourself. I wonder if you recall how we were or if

this eclipsed reality, so suffocating and tightly arranged, is your only memory

occasionally I want to do something vulgar and wrong, to break the dreadful count-down

call an old lover, meet them in the broom closet for some rearranging of clothes, we don’t know how to handle things, so we explode quietly inside ourselves

just to feel I am not plummeting alongside you

faithless for sure, my brand of lusting for life and wellness, anything but encroaching perishment, we fear dying even as we seek it

apparently I am not alone in this

strangers will swap bodily fluids in desperate snatching, on top of folded doctors overalls. That strange, nameless brand of green we all loathe

I was a false girl before we met, learning to reign in her impulses against a backdrop of damage
thriving under the rental of youth with no care for those far-off dates waiting in distant wings

life was already its own brand of unbearable, it felt yet, too searing to imagine decrepitude or bad luck

instead, thrive on the daydream, liquor up the inside of your nightmares and send them galloping and sweaty into the abyss

rest in the drowsy arms of indifference, for everyone wants something and nothing is as it seems

stop caring

until blinded or crippled, you crawl to your date with the inevitable

hearing your ancestors crow their dissatisfaction at your cliched rejection of fate

compassion doesn’t cost, but as I stare at the vacancy in your eyes I know

i’d say yes to the proffered ease of escape

yes to anonymous lovers and things to someday regret

but not now whilst we stand under the radiance

when life still reigns and I know how to squeeze from it, that ounce of pleasure

not hedonist but survivor. Some survive in the calm shallows

I want to wade waist deep in warm water, feel your touch bringing me back to life

not forget what it was to circle the varied heavens and their demands

nor the feeling of my heart in my throat, birthing color and chaos in equal order

I imagine you as you were, impossibly alive, bright in ways that hurt my eyes

our dance around the mandala of us, ever decreasing, unawares of our own diminishment

your last words lingering in pre-storm humid air, like fruit left a little long in sun

sticky and soft we meld together and break apart with the astringent sting of broken clay

turning again to earth, as if it had never, not once, not even in dream

held water.

Outcome

lungs of hte worldShe came into town

breathless with excitement

they were dying around her

but she wanted to go for coffee

to get her nails done, her hair, wax the city

burn the little temples of obedience

she didn’t think a swath of fabric

let alone standing apart like courting

birds

could slow the spread of something

fictional

she was young, though not as young as others thought

Botox took care of that

and a little filler

her heart was set on

kicking up her heals and the virus

was just a news cycle

nothing to take seriously.

Waking in hospital she

momentarily forgot to

smooth her hair down until

she felt her fingers brittle and cracked

her beautiful face marred with fever

“at least I survived” she smiled

with yellowed teeth, hot with flux

half joking at the scared nurse who

was working her second double shift.

They decided not to tell her yet

until she was out of danger, if indeed she ever

was

that her father, mother and little sister

were not going

to wake up again

and join in her

merriment.

The true price of things

underwater photography of woman
Photo by Engin Akyurt on Pexels.com

The pool reflects deep with shallows, an opaque pearl

she has always been beautiful, even now, even then,

she dives without concern, because, what else can happen?

When people die, that’s how you feel, invulnerable in the face

of dreads previously unimagined

and also, terribly, terribly aware of pain.

Some hide the rest of their lives, others drive fast cars at night

not wearing their glasses

she is one of those who stands somewhere in-between

the grief of injury lies heavy on her dark shoulders

still, she plunges into water, imagining other realities

one where she never knew horror and horror never knew her

where babies were born perfect and whole

husbands did not get crushed in half and

soured settlements buys them luxury

they’d trade it all in, to have him whole

less angry, more able to be, swimming underwater with her.

not lost, broken even after healing, crushed despite being repaired

holding the welt of injury in his throat like a choking bird.

She has moved on from who she was

ten years ago in Africa

under the sun, hiding from herself, hiding from kaleidoscopic future

it has come, blooming wild and spreading its green fingers

into her oval mouth

she has no time for passion anymore

she has no patience for imagination

she can only swim

cutting through the reluctant weight of water

like a blunt knife will eventually carve

the true price of things.

 

for Em.

 

WHAT WE VALUE

Our society worships entirely the wrong animal, venerating them and reducing others to ash.

The news recently devoted a good portion of the sports coverage to how much money certain sports figures were going to be paid for kicking a ball across a field. And this in a time when our jobs are dissolving, our society is being wrecked, our economy may be irrecoverable and certain industries will cease to exist en mass. Put simply, there will not be jobs to come back to folks but apparently we still need to pay these guys billions for their service to humanity?

