Her own thirsty heart

photo of two women
Photo by Mahrael Boutros on Pexels.com

But I am divided. In a way that is hard to shape into words.

For women who love women are often the rarest night birds.

Theirs is a love that does not come easily and for this reason, it takes a great deal to stay

Sure and certain on the rainbow path.

Sometimes I understand my bisexual sisters, who having had their love affair with the curves and softness of a woman

Return to their husbands in droves or pick out that wedding dress and let the man

carry them over the threshold.

For a woman to be loved by a woman may feel natural but many times it is a struggle

we have no rule book, we may both want to have the other carry us or hold us when

fear besets

and men are so good at being heroes

and women are taught to be saved and rescued.

I understand then, the desire for a woman and the longing for less strife

where if you have children it is sometimes impossible to find a way to describe

why you leave daddy for a second mommy and how

fractures in emotions are not easily translated for young minds.

Had I children, who is to say I would have been brave enough? Equally it is part why

I never did.

My sacrifice came because I saw no other way

for it was never as it felt in the arms of someone of the same gender

and in that I am unusual and possibly 1 or 2 percent of the entire world

though it will seem more during Gay Pride and other events

where everyone holds a rainbow and joins in.

Only the days when we are not celebrating, we may be struggling

to fit in with even each other, strange as we may be, these women who

in various guise and costume

fall in love with other women.

I don’t get on well I admit, with those who believe the only true lesbian

is one who shaves her head and dons mens clothes.

It is not that I cannot see their point, or how many years before

it may have been the only choice

but I did not fight this hard to dress as a man and love a woman

who is also dressed as a man.

I would rather pick a full cheeked feminine boy with long hair

and pretend he had nothing between his legs than sell out my own idea

that love of a woman is as feminine as it gets

and we shall share each others’ dresses.

Our history has been unkind and as such, we do not trust very easily

if at all and when we do, we are liable to judge or leave out and exclude many of our tribe

just as women have done for millennia in their pursuit of men

hated other women for existing and challenging that thin mesh of safety.

It saddens me then, to be ostracized when I walk into a gay bar

and do not fit in, or feel judged by my sisters whom I want to

take into my arms and feel less lonely by.

This is but one aspect of the kalidoscope of being the L in the LGBTQ and

few of your G’s and B’s and T’s and Q’s will rush to your defense

we are co-opted in a group who really knows little of the other

for we are as disparate and different as it gets and often we walk

alone, despite our legal rights and our social acceptance (some of the time).

Alone because we cannot befriend a straight woman for she may

wonder if we would fall in love with her (and quite possibly might)

nor a gay woman for her girlfriend will begrudge us, nor a gay man

as they have often hated women and especially those who forsake

men, there is nothing in common there, and straight men will

try to tell us we just need a good f**king and we’ll soon change our

ways so who is left?  In the great wide world to be close to and share?

Those fears and our desires, the very stories of our lives

for whom 98 percent of the world cares not, they have their

1.5 children and ideas of normalcy and we don’t fit well enough.

Sometimes, how much I want to tell someone

of the love I have for a woman and the stillness of night

when we move together and how I catch my breath as

she turns like a thimble in my hands, silver against moonlight.

So quiet instead we are, often falling in love and unable

to share this or speak of it, for it is forbidden. No one will

listen, or be interested, they do not understand our strange ways.

Still in this day and this time we are shadows within

light and light within shadows picking our way through

mostly eaten strawberry fields, dreaming of a girl

who may like ourselves be wandering, looking for

a girl like herself who has only ever wanted to be

held tightly and hear the slow beat of a girls heart feel

the rise and fall of her soft breasts and know

she is where she belongs and needed every bit

as much as her own thirsty heart longs

in the early hours and late at night like the lonely

wolf who by himself will climb to highest point

in futile search of another’s call.

For Halo

My debt rests in your fur

as they light it

and it burns

and your form shrinks

from this world

your black and white paw limp against my clutching

fingers wishing you here

those images are cookie cut into my mind

called intrusive thoughts and flash-backs

I know them well

they are not my friend as you were my friend

I imagine what you feel and then recall

you no longer feel anything

though that does not seem right

without religion I am left unknowing

where you land next or if you will

awaken in paradise or remain slumbering

whether sleep or a void, if we can truly leave

and have nothing of ourselves remain

but ash and debris

it seems impossible that you were once

jumping onto the table and making me laugh

with your antics

only to be nowhere and gone eternal

I may not possess sufficient faith

to build castles in the sky but

your energy stays like stillness in

this empty house and from the corner of my eye

I still see your shadow slink just as

my grandmother’s voice is pitch perfect in my head

is that imagination or wishful?

