WHAT WE VALUE

Our society worships entirely the wrong animal, venerating them and reducing others to ash.

The news recently devoted a good portion of the sports coverage to how much money certain sports figures were going to be paid for kicking a ball across a field. And this in a time when our jobs are dissolving, our society is being wrecked, our economy may be irrecoverable and certain industries will cease to exist en mass. Put simply, there will not be jobs to come back to folks but apparently we still need to pay these guys billions for their service to humanity?

I cannot understand how ANY society and how any of us can tolerate/accept a sports figure being paid anywhere NEAR that sum for what they do when those who really do jobs worth paying, are dying in droves because they are not receiving enough personal protective gear to protect themselves.

When did we start paying someone to kick a ball millions and a nurse who saves our life, hundreds?

What’s wrong with us?

If I were an alien observing our planet, I would seriously wonder if we all were crazy in our assessment of VALUE. What we value. What we do not. If nothing else, Covid-19 has given us a chance to see this once and for all and try to do something about it.

We have marched for Black Lives Matter during this time because it was over-due and our raw emotions on the subject burst out of their polite shell and filled the streets with ire and a desire for equality but how many of us really want equality? Not all of us that is for sure, look around and you can see it in every facet of life, a desire to be above someone else somehow.

We still routinely under-react and permit by our inaction, serious hideous crimes like rape to go unpunished in this country and others.

It’s the year 2020 and we still think inequality for women is acceptable in some forms and fashion. Let us not forget what Maya Angelou said about wanting to vote for a white woman over a black man. She said – women were the original oppressed group, thus we should work backward until all oppressed parties are equal. I agree with her.

We still think hate crimes against Jews and telling Jews that Israel should not be their country is somehow acceptable, despite those Jews having descended from that country. Would we say the same to Black People about Africa. Of course not! So why do we say it to Israel? Because of the Palestine Question which Europe in particular has decided to side with, uncaring of the history of persecution toward Jews and their right to have some land of their own. Of course we shouldn’t persecute Palestinians either and of course, Israel has made mistakes but it’s now about what optics politicians choose and what side of the story is half-revealed via inaccurate news reporting. It’s essentially about which side looks right to support? Because Trump supports Israel, most left-wing supporters are against it. Yet it is not that simple and never should be. Lest we forget our history.

We still think homosexuality is unnatural and abhorant and that being queer isn’t natural. We don’t say it out loud because it’s not popular to say it, but we think it and we act it and gays know. They know.

We talk about slavery and how horrific it was, but half the time we just pay lip service to the deeper issues, because we don’t know our history so we don’t mention Native Americans and how they were exterminated en mass and continue to be disenfranchised. We’re so proud of ourselves for changing the Red Skins but we think that’s enough. Or how slavery has never really gone away, it’s just changed hands and outfits, but it’s still well and thriving in many forms.

So it’s never enough. Until everyone is equal and inequality and racism are a thing of the past. But will they ever be? With people who seem to thrive on discrimination and putting themselves ahead of others and putting others down? If people think wearing a mask is too much, is it any wonder they really don’t give a shit if you are sick or you are vulnerable? Don’t they just want you to die and bugger off?

Likewise with illness, with chronically sick people, it’s never enough to just have laws that allow them to not be discriminated against because discrimination comes in a myriad of differing forms. Subtle. Unreachable. Devastating. People of color have to put up with this EVERY SINGLE DAY as do women, as do gays, as do sick people. Just one roll of the eye says everything. Says; ‘we think you are pathetic‘ invalidates an entire moment.

Chronic illness is a little like amputation. Obviously anyone who has suffered an amputation will refute this and rightly so. But metaphorically it remains akin to the loss of a limb. You are left flailing, unsure of how to right yourself, and continue as once you were. A part of you is lost.

They talk of periods of adjustment. The stages of grieving: Anger for what you have lost. Shame imposed by a society who now judges you weak. Acceptance of a ‘new normal’ that includes intolerable things such as chronic pain etc. For many, those stages of grieving never really end, they cycle and you go through different dilutions depending upon how you progress.

But progress is perhaps not the right word. In our linear society where so much is expected. For someone to drop off and no longer thrive, in nature they would be left behind to perish. In our society they are carried along but reminded frequently, of their burden, of their ineptitude.

For many who suffer mental illness, physical illness, both, there is a lot of shame attached to their existing after this fact. Even as people do not come out and say it directly (and believe me, many do!) there is a thin veil that is easily penetrable. People know when they are treated differently, seen differently, worse, judged without jury.

Being ‘sick’ in any manifestation is seen as a ‘weakness’ by our society. This invariably goes back to the ‘dog-eat-dog’ notion of surviving. The weakest link perishes or is a burden to the whole. But these days, with our so-called faith and mercy in place, one might imagine a little more compassion? And if you did, you would be sorely disappointed.

Since getting sick in 2017 I have felt intermittently well enough to continue working and ‘accomplishing’. But as with any pendulum, when it swings deeply toward illness, I am right back at the horror point of when it all began, down on my knees, imploring the universe for healing. And for the most part I have done this alone, because as all those who have been sick for a time will attest, most people do not stay by your side. Even those you expect to.

You can’t plan any longer. A trip is a fear because what if you get sick? Then someone suggests; maybe it’s in your head, maybe you are making yourself sick? And no matter how many times you prove otherwise, they think maybe it’s a choice, just like being gay is a choice, right?

Wrong. You can’t rely upon yourself like you used to because you never know how it’s going to be, how you are going to be. And usually you could be relied upon 100 percent and now that’s gone and somehow you still have to plan a future, but how do you plan a future if you can’t rely upon yourself?