I cannot understand how ANY society and how any of us can tolerate/accept a sports figure being paid anywhere NEAR that sum for what they do when those who really do jobs worth paying, are dying in droves because they are not receiving enough personal protective gear to protect themselves.

When did we start paying someone to kick a ball millions and a nurse who saves our life, hundreds?

What’s wrong with us?

If I were an alien observing our planet, I would seriously wonder if we all were crazy in our assessment of VALUE. What we value. What we do not. If nothing else, Covid-19 has given us a chance to see this once and for all and try to do something about it.

We have marched for Black Lives Matter during this time because it was over-due and our raw emotions on the subject burst out of their polite shell and filled the streets with ire and a desire for equality but how many of us really want equality? Not all of us that is for sure, look around and you can see it in every facet of life, a desire to be above someone else somehow.

We still routinely under-react and permit by our inaction, serious hideous crimes like rape to go unpunished in this country and others.

It’s the year 2020 and we still think inequality for women is acceptable in some forms and fashion. Let us not forget what Maya Angelou said about wanting to vote for a white woman over a black man. She said – women were the original oppressed group, thus we should work backward until all oppressed parties are equal. I agree with her.

We still think hate crimes against Jews and telling Jews that Israel should not be their country is somehow acceptable, despite those Jews having descended from that country. Would we say the same to Black People about Africa. Of course not! So why do we say it to Israel? Because of the Palestine Question which Europe in particular has decided to side with, uncaring of the history of persecution toward Jews and their right to have some land of their own. Of course we shouldn’t persecute Palestinians either and of course, Israel has made mistakes but it’s now about what optics politicians choose and what side of the story is half-revealed via inaccurate news reporting. It’s essentially about which side looks right to support? Because Trump supports Israel, most left-wing supporters are against it. Yet it is not that simple and never should be. Lest we forget our history.

We still think homosexuality is unnatural and abhorant and that being queer isn’t natural. We don’t say it out loud because it’s not popular to say it, but we think it and we act it and gays know. They know.

We talk about slavery and how horrific it was, but half the time we just pay lip service to the deeper issues, because we don’t know our history so we don’t mention Native Americans and how they were exterminated en mass and continue to be disenfranchised. We’re so proud of ourselves for changing the Red Skins but we think that’s enough. Or how slavery has never really gone away, it’s just changed hands and outfits, but it’s still well and thriving in many forms.

So it’s never enough. Until everyone is equal and inequality and racism are a thing of the past. But will they ever be? With people who seem to thrive on discrimination and putting themselves ahead of others and putting others down? If people think wearing a mask is too much, is it any wonder they really don’t give a shit if you are sick or you are vulnerable? Don’t they just want you to die and bugger off?

Likewise with illness, with chronically sick people, it’s never enough to just have laws that allow them to not be discriminated against because discrimination comes in a myriad of differing forms. Subtle. Unreachable. Devastating. People of color have to put up with this EVERY SINGLE DAY as do women, as do gays, as do sick people. Just one roll of the eye says everything. Says; ‘we think you are pathetic‘ invalidates an entire moment.

Chronic illness is a little like amputation. Obviously anyone who has suffered an amputation will refute this and rightly so. But metaphorically it remains akin to the loss of a limb. You are left flailing, unsure of how to right yourself, and continue as once you were. A part of you is lost.

They talk of periods of adjustment. The stages of grieving: Anger for what you have lost. Shame imposed by a society who now judges you weak. Acceptance of a ‘new normal’ that includes intolerable things such as chronic pain etc. For many, those stages of grieving never really end, they cycle and you go through different dilutions depending upon how you progress.

But progress is perhaps not the right word. In our linear society where so much is expected. For someone to drop off and no longer thrive, in nature they would be left behind to perish. In our society they are carried along but reminded frequently, of their burden, of their ineptitude.

For many who suffer mental illness, physical illness, both, there is a lot of shame attached to their existing after this fact. Even as people do not come out and say it directly (and believe me, many do!) there is a thin veil that is easily penetrable. People know when they are treated differently, seen differently, worse, judged without jury.

Being ‘sick’ in any manifestation is seen as a ‘weakness’ by our society. This invariably goes back to the ‘dog-eat-dog’ notion of surviving. The weakest link perishes or is a burden to the whole. But these days, with our so-called faith and mercy in place, one might imagine a little more compassion? And if you did, you would be sorely disappointed.