Or do ghosts haunt us willing supplicants?

A bouquet of delusion to soothe our empty

arms or

will you live forever within me? And when I take

my turn at the Ferris wheel

our nothingness will reside near one another

I like the idea, all I have loved will

mingle as returned starlight in the ether

and touch one another with reminder

for being alone or worm food is

a cold dinner companion I wish not

to believe in

even if God turns his head from me and always has

for his man-made lack of female

and my rib is long and sticks into my gut

reminding me I am ever every man’s equal

and will never lay down to those dull prescriptions

of what constitutes truth from a man’s tongue.

Your fur was thicker than all the cats here

who grew up hot and listless on porches

you came with me in a pink plastic box

obscene in its garishness we laughed

putting it through customs

the harried lady at flight desk remarked

well there he goes as you were taken

hand delivered, to the pit of the plane

and I worried because I wanted you to be

on my knee but no madam, I’m afraid for long haul

he has to ride in cargo and don’t worry

few of them get upset, as if she were crouched among you knowing this

this seemed false as so many things do

when big decisions linger like absent friends

at the periphery of moments

too quick, too big, for staying still

briefly I wondered; Should I really be moving?

to this strange country I do not yet know and

burning this bridge indefinitely

it felt as wrong as right ever was and I stood

in the airport watching the thin man take you

behind a curtain and then as you were on your way

so was I.

You see …

I took my cue from you

quite often

and of the two of us when we landed

I think you looked less bedraggled

whilst I fought with immigration because one of my papers

was not ‘just so’ and they called and fussed because

immigrants are not very welcome in any country

and annoy those whose jobs it is to ensure

smooth sailing

and when we reunited

on different soil with the sound of cicadas or crickets

I was not sure in those days

you were hot against my grandmothers blanket

and had peed because they don’t let animals

out to the bathroom at 30,000 feet

which was exactly how I felt, hot and wet and stinking

at the same time, in this odd place where

people were outgoing and spurned shyness or other

attributes we both possessed

with aplom

following our dreams or maybe just mine

as your dreams were about mice or pigeons and later

lizards and snakes

as you learned the ways of the desert

and perhaps the tenor of your meow changed

to reflect the inflection of your adopted country.

It may seem easier but it is not easy for any of us

who come by boat, plane or smuggle, to

lands not our own, we each bring with us

that belly full of ache

and you were always able to

soothe mine with your purr and ever

reminder of our start beneath colder skies and

smaller streets with littler houses and narrow

rooms where we knew our place and here

we could only speculate or clumsily test

our sea legs against

the strangeness of being

with mistake and estrangement

our sole friends quite a while.

Unable even to drive I walked you down the road

for your first vet check and people gaped

from their large cars at the floundering Europeans

walking where no-one walks and everyone uses

big trucks to go one mile and purchase a giant

sippy cup and some Ding Dongs, things with

names that sound fun and 40 additives

my kind of humor and banter lost against

surge of habit, the vet seemed surprised I

had carried you rather than driven and tut-tutted

at your lack of dental hygiene

but remarked how beautiful your thick fur was

and how cats in these parts tend to have

snake skin, we all laughed at that, even you

cast a fish eye his direction like you

possessed the real secrets.

I remember those exploits and driving to Canada on another

exodus when stateless we began again

another groove in our fitful recording

the deep snow and your paw prints leading

me nearer and further

like ice fish we swam in our odd circumstance

always together, staring out stranger windows like

spectators at our own fair ground

in cold you slept beside me and purred

in your sleep to the sound of icicles

warming and falling into snow the

sky a heavy weight holding its breath

eventually we returned to the place of infernal heat

and sizzling side walks where no one but us

and straggly weeds dared to step and the years wound like

lost yarn beneath our odd foray

until you were old and fragile

and I barely noticing because I did not want to

believe you could quit being the little cat

in the pink plastic box glad to see me at the

first airport in our new world.

