Weigh Scale

Do you hear it?

Relief sounds like

a girl’s slip

a bird’s wing

your eye lashes fluttering

against your blushing cheek

Do you hear it?

Suffering sounds like

cloth pulled by stick across dirt floor

chalk pressed violent into board

fingers opening blouses raggedly

your chest bone protrudes

more than the year before

Do you hear it?

Felis catus

I didn’t care as much as the blood on the snow implied

it was after all just a horror show

you, with your nimble ways of

poking holes in my armor

you, with your kind smile and sharp knife

twisting screw

letting good drain out with bad

till meaning held no color.

I didn’t blame you at first

it’s a fact … some bite

they are taught to by pain

it’s a refuge, a coping mechanism, a

twist and writhe in slim net

of sanity and pathology

that’s all they know

the feral in their fur

if you try to be kind

they will purr

then go ahead and bite you.

I took my bleeding hand

stuck it in my mouth

to prevent saying the things I wanted to

Then I remembered all the little ways

you’d been before, the bare indifference

how I’d tried. Why had I kept on trying?

What possesses us to be kind

to broken things whose disapointment

in themselves turns to savagery?

At least it gave you an opportunity

to use that tenderness against me

I did feel a fool until I realized, yeah …

maybe you were my enemy all along

in that slow icing way you left me feeling emptied

which may say something about me

and how I should learn to try less

I’m sure you’d say; “nobody else can make you feel bad

without giving your permission.”

But I think I will disagree

that’s a passive-aggressive crock … Psych101

it’s your fault … no one else’s

with your holier-than-thou certainty

convinced you’re above us all

I walked away from the snow and the blood

a little cross at myself for not remembering

you can’t hand feed

wild cats.

eventually even the hypochondriac will be right

odd for the child

to fear drowning

when his life now is so long

stretching like taut ribbon in sun

he imagines like plain moths who drown themselves

in light emanating from dark

his own lifeless body buoyant on chlorinated pool

why he thinks of his death is anyone’s guess

perhaps the morbid humor of an intelligent mind

or the broken mosaic of life, beginning its downward cycle

once he asked his father, if the river levies bust

will I know I am dead before I am drowned or

will I wake in heaven first?

His father, a man who only worried about

whether his mistress was going to leave him for a younger man

did not spend time assuaging the boys fears

and he grew into a frightened soul who possessed

no mistress to sooth his night terrors

eventually even the hypochondriac will be right

maybe not this year

as she palpitates her breast for the forth time

crossing nervous fingers over heart, half prayer half search

malignancy her code red, flashing with every terrorizing headline

who invented social media? she mumbles beneath her breath

it was so much easier when we didn’t have access to all the maladies, we’ll one day die from!

Her hands cramp in late Winter cold, immediately she thinks

MS, MD, Fibromyalgia, the beginnings of CJD, maybe Parkinson’s

isn’t that a tremor? Or just too much coffee?

Her jittering nerves remind her, we are unable to compute

the exact day, hour, minute of expiry

all we know is our eventual death is an assured event

it’s the torment of those who are self-aware yet still ignorant

spinning in place, every migraine a brain tumor, every

sudden sharp pain a sign of pancreatic cancer, when a friend

discovers he has Multiple Myeloma (and he never touched asbestos his wife decries!)

she flicks through medical journals online searching for similarity

it’s not her wish to die, but a desire to live, control fate

keeping her on false tender hooks like owl without prey.

His life has been one of quiet dread, each day he inspects

the parts of him most likely to give out, checking his irregular heartbeat

the soft pounding of worry causing it to skip, feeling for swollen glands

skin cancers, lumps and bumps different from the day before

he knows his is an obsessive ritual, even as it soothes imagined

terrors, he sees the absurdity of living in fear bound to a wheel

perpetuated by hours spent researching ways of expiring

did you know you can develop throat cancer from invisible HPV

who knew love was such a sentence? He tells his eye-rolling neighbor.