Since getting sick in 2017 I have felt intermittently well enough to continue working and ‘accomplishing’. But as with any pendulum, when it swings deeply toward illness, I am right back at the horror point of when it all began, down on my knees, imploring the universe for healing. And for the most part I have done this alone, because as all those who have been sick for a time will attest, most people do not stay by your side. Even those you expect to.

You can’t plan any longer. A trip is a fear because what if you get sick? Then someone suggests; maybe it’s in your head, maybe you are making yourself sick? And no matter how many times you prove otherwise, they think maybe it’s a choice, just like being gay is a choice, right?

Wrong. You can’t rely upon yourself like you used to because you never know how it’s going to be, how you are going to be. And usually you could be relied upon 100 percent and now that’s gone and somehow you still have to plan a future, but how do you plan a future if you can’t rely upon yourself?

I try to take something from every experience I have, including negative ones. Without learning we don’t grow we just regurgitate and I would rather grow even if I’m throwing up and in pain as I do it. I have taken from this experience what is obvious, but I have also tried to take from others experiences, and have noticed disturbing patterns among those I know who have also been sick for a while or a very long while.

People leave.

People don’t care.

Poverty goes hand in hand with illness.

Anxiety and fear are natural outcomes for a plethora of reasons.

Loneliness can kill.

What I have come to see is this. Sick people are TRUE WARRIORS.

They fight the unimaginable that most of us never have to endure. They have to get pacemakers in their 40s, they have to struggle through taking 2 hours to get dressed and STILL MANAGE TO SHOW UP and this strength – this strength is what I have learned the most from my experiences and listening to others. Strength comes in many forms. We dismiss most of those forms but they are real.

I watch people who have seizures and brain tumors, fight and fight and fight and I realize, we’ve got it backwards. We should be applauding these people not marginalizing them. But we do everything backwards, because as a whole we are poisoned by false ideas of what is valuable and what is not. We toss aside those we deem un-valuable when they are perhaps some of the most valuable people in the world.

So if you are disabled in any way, be it in your head, or your body, remember that. You are some of the most valuable people in the world. Let nobody ever let you forget that. You are some of the most valuable people in the world.

This is written for my sister Angie. You inspire me every single day. You are that light in the dark that refuses to give up and because of you, I refuse to give up too.

The Right To Die

https://www.yahoo.com/news/column-californias-aid-dying-law-100053133.html

The Right To Die debate is one I have strong opinions on. Ever since Brittany Maynard decided to end her life to avoid inevitable agony and suffering and watching her discuss this in many interviews, I concluded that the Right To Die law should exist for everyone, everywhere.

There are pitfalls no doubt. I can imagine nightmare scenarios where people are ‘terminated’ by bored relatives who do not wish to take care of them. So obviously safe-guards must be paramount. That said, I am open to the RTD law be expanded to include dementia patients and those with serious Chronic Illness, including long-term-depression.

That’s murder! You may say. And part of the invariable slippery-slope! But I would disagree. Unless you have been the victim of Chronic Illness and/or long-term-incurable-depression you cannot speak for others who suffer each and every day.

A few years ago I killed a kitten who was suffering. It was in agony, unsavable and its liter mates had died in excruciating agony. It was a Sunday and no pet-store nearby was open to euthanize the kitten. To spare her suffering I put her to sleep myself. It was the hardest thing I have ever done, I didn’t actually think I had it in me (to take a life) being vegetarian among other things. But the compassion for her suffering over-took the fear of harm.

The harm was her suffering any longer and that is how I see RTD laws.

Obviously we have to put into place protections against this being misused. I recognize that many deeply devout folks believe God takes us when we are ready, but I have never subscribed to that. How is suffering in agony EVER God ordained? If a God exists I do NOT believe he/she chooses people to suffer in agony for years on end. Thus for me, that argument is moot.

Without the issue of ‘taking God’s job away’ we are left with the morality of RTD laws. If I see someone suffering as horrific as it is, to consider their dying at my or their own hands, I would want to help them not suffer. If that was their true wish.

In the case of dementia patients, if they sign a waiver now they can ask not to be force-fed and kept alive, but it still means those wishes can be ignored, effectively they can exist for years as a vegetable, and do nothing about avoiding that outcome. This isn’t a pragmatic thing. Obviously our society is going to be destroyed by dementia cases as more and more develop it, but irrespective, this isn’t about convenience of death, it’s about the mercy of death.