It was naive or immature of me to forget

cats lives do not echo ours and mine seemed

suddenly far too long and yours bitterly short

a terrible echo of inequality I did not

have the strength to imagine losing you

when together we always were.

Even people who wrote said; ‘Dear Candy, Dear Halo’

as if they could see the join of your fur and my

burning skin against the other

I told myself I would be there when they

sent you to that place I could not follow

despite knowing in my mind the terrible pictures

would roam long and unbidden for many years

to look into your eyes and remind you how much you mean

to me and always how I will look for you

until we are reunited and then I expect

all this will be mere bad dreams and

again we can go forward, or side ways or

whatever direction the after world takes us

but please together, is all I want

for with you gone, I wait without watch

an absence greater than anguish

for you were my best friend in this lonely world

assuaging the hard edges and frayed corners

we came here together and still I am

more lost without you than when I arrived

for your bright eyes and happy tail

gave me courage Halo and ever shall I

look for you coming into the kitchen in

the morning with your half howl of greeting

starting my day and ending it with

putting you to your bed

never once thinking there could be a time

when you were not and I still went on.

Aristotle said it best; a relationship is

two bodies one soul

that is real love

and we are floundering when absent from one another

like the ice fish when it warms up

and water is all but gone.

SweptAway

10585_Shadow-iPhone-Photos-26_w1120Here in the quiet room

you can fool yourself for a moment

joy has returned

her skin like oranges left in sun

narrow feet catching dust, turning in their little arc

you want to tell her you notice everything

as if it were your job to record the very sum

using nothing but words and build from alphabet

exact reasons you still

catch your breath

yet for all the music beneath her skin

a familiar yet unfamiliar person within

she has been long gone just as she remains

a shadow against a wall elongated

like places you once lived in

turn strange

taking one more look around

before you leave

key on the mantle

watching tulips breathe

their redolent mystery

as the color of her eyes

was never a word to capture

something free then

flying

out of the window she left ajar

that day she stopped being herself

and you could return in a 100 years

just for the smell clinging to her neck

how she feels beneath her clothes

places you know like a hidden map

joy solved in one tightly held hand

like a sailor lost at sea

when she is far and away

diving for pearls in hope

one will be as black and magical

as her iris caught by car light

watching you, seeing nothing

even the whispers of who she once was

swept away

the room now bare and empty

readying for new people

running your fingers along the memory

heart in throat

seeing her turn

that beautiful smile

before she climbs

the narrow stairs

We cried a long time ago. We don’t cry anymore.

AR-180119488

A warbling, holding, green glass pain

Like joined hands make paper cut

Invisible like girl in crowd, falls

Deep as ink without light

Stinging with clamoring cymbal

Tears almost bare themselves as first night lovers, tremorous

Retreat beyond the naked streets

It is not brutal gnashing strength

But soft lipped resignation

And a little elipsing hope

For bare faced ceasement

Lain like prayers and rushes and thrown flowers wetting paving stones

No ceremony. Only, black cars devoid of dust

A trail without salt. They bent lower to seek. Not yet.

It’s hard to say it. The wind chokes words. Before.

We walk on. Omphalos in fatigued lament

Toward reprieve, illuminate in muted tempest.

Spindle

7d0ed5cd3d2e3d68eddfc2ef7d189b33Sometimes

love is a sadness

a mark against sun

warm rain

stored tears

sometimes on the best of days

you cannot find joy

love can hurt like a sting

reminder

never forgotten

It us better to have felt

all my pain and ecstasy

than feel nothing

and sometimes I see your eyes

graze over me

they are not present

you feel so little like a spindle

growing light of wool

It is as if you need

less oxygen

to function

and in those times, I want to say

oh love me as if we were dying

love me with all of you, not just some

fall as deep as I

but you never have

It isn’t your way

you are

sunlight hitting surface

to us beneath

the warmth barely gets through

and we grow thin

and restless

and hungry

Pushing away

woman-teepee-pinterest

one day in the future they will come up with little pills and little bottles

to ‘cure’ this illness when it is not

even tangible

but something made of fibers

unseen to the eye

that set you off galloping

one day you sit quiet and rested in the sun

and just a little thing can start it all

the discrepancy of something said

the feeling of being on the outside looking in

a lie you cannot call someone out for

because they have more lies than you’ll ever

have room for

so you turn

without even thinking

second nature

and run in the opposite direction

shut down close off

never give them a second thought

it is the protection of the flower

who must open daily

and close when it is dark

she can be so sudden in her dismissal

it’s what she knows best of all

that feeling of nothing

that familiarity of naught

and if it happens they’ll eventually

call it an illness

but it’s no more sick than

stones who adapt to water

by becoming

heavier

to move

if I happen to

switch off and stop

I won’t be coming back

and it’s only the ones who

claim the deepest of my heart

whom I cannot stand to reject

who stay with me til the end

burrowed in my being

where few can ever find

entrance.