If he counted the hours he took from his life

contemplating how he will die, when, what it will resemble

it’s quite mad

yet when he is lying in his childhood bed alone

impending dread crawling up his flannel spine

all he can hear are the waves calling

and then, a strange longing in him occurs

urging him to be done with bloody charades

join the onslaught and be carried out to sea

along with every child’s nightmare

and the stifled hiss of adults pressing their knuckles

closely to anguished mouths

for the pale mint waiting room seems

entirely too silent

an earie unsettled fog about it

waiting …

The ingratitude of the well

Inspired by the incredible Cordelia Feldman and her novel In Bloom, for sale now. For World Cancer Day.

It would be easy to say

I haven’t been stricken because I couldn’t cope with it

there would be no one, I have learned, if I were;

not a flower garden, or brothers with curry, or kind lipsticked nurses

socialized healthcare, or odd private room

there would not be a mom bathing or a dad talking

about vegetable garden and the latest episode of Silent Witness

who could really cope?

Even as I say this, knowing the avocado heart of it

I also know I could be stricken tomorrow, or already

as all of us could

(as all of us could)

and privately in a fat second

(like when you see a train wreck and you process a hundred thoughts all at once)

I know I have my will written (handwritten, badly, not rubber stamped)

ready to mail to fate should it come.

When I got sick, though not C.A.N.C.E.R.S.I.C.K., nevertheless I really planned

taking another way out

in my head, thoughts of how bad it had become, lead to imaginings

of suicide and how savage that is to hear

for someone who is dying and does not want to die

the ingratitude of the well

these thoughts fly around me

like bees unwilling yet to sting

my heart is heavy for her

wondering selfishly what I would do

had I the same burden

praying to an empty sky, for that not to happen

superstitious that even the mere wish not to be sick

evokes it

as if fate were laughing and throwing darts

at fleeing people

so helpless, we sink our teeth into projects

wind up time like a ball of yarn

knit it into shapes we can understand

all while keeping horror at bay

the imagined car crash, the loved one never returning home

a cancer growing inside like a whistle

on a hurtling train

it is easy to not find time for empathy

or to feel, it is too close, too raw, too impossible

to process

most of all I think of her grace

how she can appreciate something like a child might

I think of her humor

how she’s had me folded on the floor laughing at the

sheer fucking brilliance of her

I am proud in ways that hurt

she’s everything I am not and she’s also

deeply human

if one person says ‘I’m sorry for your loss‘ I will

scream; “She’s not gone yet! She’s never

going to be gone, that’s just not how

she rolls. Don’t underestimate her

don’t think you own her anymore

than you own your own life.

Those platitudes are all we sometimes have

we mean them more

than scrolling past someone’s bad news

crossing ourselves, as we step over graves

one day slated to be ours

we side step death like the dancers we are

thinking we’re somehow avoiding

something born before we were

and I focus and think of her

how if I could show her my feelings

they would be in movement, in laughter

in light, spinning like an electric waterfall

like her spinning class, where just for a moment

she is that girl beneath the hot trance lights of

the 90’s and I am dancing along side her

as the earth holds us both, alive

despite any ‘support’ she has

which I am more glad of than anything

though what support does against terror?

I cannot lend a description to

my own failings in the courage department

planning my demise when the first meteorite hit

although I read we use meteorite and meteor and astroid

interchangably

and they are actually very different

with only the burning of the sun

in common to collease

their strength as potential planet killers

my math teacher used to say

a morbid mind will only bring sorrow

of course she was right

in her Laura Ashley dungerees

that would now be worth $300 on Ebay

a funny ole world my grandma prosthelytized

nipping at the ever full box of wine in the kitchen

clipping her rose garden when ABBA wasn’t

sufficient to propel demons

I get it

I really do

there’s only avoidance really

we can’t look into the sun too long

we’ll lose our sight before

we’ve made our way back from the garden

or maybe

we’ll stay, our heads upturned

soaking in the rays

To dearest Cordelia, I adore you.