Few of us (I know some exceptions) would wish to shit on themselves, not be able to eat, remember, function etc, and lose all dignity and awareness. Most of us would prefer to die. Giving us a way to write this out and have a representative help us achieve this, seems to me, a mercy not a convenience.

The whole subject is heart-achiningly awful and we avoid talking about it for the most part. But we need to think of this. Just recently with Covid 19 ventilation, the question of dying and life has been very pertinent and young people who never wrote living-wills have been in limbo. It is never too early to consider these things because we really don’t know.

When I put my cat of 18 years to sleep it haunted me. Briefly I went back on my belief that RTD was the best choice because I thought; If I can’t handle the images and flashbacks of the catheter being put in my cats arm, and watching him being put to sleep, if I felt that was ‘wrong’ in some way, how could I handle it if it was my dad? Or someone I loved?

Truly I think I am nearly not strong enough to cope with that day. But despite that I would still do it. TO END THE SUFFERING. It would haunt me and yes it would feel worse to me than if they died naturally just as it would have been ‘easier’ if my cat had died naturally instead of being given drugs that killed him. Watching that was horrific and it did feel ‘unnatural’ because it was but sometimes it’s the only choice, and it’s the best choice and even if it leaves us feeling horrific, we should consider it.

I don’t regret putting my cat to sleep. But I regret that it had to happen and I still get flash-backs of the last moments. If I had to do that with a human-being I know it would be the hardest thing I ever had to do. But if I loved that human being and it was THEIR WISH I would hope I had the courage and love within me to do it or be part of it or at very least, support their wish.

Having had chronic illness I know we can be ‘not in our right minds’ and so the issue of ‘how sick is too sick?’ must be considered. Depressed people for example, may be able to be cured, so are they really the right candidates for euthanasia? I don’t know the answer, I only know that if someone I knew had suffered for 20 years and wanted to die, I would find it hard to deny them that mercy. If all else had failed.

This is not what we want to think about but right now, out there, are many people who are in this VERY situation right now and have no recourse to end their suffering. I believe safe laws CAN be made that protect against abuses and I believe at this juncture in our societies evolution we need to consider those things, not to keep our sick numbers in check, but to be merciful to suffering.

The courage of Brittany Maynard has stayed with me ever since I heard about her and followed her story. Some may say that is morbid. I say it is honest. I still think of her, she affected me deeply and opened up this debate. I hope others can get over their prejudices of what they believe others should do and give people a CHOICE. Just like my best friend who doesn’t believe she would have an abortion but believes others should have the right to choose if they want to have one. Such is this debate about an individuals right to choose their outcome. Who can honestly deny that in the face of suffering?

I often think if I live to be old, I will be alone and I fear that very much. I think if it were possible I would choose to end my life simply based on not having enough money to keep going or enough reason and family left to make it worthwhile. Is that wrong? Maybe. But one day that too may exist as an ‘option’ and a mercy, to help those who would otherwise resort to suicide which can often fail and leave awful aftermaths. This is a very sad subject but it’s one many of us will one day face one way or another. I don’t want to dwell on it, but equally, I don’t want to pretend it could never happen.

I think now more than ever, we have learned, anything can happen and we need to be prepared. Taking responsibility for our lives AND our deaths is a responsible decision, and helps those who may be left in our lives, follow our true wishes. I hope I never have to find out, but I believe we should all be prepared for both the best case scenario and the worst. Contrary to popular opinion, taking ones life is probably the hardest thing a person can do, not the easiest. But as this article above states, there are worst things than dying and I would say suffering in agony meets that criteria and forces us then, to consider this subject honestly and with compassion.

Slothing prejudice in times of pandemic

e34173503d0fbafd7b42b9958616f6da

What do you say to a housebound suspended agoraphobe?

You hear Greek words in their diagnosis, the turquoise

hesitation of grasping fingers reaching punctured doorway

how even ordering take-out is

courage to face what cannot be faced opaque

the urgency of illness spreading her

mollified mystery beyond

we read Apocalypse books on the Berserker train

sleeping faces pressed against convex glass

the smear of skin oil, traces against trace, glutted

fingerprints even as we know not where we go

tampered before birth with the adultery of a universe.

what do we say to an extrovert cut off at the wing?

Sinning in the best possible way beneath vaporized bar table

licking salt off girls thighs and shooting glasses and powder

with a wink, shouting; How can you contain this shit?

Close them up and give them a key to be used in

a month? A year? Never?  After cataracts?

They burn with attention and fade without

fuel, here, there, is silence and they don’t know

how to be left alone.