 

What was it about you?

let yourself right away in

demolished every rule, every tendency I had

an exception we bow asunder to

feathers gleaming against cold sunlight

 

Preparation for our dissolution (3)

1_max_494Down the drain

Watch. Watch carefully. See. See clearly

The comforting sound of water retreating in circles

I used to say that water turned to milk

I used to think when cream mixed with transparency

Pearls swirled and ebbed like fire flies in dark.

Kept warm beneath tiny radiators stuck on walls like beige moths

Glowing against a 40 watt bulb

Don’t open the window it’s stuck, it’s stuck on being underground

We breathe in soot, we turn ebony in our effort to

Rise.

She couldn’t lift the baby carriage, in those days it weighed

More than she did and the stairs, sticky with linoleum were

Narrow like her little arms attempting to heft us toward

Light.

We mired in dark. We stayed still as stalagmite in caves

Children’s books. Detective novels. Smite the key in the lock

Green plants fitfully reaching. Reaching. Reaching

Your arm is never long enough.

Recall the smell of boar hair brush. Of Clinique blue bottles

Is it magic? How does it glow? Mouthwatering

How they had a misted outside, I ran my finger down and traced outlines

Someone in NYC designed this shape. The shape of places far and lettered.

She had wool, it got wet washing her hair, the edges frayed

It smelt like grandma’s farm with damp goat fur at 5am

Nobody had anything then. We opened our hands to emptiness

Paper lotus. Needle. Oh Lord. Darn a way out.

Everything is so different now. I did not learn how

To cooperate

How to join. How to thrive. What if you are

Born only of coal?

The heavy weight of circular plates laid over paving stones

A funeral of sorts, bury the mother, bury any off-spring

Only blood. Only letters after names. Knights and paupers

The history of war. Victors write. The rest rot beneath daisies.

She grew insufficiently, facing away from sun

Her skin parchment, knees knocked

The pain in her. Oh the pain in her! No words.

She closes her eyes. Turquoise like the stones found in New Mexico

When she was told that, she said; Yes I will buy a ticket

Board the plane, swallow the dream, take the red pill or

The blue.

It was so savage. The quiet. The silence.

When she left there was nothing but the brush and the bottles

Gathering dust, follicles left spinning in air

Are some of those skin cells, still her?

Reconstruct

Is it any wonder she knows best, people of vacillation

And change? She knows the feeling exactly when told one thing

Tomorrow another truth hangs primly in

Your narrow closet.

Her ear lobes are detached, she read once in a woman’s magazine

Attached ear lobes are a sign of beauty

She has larger knee caps than her shins

The skin barely covers her climb

Trees of white, pearl, honey, comb, hair brush, blue

Bottles.

They didn’t fix the streets they remain

On fire

And they ate coal in preparation

For their dissolution

“Il y a dans le coeur humain une génération perpétuelle de passions, en sorte que la ruine de l’une est presque toujours l’établissement d’une autre.” Rochefoucauld.

 

Always

Rorschach_blot_04Sorrow

You come from the juxtapose of joy

As I ate words of love

I had been starving for

Felt your surround like a glory

My body opening for the first time in years

To the rain of you and your outstretched us.

That safe place

Didn’t really exist

I had simply been running in diminishing blindfolds

Emptying myself of protest just as, in one glance, you fill me whole

Anything less is biding time before dying

And it’s not good enough! I want to feel FIRE.

I am

I said into darkness

A strange person

I spent my youth

Acting multiple roles

Watching the stage from ceilings

And words? You have none, I have plenty

But they mean nothing

The purity of your act

Holding my chin and neck

As only one who owns my heart

Tells me more than any soliloquy.

I am a writer

Who doesn’t believe in detail

I’ve had the most fantastic actors

And I’ve seen through them all

But your raw silent search

Slams me with its reality

And I open and open and open

Crying out my betrayal and my hurt

Your fingers beneath my arching

The feel of you, deep in my journey.