Please consider purchasing Cordelia’s first novel In Bloom, it is magnificent.

https://www.thetimes.co.uk/article/cordelia-feldmans-eight-things-not-to-say-to-someone-with-cancer-p6bvz0xhsts

Submit your work to these two anthologies


BUT YOU DON’T LOOK SICK: THE REAL LIFE ADVENTURES OF FIBRO BITCHES, LUPUS WARRIORS, AND OTHER SUPER HEROES BATTLING INVISIBLE ILLNESS

AND

THROUGH THE LOOKING GLASS: REFLECTING ON MADNESS AND CHAOS WITHIN

Indie Blu(e) Publishing is thrilled to announce that we will be starting off 2021 with sister anthologies, But You Don’t Look Sick: The Real Life Adventures of Fibro Bitches, Lupus Warriors, and other Super Heroes Battling Invisible Illness AND Through The Looking Glass: Reflecting on Madness and Chaos Within.

The focus of But You Don’t Look Sick: The Real Life Adventures of Fibro Bitches, Lupus Warriors, and other Super Heroes Battling Invisible Illness will be on writing and art from those living with a chronic but invisible physical illness or disability, such as fibromyalgia, lupus, multiple sclerosis, cancer, digestive disorders, chronic fatigue syndrome, diabetes, migraine headache, dysautonomia, etc.

The focus of Through The Looking Glass: Reflecting on Madness and Chaos Within will be on writing and art from those who are living, or have struggled with, mental illness such as mood disorders, anxiety disorders, eating disorders, personality disorders, post-traumatic stress disorder, or psychotic Disorders.

Writers and artists are welcome to submit to either, or both, of these anthologies as applicable to your lived experience.

Given the high volume of submissions that we are expecting, we ask you to follow the submission guidelines as closely.  If you are submitting to both anthologies, please send your submission in two separate emails.  We will begin to review all submissions after January 1, 2021.

Please note that we are not able to offer monetary compensation or free print copies to contributors to these anthologies; however, all contributors will receive a PDF copy of the anthology they are published in. Indie Blu(e) Publishing has prioritized the accessibility of our titles and providing an outlet for artists and writers who might not otherwise get published over profits since we first launched in the fall of 2018.  Keeping 400 and 500 page anthologies affordable globally in a pandemic is challenging.


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But You Don’t Look Sick: The Real Life Adventures of Fibro Bitches, Lupus Warriors, and other Super Heroes Battling Invisible Illness

Anthology Submission Guidelines

SUBMISSIONS ACCEPTED: December 1, 2020 through December 31, 2020

SUBMIT TO: IndieBluSubmissions@gmail.com

SUBJECT LINE:  But You Don’t Look Sick Submission

SUBMISSION FORMATTING GUIDELINES 

  • The maximum number of pieces for submission per writer/artist is six (6).
  • Writing may include poetry, prose, short fiction, essay, and/or creative nonfiction
  • Individual pieces of writing should not exceed 1,000 words
  • Writing should be submitted as a single Word attachment to your submission email.  PDFs are the acceptable alternative if you do not have access to Word.  
    • Please use either 12 point Arial or Times Roman font with 1.15 line spacing.
    • Individual pieces of writing in your Word document should be titled, and separated by Page Breaks (not hard returns). A page break is achieved by using Control+Enter.
    • Special formatting is strongly discouraged.  Bold, italic, and multiple font sizes in a single piece are acceptable.
    • Please title all attachments starting with your first name,last name.  
  • The exception to this is if you design your submission as a ‘camera ready’ JPG or PNG image that we can import into our publication as we would a photo. In that case, you may use any formatting you wish, but the image must be crisp, 300 DPI, and able to be reproduced clearly in black and white. If in doubt, please contact us at IndieBluSubmissions@gmail.com before submitting.  Your ‘camera ready’ writing must be accompanied by the text in a Word (or PDF) version.
  • Artwork submitted for the Anthology must be crisp, 300 DPI, and able to be reproduced clearly in black and white
  • You will be notified if your work is accepted. Please do not consider non- acceptance as any diminishment of your experience, but as with any publishing venture, we must try to fit the individual pieces together into a strong whole.
  • All contributors to the anthology will receive a PDF copy of the finished book

BIOGRAPHY: All submissions must include a professional biography and cannot be adjusted once submitted. Bios should be 75 words or less long and may include your social media links.

You will be contacted directly through your email when your work is safely received for submission.  If your work is accepted for the anthology, you will receive an agreement letter that you need to complete fully, sign and return to us within 10 days. 