What do you say to lovers who live apart?

She stays by her window watching smoldering emptiness

barren streets where once you would walk

up to her and tap on her cleaving shoulder

things were light and free, taken for granted

becoming closed and jarred, boxed in tinted cupboards

within houses shut down like sad faces, eating stale

cake, we try to lift our stinging, souring spirits

sometimes it feels better to binge watch

End Of The World movies and

eat all the bad things in the house, one by one

vacillating between giving a damn and not at all.

The feral cat outside hides her kittens, as if she knows

volatile is the word du jour

the birds sing less as if they can sense

death withers wild against the Oleander

feeling, our collective shutting down, end of

card game, square-jawed gambler has lost his

horse and boots.

Wasps build mud nests, otters chew through

phone lines, apple blossom stands in for

confetti at a wedding of creatures,

clinking wooden cups, the world breathes a collective sigh

animals take over, humans are

yesterday’s big thing, now forgotten

streets sprout trees, lemons fat and sour sweet

concrete, tarmac breaking open

hungry for repair, the long toiled earth

builds trellis’s and green space

from grey whispering ghosts of past

whilst we sleep and dream of

dancing in indigo pointed shoes on patent floors

to dead musicians in violet dresses

held wantonly by the nape of our neck

creatures quietly retake the planet

our savagery emptying like

the very mantle of earth has

shrugged it off, let it splinter, break

wide apart, asking for sexual healing

asking for change, burning the waxen lotus

stigma of our mistakes, time is up. Oh Goddess

have we come upon the end?

What do you say to a child?

Who has yet to know light or dark and asks;

why do we stay indoors, what is the purpose?

We can kneel down and remember, when we

cared, if sparrows fell from their nests and

scooping them up, would run to school nurse

who smelt of magnolias and iodine, our chant

“please make them well, don’t let them die!”

Remember the good magic? Bring it back,

when kids are released they will

not wish to run rough over green fields

tear down trees to make way for

metal and slag, in ten years standing there

smoking inhaling cancer beneath the whistled song

theirs will be a new time

if we learn, we can repair

what do you say to yourself?

When it’s over and it’s just begun?

When we make with every step

a choice

a consequence

a claim on this

delicate land.

For Earth Day 2020.

Isolation in the time of Covid 19 – published by Indolent Books

I would be extremely grateful if any WordPress readers would consider clicking ‘like’ at the end of this page on Indolent Books so that I am asked to contribute to them again. Thank you so much.

https://www.indolentbooks.com/what-rough-beast-covid-19-edition-03-23-20-candice-louisa-daquin/

I cannot, you see

person holding black and green bird
Photo by Kristina Paukshtite

What if she’s me? The woman screaming without reprieve?

And what if she’s you? The body beneath the sheets lifted by strangers?

Every time the phone rings, I see in my minds eye, your prone form

fallen, or hurt, somehow

this fear I inhabit is years in coming

your fragility creeps up on us like a wettened shroud

once so strong, you’d take me in your bronze arms and

press me to you where the sound of your powerful

heart beat assured me nothing would erase or remove

your certainty

then the sick hiss and whisker of machines

a tube down your throat, a glazed look, no recognition

slack hand filled with needles, empty eyes void of life

I felt you moving away even as you stayed

gone and still there

a stranger in your face, your expressions glazed

even the taste of your lips changed

as if blistering over from sudden Winter storm.

As time ticks down, we look up

to salvation, prayer and hope when

maybe nobody listens

I stand over you as you sleep

your little bluebird chest rising in dream

I want to

climb on the bed and laugh as once we did

curling around each other in chased game

oh so much joy in one shared heart

when i was your girl and you were my

evening rose

now the dust has settled and we still

scattered pictures, cannot see clearly

all around are shadows and shorn warnings

easy to lose ourselves in fears glory

like gathering a bird who has fallen from glass

stunned and dying pressed in our hands

death on us now, like unsought reflection

glinting, glinting, glinting.

I miss you, the you I knew

better than I know myself

who would turn in her sleep and

touch me without waking

such was our eternal fuse

one into the other, no boundaries

and time is a fickle fellow

taking you and keeping you sickened

welded to pills and paper casts of closed theatres

we stand apart, at times nearly severed

I would sacrifice all to make you well

but i have given everything i know

it is clear we go in different directions

one is the end and you drift like

wind on frigid water

while i continue to swim upstream

i cannot, you see

let go

your bright feathers dull

and still i look up

when birds fly into glass

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