Like a wild wind

I pull hard on you

Because I cannot have enough

I want you to live inside me

Like a flower touching my soul, blooms in darkness

Our fingers interlaced

Things I’ll never be able to say.

I smell home in your neck

I touch pain against bliss

And collapse on the other side

Where all meaning resides and you …

You are my all

I want to stay here

Gathered into you and afraid

Because when you feel

You always walk the edge of a blade

Sharp and unknown.

I cannot say anything

But the feel of you against me, is my only sense

I am driven

Like sea is drawn magnetically, every morning

Thundering against shore or stone

Grieving its former peace momentarily

Before losing in the din and rage of passion

All ordinary sense, replaced with certainty.

I am unable to exist without

The burn of following

I follow you

As we are shadows separate and together

Watching me watching you, merge and turn like slivers of ink

Until one, until none

Indivisible we begin over

Unweaving what was you from my depths

Incomplete now

Stay

Stay

Stay please

Always.

The unlit room

pexels-photo-241705 - Copy

like a surveyor of tea leaves or coffee grains

you have only seen the bad in me

mama, there is more than that

so forgive me if I hope, you don’t read this

though as I write in the unlit room

with unfurling gloom of coming dark

shadows whisk past in fast motion

like hunting birds intent on victim

pictures of another life

when I close my eyes I hear your voice

imagine home, it includes you

exile is a word I find hard

thinking we’d find a way all these years

my child heart foolishness

we try to repair the mauled favorite toy

we try to reclaim the torn moment

but time moves on and people

betray each other as easily

as reading congealed tea leaves

so read them, tell me my fate

I am sure you think you know

and as the words come pouring out

each one designed for maximum hurt

I will grow away from you like a plant

facing determined shadow will

strain toward the purity of light

I didn’t want this

it wasn’t my wish, the choice was removed

but I am, contrary to your belief

not dying of my own poison

the illness within me

will be healed

and that part that blames me for everything

lying in you, a furious envelope

that tells me I am responsible for my suffering

will meet

the karma we all must face

when cruelty is reflected back at us

I had hoped so much all these long years

for your mercy and your presence

but as they told me

you cannot long for something you never had

cannot make someone feel what they do not feel

you asked me why I called today

I knew you would lash out, I knew it would hurt

and maybe like a penitent I felt

saying goodbye and letting you know

I love you, was worth the scald

because I had a dream

it was a dream I lived a long and healthy life

it wasn’t with you and you were not there

somehow I still smiled and carried on

and when I woke I wanted to ask you

how could I ever live without you?

when you brought me into this world

I know your voice, as I know myself

and I have loved you more than anyone

but I already hear the answer

burning the silence of my stare like a

forgotten match wicking itself to fabric

devouring oxygen and matter like

a scream will penetrate quiet night

I know, in the slick loathe of your tone

the way you know just how to plunge the knife

you don’t need me you say, you never did

I am an unwanted thing, better disguarded

let loose to tumble into the past, better never born

and though I may not know it now

you set me free as I forgive the ache

letting go of all those years of chasing

those folded sorrowful times of indifference

to claim what we should all have

the knowledge of real love

instead of being reminded of

someone who never thought you worthy or special

who happened to give birth

with the anger of a condemned prisoner

Oh and I wish

I could go back in time and undo

that bloody hour

where you never had

to endure the pain of bringing me into the world

for surely

I would

that is the point of unconditional love

you give even when it hurts

and I would dissolve me to save you

but it is too late for that

and for wishing I had a daughter

I could pour my heart into

but I will find something else

maybe out there in the wild where

people do not carve out pain with

the sharp edges of their own

and when I told you I would always love you

I meant it

even as you push me away one last and final time

which I accept

with the gait of one who knows

she has more life ahead

in the bowers of empty space

among the fir trees growing like prayer

toward the glassy reflecting heavens

it will not always be so sad

it will not always be so sad

 

I AM A TOTEM OF MY OWN BRANDING

pexels-photo-573298

I’ve been told I’m a chronic pain in the ass

after all, it’s easy to destroy a child in an adult’s body

with past-tense words

and now in the time I’m meant to be at my strongest

chronic has visited me and stayed a long while

on a good day I think; This will not be forever

but temporary has always been a long way off

the doctors love to tell us; It’s incurable, get used to

living like this, hostage to something unknown and strange

as if that’s a normal thing to do

but if enough of us live with chronic illness, it will become normal

and that is not a good thing.