PREVIOUSLY PUBLISHED WORK We will accept previously published work but must have written permission by the previous publisher attached with your submission if they retain rights to your work.

If you own the copyright, your permission and the date and title of the previous publisher must be included at the bottom of your submission. 


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Through The Looking Glass: Reflecting on Madness and Chaos Within

Anthology Submission Guidelines

SUBMISSIONS ACCEPTED: December 15, 2020 through January 15, 2021

SUBMIT TO: IndieBluSubmissions@gmail.com

SUBJECT LINE:  Through The Looking Glass Submission

SUBMISSION FORMATTING GUIDELINES 

  • The maximum number of pieces for submission per writer/artist is four (4).
  • Writing may include poetry, prose, short fiction, essay, and/or creative nonfiction
  • Individual pieces of writing should not exceed 1,000 words
  • Writing should be submitted as a single Word attachment to your submission email.  PDFs are the acceptable alternative if you do not have access to Word.  
    • Please use either 12 point Arial or Times Roman font with 1.15 line spacing.
    • Individual pieces of writing in your Word document should be titled, and separated by Page Breaks (not hard returns). A page break is achieved by using Control+Enter.
    • Special formatting is strongly discouraged.  Bold, italic, and multiple font sizes in a single piece are acceptable.
    • Please title all attachments starting with your first name, last name.  
  • The exception to this is if you design your submission as a ‘camera ready’ JPG or PNG image that we can import into our publication as we would a photo. In that case, you may use any formatting you wish, but the image must be crisp, 300 DPI, and able to be reproduced clearly in black and white. If in doubt, please contact us at IndieBluSubmissions@gmail.com before submitting.  Your ‘camera ready’ writing must be accompanied by the text in a Word (or PDF) version.
  • Artwork submitted for the Anthology must be crisp, 300 DPI, and able to be reproduced clearly in black and white
  • You will be notified if your work is accepted. Please do not consider non- acceptance as any diminishment of your experience, but as with any publishing venture, we must try to fit the individual pieces together into a strong whole.
  • All contributors to the anthology will receive a PDF copy of the finished book

BIOGRAPHY: All submissions must include a professional biography and cannot be adjusted once submitted. Bios should be 75 words or less long and may include your social media links.

You will be contacted directly through your email when your work is safely received for submission.  If your work is accepted for the anthology, you will receive an agreement letter that you need to complete fully, sign and return to us within 10 days. 

PREVIOUSLY PUBLISHED WORK We will accept previously published work but must have written permission by the previous publisher attached with your submission if they retain rights to your work.

If you own the copyright, your permission and the date and title of the previous publisher must be included at the bottom of your submission. 

Stand in radiance

I think of you as I might

the collected soil outline of a beloved plant, died in Wintered frost

slow the creep toward perish, I hold back, I do not want to enter that room

with its antiseptic smell, lolling tongues of linoleum stretching like vast desert

here nothing thrives

not you, in your beige iron bed with metallic purr of machines overhead

nor the sucking out of sight sound of life being apportioned and gentle knock and brush of clutter off stage

I have learned to manage my desires, like labeled things put away and forgotten

they seem inconsequential in the gravity of this moment, elongated into a maw, disabusing itself in perpetuate howl

the green eyed girl who sat astride you devouring your skin with the hunger of the famished, is just a filament of memory, drowsy with being taken out and examined many times

what is real feels false, we fall apart with rules, we are well behaved in chaos

as rain falls, drowning response, we are free briefly, to call for Gods who are sleeping against their fatigue of us

I look down at my fingers entwined in memory, carving the halls of you with journeys taken to your very core

wish I could write like a girl who didn’t need to rinse her eyes of salt and her mouth of violence

there are no mirages in this sterile land, only the abundant hygiene of fear, roasting itself on impotence

here even you, are forgotten to yourself. I wonder if you recall how we were or if

this eclipsed reality, so suffocating and tightly arranged, is your only memory

occasionally I want to do something vulgar and wrong, to break the dreadful count-down

call an old lover, meet them in the broom closet for some rearranging of clothes, we don’t know how to handle things, so we explode quietly inside ourselves

just to feel I am not plummeting alongside you

faithless for sure, my brand of lusting for life and wellness, anything but encroaching perishment, we fear dying even as we seek it

apparently I am not alone in this

strangers will swap bodily fluids in desperate snatching, on top of folded doctors overalls. That strange, nameless brand of green we all loathe

I was a false girl before we met, learning to reign in her impulses against a backdrop of damage
thriving under the rental of youth with no care for those far-off dates waiting in distant wings

life was already its own brand of unbearable, it felt yet, too searing to imagine decrepitude or bad luck

instead, thrive on the daydream, liquor up the inside of your nightmares and send them galloping and sweaty into the abyss

rest in the drowsy arms of indifference, for everyone wants something and nothing is as it seems

stop caring

until blinded or crippled, you crawl to your date with the inevitable

hearing your ancestors crow their dissatisfaction at your cliched rejection of fate

compassion doesn’t cost, but as I stare at the vacancy in your eyes I know

i’d say yes to the proffered ease of escape

yes to anonymous lovers and things to someday regret

but not now whilst we stand under the radiance

when life still reigns and I know how to squeeze from it, that ounce of pleasure

not hedonist but survivor. Some survive in the calm shallows

I want to wade waist deep in warm water, feel your touch bringing me back to life

not forget what it was to circle the varied heavens and their demands

nor the feeling of my heart in my throat, birthing color and chaos in equal order

I imagine you as you were, impossibly alive, bright in ways that hurt my eyes

our dance around the mandala of us, ever decreasing, unawares of our own diminishment

your last words lingering in pre-storm humid air, like fruit left a little long in sun

sticky and soft we meld together and break apart with the astringent sting of broken clay

turning again to earth, as if it had never, not once, not even in dream

held water.

Outcome

lungs of hte worldShe came into town

breathless with excitement

they were dying around her

but she wanted to go for coffee

to get her nails done, her hair, wax the city

burn the little temples of obedience

she didn’t think a swath of fabric

let alone standing apart like courting

birds

could slow the spread of something

fictional

she was young, though not as young as others thought

Botox took care of that

and a little filler

her heart was set on

kicking up her heals and the virus

was just a news cycle

nothing to take seriously.

Waking in hospital she

momentarily forgot to

smooth her hair down until

she felt her fingers brittle and cracked

her beautiful face marred with fever

“at least I survived” she smiled

with yellowed teeth, hot with flux

half joking at the scared nurse who

was working her second double shift.

They decided not to tell her yet

until she was out of danger, if indeed she ever

was

that her father, mother and little sister

were not going

to wake up again

and join in her

merriment.

The true price of things

underwater photography of woman
Photo by Engin Akyurt on Pexels.com

The pool reflects deep with shallows, an opaque pearl

she has always been beautiful, even now, even then,

she dives without concern, because, what else can happen?

When people die, that’s how you feel, invulnerable in the face

of dreads previously unimagined

and also, terribly, terribly aware of pain.

Some hide the rest of their lives, others drive fast cars at night

not wearing their glasses

she is one of those who stands somewhere in-between

the grief of injury lies heavy on her dark shoulders

still, she plunges into water, imagining other realities

one where she never knew horror and horror never knew her

where babies were born perfect and whole

husbands did not get crushed in half and

soured settlements buys them luxury

they’d trade it all in, to have him whole

less angry, more able to be, swimming underwater with her.

not lost, broken even after healing, crushed despite being repaired

holding the welt of injury in his throat like a choking bird.

She has moved on from who she was

ten years ago in Africa

under the sun, hiding from herself, hiding from kaleidoscopic future

it has come, blooming wild and spreading its green fingers

into her oval mouth

she has no time for passion anymore

she has no patience for imagination

she can only swim

cutting through the reluctant weight of water

like a blunt knife will eventually carve

the true price of things.

 

for Em.

 

WHAT WE VALUE

Our society worships entirely the wrong animal, venerating them and reducing others to ash.

The news recently devoted a good portion of the sports coverage to how much money certain sports figures were going to be paid for kicking a ball across a field. And this in a time when our jobs are dissolving, our society is being wrecked, our economy may be irrecoverable and certain industries will cease to exist en mass. Put simply, there will not be jobs to come back to folks but apparently we still need to pay these guys billions for their service to humanity?