Before this …

I took chances, because you think

I’m invulnerable, sometimes I can fly

health, you take for granted

though I truly convinced myself, I had checked the boxes

right weight, exercise, organic, vegetables, no pre-made meals

(well, this is what I told my doctor, sometimes a couch counts as exercise, right?)

if I ate a slice of pizza, it was a treat with friends

though I like root beer, I never drank it

maybe making up for cigarettes, smoked in my twenties

but I thought if I keep jogging, if I keep living healthily

I won’t be felled, because you ARE WHAT YOU EAT.

A few months before I got sick, I recall

feeling strong, climbing through snow drifts and laughing

boundless energy, working long hours, feeling intensely alive

people saying; you look so healthy, your skin is radiant!

Those are not things people say now, unless

I apply a lot of make-up, to camouflage my fraying edges

instead it is me, who declines invitations

I am sorry I cannot go with you to eat, even though eating out

is the number one leisure activity where I live

because my stomach is ruined and I cannot digest much

I live plain and simple (and boring), like a nun and I am numbed

to the pleasures of wine and sauces and garlic, spices and oils

not recognizing my bloated mid section in the mirror

from the girl who once was told

she had an hour-glass figure, with a wasp waist

could run for buses and catch them in three-inch heals.

I know everyone has their burden

but when you get sick and it doesn’t go away

life becomes a series of scolds and let downs

you find out who really loves you and who harbored an anger

used the opportunity of your downfall, to insert a knife

it is the cowards way of course, but freedom of sorts

for none of us need, that kind of negativity in our lives

there is a blessing in disguise, when you find your tribe

the people who care and know the real you

not wanting to tear you apart, because it’s easy to kick you when you’re down.

But blessings do not salvage, the hours you spend sickening

remembering how you were rarely felled in past years

strong of body, sound of mind, juicing and walking ten miles

everything is turned upside down, inside out when you find

a burnt fuse, at the end of your outstretched arm.

There is no cure, there is no future

when you live, in a jar for the jarring

for a long while, I blamed myself

maybe in part, because someone I trusted told me;

“It is your fault, you must have somehow caused it”

easy to throw stones, at glass houses

I was a glass house, with many windows

break one and I cannot repair it

the wind will come in and make of my space

chaos

the sun will come in and make of my peace

madness.

Those things that brought me joy, were gone

instead, the regiment of illness strode in and stood firm

you cannot feel passion, when you are sick

ageing in hours, rather than decades, trying to stay above water

it is hard to feel hope

you rely upon the kindness of others

which is hard to do, if you are not used to it

and when they lift you to the light, you promise

if I can recover, I will try ever so hard to never be ungrateful

but with every mercy, is a dark day in hell

those days take it all out of you, like a scourge

the sickening can age you, more than a nightmare

one minute you recognize yourself, the next you are unknown

vulnerability, of not being able to take care of yourself

the expense and fear

your world crumbling around you.

These are things you get used to and when you have fallen

to the bottom and can no longer get up

that is where the truth lies

that is where you can find

your true self and the end of fear.

They tried to tell you that you were insane

making it up, all in your head, something’s wrong with that

crazy lady who pounds her fluttering chest in vain

tries to catch the eyes of doctors, with beseeching side-glance

SEE ME! HEAL ME! SAVE ME! WHAT IS WRONG?

WHAT HAS HAPPENED TO ME? WHY DID I WAKE UP ONE DAY

SICK AND IT NEVER WENT AWAY?

And yes ! Something was wrong with me and still is

not my doing, not my causing, not my dreaming

despite you saying; You bothered us, when you called and were upset

no mercy, no mercy, no mercy, that is not love.

Helped me let go. Don’t hold on to negativity.

Oh doctor, get it outt!

and if you can’t, then give me the key, the saw, the pick

so I may survive myself and somehow continue on.

Am I to label myself chronically ill, or in recovery?

Surviving or dying or all of the above?

how do you define what doesn’t go and doesn’t kill?

Spending all your money on alternative treatments that

don’t even know what they pretend to cure

how do you describe one good day, followed by one in hell?

others won’t understand, because they are well

what I would give to return, to that safe water place

but even if I did, I would not be the same

you live years with a loaded gun to your head, everything changes.