I cannot understand how ANY society and how any of us can tolerate/accept a sports figure being paid anywhere NEAR that sum for what they do when those who really do jobs worth paying, are dying in droves because they are not receiving enough personal protective gear to protect themselves.

When did we start paying someone to kick a ball millions and a nurse who saves our life, hundreds?

What’s wrong with us?

If I were an alien observing our planet, I would seriously wonder if we all were crazy in our assessment of VALUE. What we value. What we do not. If nothing else, Covid-19 has given us a chance to see this once and for all and try to do something about it.

We have marched for Black Lives Matter during this time because it was over-due and our raw emotions on the subject burst out of their polite shell and filled the streets with ire and a desire for equality but how many of us really want equality? Not all of us that is for sure, look around and you can see it in every facet of life, a desire to be above someone else somehow.

We still routinely under-react and permit by our inaction, serious hideous crimes like rape to go unpunished in this country and others.

It’s the year 2020 and we still think inequality for women is acceptable in some forms and fashion. Let us not forget what Maya Angelou said about wanting to vote for a white woman over a black man. She said – women were the original oppressed group, thus we should work backward until all oppressed parties are equal. I agree with her.

We still think hate crimes against Jews and telling Jews that Israel should not be their country is somehow acceptable, despite those Jews having descended from that country. Would we say the same to Black People about Africa. Of course not! So why do we say it to Israel? Because of the Palestine Question which Europe in particular has decided to side with, uncaring of the history of persecution toward Jews and their right to have some land of their own. Of course we shouldn’t persecute Palestinians either and of course, Israel has made mistakes but it’s now about what optics politicians choose and what side of the story is half-revealed via inaccurate news reporting. It’s essentially about which side looks right to support? Because Trump supports Israel, most left-wing supporters are against it. Yet it is not that simple and never should be. Lest we forget our history.

We still think homosexuality is unnatural and abhorant and that being queer isn’t natural. We don’t say it out loud because it’s not popular to say it, but we think it and we act it and gays know. They know.

We talk about slavery and how horrific it was, but half the time we just pay lip service to the deeper issues, because we don’t know our history so we don’t mention Native Americans and how they were exterminated en mass and continue to be disenfranchised. We’re so proud of ourselves for changing the Red Skins but we think that’s enough. Or how slavery has never really gone away, it’s just changed hands and outfits, but it’s still well and thriving in many forms.

So it’s never enough. Until everyone is equal and inequality and racism are a thing of the past. But will they ever be? With people who seem to thrive on discrimination and putting themselves ahead of others and putting others down? If people think wearing a mask is too much, is it any wonder they really don’t give a shit if you are sick or you are vulnerable? Don’t they just want you to die and bugger off?

Likewise with illness, with chronically sick people, it’s never enough to just have laws that allow them to not be discriminated against because discrimination comes in a myriad of differing forms. Subtle. Unreachable. Devastating. People of color have to put up with this EVERY SINGLE DAY as do women, as do gays, as do sick people. Just one roll of the eye says everything. Says; ‘we think you are pathetic‘ invalidates an entire moment.

Chronic illness is a little like amputation. Obviously anyone who has suffered an amputation will refute this and rightly so. But metaphorically it remains akin to the loss of a limb. You are left flailing, unsure of how to right yourself, and continue as once you were. A part of you is lost.

They talk of periods of adjustment. The stages of grieving: Anger for what you have lost. Shame imposed by a society who now judges you weak. Acceptance of a ‘new normal’ that includes intolerable things such as chronic pain etc. For many, those stages of grieving never really end, they cycle and you go through different dilutions depending upon how you progress.

But progress is perhaps not the right word. In our linear society where so much is expected. For someone to drop off and no longer thrive, in nature they would be left behind to perish. In our society they are carried along but reminded frequently, of their burden, of their ineptitude.

For many who suffer mental illness, physical illness, both, there is a lot of shame attached to their existing after this fact. Even as people do not come out and say it directly (and believe me, many do!) there is a thin veil that is easily penetrable. People know when they are treated differently, seen differently, worse, judged without jury.

Being ‘sick’ in any manifestation is seen as a ‘weakness’ by our society. This invariably goes back to the ‘dog-eat-dog’ notion of surviving. The weakest link perishes or is a burden to the whole. But these days, with our so-called faith and mercy in place, one might imagine a little more compassion? And if you did, you would be sorely disappointed.

Since getting sick in 2017 I have felt intermittently well enough to continue working and ‘accomplishing’. But as with any pendulum, when it swings deeply toward illness, I am right back at the horror point of when it all began, down on my knees, imploring the universe for healing. And for the most part I have done this alone, because as all those who have been sick for a time will attest, most people do not stay by your side. Even those you expect to.

You can’t plan any longer. A trip is a fear because what if you get sick? Then someone suggests; maybe it’s in your head, maybe you are making yourself sick? And no matter how many times you prove otherwise, they think maybe it’s a choice, just like being gay is a choice, right?

Wrong. You can’t rely upon yourself like you used to because you never know how it’s going to be, how you are going to be. And usually you could be relied upon 100 percent and now that’s gone and somehow you still have to plan a future, but how do you plan a future if you can’t rely upon yourself?

I try to take something from every experience I have, including negative ones. Without learning we don’t grow we just regurgitate and I would rather grow even if I’m throwing up and in pain as I do it. I have taken from this experience what is obvious, but I have also tried to take from others experiences, and have noticed disturbing patterns among those I know who have also been sick for a while or a very long while.

People leave.

People don’t care.

Poverty goes hand in hand with illness.

Anxiety and fear are natural outcomes for a plethora of reasons.

Loneliness can kill.

What I have come to see is this. Sick people are TRUE WARRIORS.

They fight the unimaginable that most of us never have to endure. They have to get pacemakers in their 40s, they have to struggle through taking 2 hours to get dressed and STILL MANAGE TO SHOW UP and this strength – this strength is what I have learned the most from my experiences and listening to others. Strength comes in many forms. We dismiss most of those forms but they are real.

I watch people who have seizures and brain tumors, fight and fight and fight and I realize, we’ve got it backwards. We should be applauding these people not marginalizing them. But we do everything backwards, because as a whole we are poisoned by false ideas of what is valuable and what is not. We toss aside those we deem un-valuable when they are perhaps some of the most valuable people in the world.

So if you are disabled in any way, be it in your head, or your body, remember that. You are some of the most valuable people in the world. Let nobody ever let you forget that. You are some of the most valuable people in the world.

This is written for my sister Angie. You inspire me every single day. You are that light in the dark that refuses to give up and because of you, I refuse to give up too.

The Right To Die

https://www.yahoo.com/news/column-californias-aid-dying-law-100053133.html

The Right To Die debate is one I have strong opinions on. Ever since Brittany Maynard decided to end her life to avoid inevitable agony and suffering and watching her discuss this in many interviews, I concluded that the Right To Die law should exist for everyone, everywhere.

There are pitfalls no doubt. I can imagine nightmare scenarios where people are ‘terminated’ by bored relatives who do not wish to take care of them. So obviously safe-guards must be paramount. That said, I am open to the RTD law be expanded to include dementia patients and those with serious Chronic Illness, including long-term-depression.

That’s murder! You may say. And part of the invariable slippery-slope! But I would disagree. Unless you have been the victim of Chronic Illness and/or long-term-incurable-depression you cannot speak for others who suffer each and every day.

A few years ago I killed a kitten who was suffering. It was in agony, unsavable and its liter mates had died in excruciating agony. It was a Sunday and no pet-store nearby was open to euthanize the kitten. To spare her suffering I put her to sleep myself. It was the hardest thing I have ever done, I didn’t actually think I had it in me (to take a life) being vegetarian among other things. But the compassion for her suffering over-took the fear of harm.

The harm was her suffering any longer and that is how I see RTD laws.

Obviously we have to put into place protections against this being misused. I recognize that many deeply devout folks believe God takes us when we are ready, but I have never subscribed to that. How is suffering in agony EVER God ordained? If a God exists I do NOT believe he/she chooses people to suffer in agony for years on end. Thus for me, that argument is moot.