I am not me anymore

I cannot see out of my left eye

I cannot lift heavy things, with my weak foreign arms

I can walk ten miles and not break a sweat despite this and be told

by friends and foes; OH YOU DON’T LOOK SICK

I am an apparent scar of contradictions and pain

I hurt every day, my stomach feels like

something is eating me from the inside out

it convulses and retorts and shouts

“you will never win, you will bathe in pain the rest of your life”

but I will still try

because I don’t know how to give in to enemies, I cannot see

and even as I cannot eat normal food

one day I am good, the next I am dying green

even as nausea, has become my constant companion

and bottles of pills and vitamins rattle in my pit

even as I fight to be gracious in the eye of the storm

and those I thought would stand by me, try to drown me instead

I know there is still a moment

I am well enough to remember who I am

never to find that peace of mind again

but maybe recover to another state of being.

I wake in the night covered in sweat and the disinterested doctor says

“get used to not sleeping, get used to all of this, it is what you must suffer and many others do”

as if it is normal to be like this, as if it is something we should not mention

I will never think it is normal to be hijacked!

I jog into the forest, because it reminds me I am still living, my feet still work

I fight with wilted hands, when they tell me there is no hope

that I should just consign my former glories to a picture album and put

my feet up for a fifty year occupation of sofas and couches and day time oblivion

because THE POWER OF ME can overcome the power of negativity and this I believe

as I see in the mirror a girl who doubts but stares back unblinking.

I have lost my will at times

I do not write as much,  I have less energy

the last time I had a romantic dinner was in a dream and I

sleep with a heating pad on my stomach every night instead of a lover

but I still pay my own way and my own bills

I have a pride in pushing back against status quo

DEFYING the prescription of HOPELESSNESS.

they tell me go on disability. Just give up

I am not going anywhere, but to the finish line

I learned

by losing everything and having nothing but

the sheer will and dim light of my existence

I can do this without those I thought I had in my corner

because I am stronger than I realized

and this grieves me, as well as reassures me

but I come from a long line of stoic, strong women

and it seems sicker than I am, that we should hate each other

because life, surely we have found out, is fragile

and love is all that makes sense

but even without love I will continue and not

let the flame go out.

Sometimes I ask myself why?

why not just give in? Take the knife, swallow the pill

to oblivion or some non-sign-posted destination

I don’t have children to protect

it would be easy to slip out of this world and its sword edge of pain

but somehow I feel I should protect myself

maybe because others did not

maybe because you defend yourself in the end

when everything else is fallen and you are still

somehow, standing.

I am weak and tired and prematurely aged into

a hunched over version of myself

hair greying with shock, skin is sloughing off and my

body is tied to the rhythm of a sickness that purges and gluts

I was told this kind of disorder was permanent

but nothing I have found, is ever guaranteed

so I have chosen to ignore this and believe

we can all fight and overcome

anything

even a death sentence

even betrayal

even silence

and when we know this

when we are strong for our weakness

realize our tears are just water and salt

burning the frustration of our visiting menace

then, we know nothing can hurt us, more than it already has

and we are free to dream

of a future without so much pain

where death stands to the side and lets us regain

some of our former dignity

for there is nothing dignified in sickness

and you don’t know me when you said I was glamorous

that is the last thing I am

I am beautiful for my courage

beautiful for my fear

beautiful for my survival

beautiful for my defeat

beautiful for my mercy of those who have no mercy for me.

And life is a wax and a wane

life is a torture and a friend

I am the totem of my own branding

I may live in a time where nobody else of my kith and kin remain

and once that would have filled me with pain

now I know you cannot rely upon

labels of safety

it is only by looking into the hearts of those

who stayed by your side when the storm hit

even if it is one, even if it is naught

you remain behind

the tempest cannot roar forever

eventually even agony ceases.

I wish now, to be everything you were not

to love others unconditionally

care for those who are in need

be the change I want to see

I want to find myself

at the end of all of this

I want to tell you, sickness

you do not win

you are just a miasma

I am a spirit with a soul

I will endure you

the me, of me, will remain

long after, to remember her worth.

Before this all began and through it, learned

only the fierce remain

only those willing to FEEL

and not those who run from feeling

with the ease of the damned.