Without the issue of ‘taking God’s job away’ we are left with the morality of RTD laws. If I see someone suffering as horrific as it is, to consider their dying at my or their own hands, I would want to help them not suffer. If that was their true wish.

In the case of dementia patients, if they sign a waiver now they can ask not to be force-fed and kept alive, but it still means those wishes can be ignored, effectively they can exist for years as a vegetable, and do nothing about avoiding that outcome. This isn’t a pragmatic thing. Obviously our society is going to be destroyed by dementia cases as more and more develop it, but irrespective, this isn’t about convenience of death, it’s about the mercy of death.

Few of us (I know some exceptions) would wish to shit on themselves, not be able to eat, remember, function etc, and lose all dignity and awareness. Most of us would prefer to die. Giving us a way to write this out and have a representative help us achieve this, seems to me, a mercy not a convenience.

The whole subject is heart-achiningly awful and we avoid talking about it for the most part. But we need to think of this. Just recently with Covid 19 ventilation, the question of dying and life has been very pertinent and young people who never wrote living-wills have been in limbo. It is never too early to consider these things because we really don’t know.

When I put my cat of 18 years to sleep it haunted me. Briefly I went back on my belief that RTD was the best choice because I thought; If I can’t handle the images and flashbacks of the catheter being put in my cats arm, and watching him being put to sleep, if I felt that was ‘wrong’ in some way, how could I handle it if it was my dad? Or someone I loved?

Truly I think I am nearly not strong enough to cope with that day. But despite that I would still do it. TO END THE SUFFERING. It would haunt me and yes it would feel worse to me than if they died naturally just as it would have been ‘easier’ if my cat had died naturally instead of being given drugs that killed him. Watching that was horrific and it did feel ‘unnatural’ because it was but sometimes it’s the only choice, and it’s the best choice and even if it leaves us feeling horrific, we should consider it.

I don’t regret putting my cat to sleep. But I regret that it had to happen and I still get flash-backs of the last moments. If I had to do that with a human-being I know it would be the hardest thing I ever had to do. But if I loved that human being and it was THEIR WISH I would hope I had the courage and love within me to do it or be part of it or at very least, support their wish.

Having had chronic illness I know we can be ‘not in our right minds’ and so the issue of ‘how sick is too sick?’ must be considered. Depressed people for example, may be able to be cured, so are they really the right candidates for euthanasia? I don’t know the answer, I only know that if someone I knew had suffered for 20 years and wanted to die, I would find it hard to deny them that mercy. If all else had failed.

This is not what we want to think about but right now, out there, are many people who are in this VERY situation right now and have no recourse to end their suffering. I believe safe laws CAN be made that protect against abuses and I believe at this juncture in our societies evolution we need to consider those things, not to keep our sick numbers in check, but to be merciful to suffering.

The courage of Brittany Maynard has stayed with me ever since I heard about her and followed her story. Some may say that is morbid. I say it is honest. I still think of her, she affected me deeply and opened up this debate. I hope others can get over their prejudices of what they believe others should do and give people a CHOICE. Just like my best friend who doesn’t believe she would have an abortion but believes others should have the right to choose if they want to have one. Such is this debate about an individuals right to choose their outcome. Who can honestly deny that in the face of suffering?

I often think if I live to be old, I will be alone and I fear that very much. I think if it were possible I would choose to end my life simply based on not having enough money to keep going or enough reason and family left to make it worthwhile. Is that wrong? Maybe. But one day that too may exist as an ‘option’ and a mercy, to help those who would otherwise resort to suicide which can often fail and leave awful aftermaths. This is a very sad subject but it’s one many of us will one day face one way or another. I don’t want to dwell on it, but equally, I don’t want to pretend it could never happen.

I think now more than ever, we have learned, anything can happen and we need to be prepared. Taking responsibility for our lives AND our deaths is a responsible decision, and helps those who may be left in our lives, follow our true wishes. I hope I never have to find out, but I believe we should all be prepared for both the best case scenario and the worst. Contrary to popular opinion, taking ones life is probably the hardest thing a person can do, not the easiest. But as this article above states, there are worst things than dying and I would say suffering in agony meets that criteria and forces us then, to consider this subject honestly and with compassion.