I try to take something from every experience I have, including negative ones. Without learning we don’t grow we just regurgitate and I would rather grow even if I’m throwing up and in pain as I do it. I have taken from this experience what is obvious, but I have also tried to take from others experiences, and have noticed disturbing patterns among those I know who have also been sick for a while or a very long while.

People leave.

People don’t care.

Poverty goes hand in hand with illness.

Anxiety and fear are natural outcomes for a plethora of reasons.

Loneliness can kill.

What I have come to see is this. Sick people are TRUE WARRIORS.

They fight the unimaginable that most of us never have to endure. They have to get pacemakers in their 40s, they have to struggle through taking 2 hours to get dressed and STILL MANAGE TO SHOW UP and this strength – this strength is what I have learned the most from my experiences and listening to others. Strength comes in many forms. We dismiss most of those forms but they are real.

I watch people who have seizures and brain tumors, fight and fight and fight and I realize, we’ve got it backwards. We should be applauding these people not marginalizing them. But we do everything backwards, because as a whole we are poisoned by false ideas of what is valuable and what is not. We toss aside those we deem un-valuable when they are perhaps some of the most valuable people in the world.

So if you are disabled in any way, be it in your head, or your body, remember that. You are some of the most valuable people in the world. Let nobody ever let you forget that. You are some of the most valuable people in the world.

This is written for my sister Angie. You inspire me every single day. You are that light in the dark that refuses to give up and because of you, I refuse to give up too.

Mental Health Awareness Week

She doesn’t look sick…..

She isn’t sick.

But a black hole is eating her from the inside out.

The devour has no real description

It defies the usual ones, it has a wider mouth, deeper jaw, longer bite

The thing of it is .. the shame .. that’s the worst part

The little voice which sometimes sounds like your mother and sometimes sounds like every voice that ever said; What’s wrong with you? Why can’t you snap out of it?

Sometimes … a day will be piercingly beautiful … like the most beautiful song you ever heard and every sense will be electrified

And still you will long to fall on the ground sobbing

If they saw you they would ask; What’s wrong? It’s a beautiful day! Why can’t you appreciate life! Are you ungrateful?

And you would nod your head and admit; Yes I must be ungrateful. How else can you explain it?

For those who believe in God, you feel stricken, maybe you feel God is punishing you for some transgression with the black dog who never leaves your side

If he does leave then you know he will return and it is just a false waiting game, a pose of chess pieces with their fates already inscribed

They talk about other things that matter and feel empathy, sympathy

But when someone has a mental disease they are considered weak, inferior, selfish, inadequate

Wherever you go – there you are

Sometimes you wonder why it is you can write so much in November and nothing through July.

As if a giant claw had possessed your feelings and sank its nails deep into your marrow

When you date people you feel as if you should come with a disclaimer;

I may look pretty, I may have qualifications and a clean house, but beneath this surface please note … I am subject to changing and crying when the sun shines for no discernible reason

Sometimes in the middle of a party you want to run away from the crowd and bury your face in the grass out in the forest – feeling more alone than if you were locked underground in a prison cell

Often there is absolutely no way of describing this so you simply do not and that sets you apart as someone who carries a dark feeling without a voice

Occasionally someone will remark on the sadness in your eyes and you will smile as hard as you can to dispel it because it feels like a giant stain that everyone could see

If they cared to

Many times in subtle ways people will show you that they think you are weaker than them in the little methods of selection and choice

Family will condemn you and sharpen the quill when you are down because it is easier to kill a deer when it has fallen

You try to be grateful and you are, but it never seems so in the midst of sadness because sadness will devour any gratitude whole

And lovers will tell you … you’re not even happy to be with me are you? And you want to say, oh yes I am! But the sadness will envelop your voice and they will leave you … disappointed

There isn’t a week of mental illness, there isn’t a day for depression. There are years upon years upon years

And little adverts on TV about “If your current anti-depressant isn’t working considering taking (and paying) for another one to boost it!” Just fill you with impotent rage.

Often, you feel you are not worthy simply because you are depressed, it is a stigma that invades every aspect of your being, you believe you are not worth the same as others because of the darkness you carry around on your back

In the early morning when you lie in bed and the first rays of sun come through your window, you may forget who you are, and decide you are not going to be labeled or given a description, you are going to be

free

and that may last a while until the next time you feel like blowing your brains out

and then it’s the greatest betrayal you ever felt and it seems as if you do it to yourself

like a hand inside a black velvet glove

stroking dreams until they grow cold

Red Mary

hemofgarmentThey said

she’s a sinner

that red Mary

she’s got shadows in her soul

everyone’s done a wrong

what’s yours?

she couldn’t recall a sin she committed

though many done against her still

showed in bad light shining as scars will

what constitutes a sin?

not picking up a fallen book or

neglecting the heart of an aching soul?

not burying a bird nor preventing its death

sailing into glass as you ate your day

she’d let

the dinner burn accidentally making snow flakes for the windows

she’d been too tired

to scrub the tile in the bathroom before the guests arrived

she’d given herself the bigger helping on occasion

but more often than not she made room for the needs of others

cramped with heads on her lap driving in the car

give an inch take a mile convert to metric lose measure

what comes first? you?

she knew she hurt herself when eclipsing

and if that was a sin

she was a sinner plenty

scratching charred lines of dislike across herself

like a map plotting direction with blooming red pins

but lord if that is a sin

to turn and bear our fangs within

when the world is full of clamoring snake oil salesmen

hawking their false wares

building temples for closed gods

telling children who are raped

no you cannot abort this is gods wish

then she was a sinner of the very worst sort

for her belief was

those who are without blemish don’t exist

but some of us are good

not living under the almshouse for the spiritually impoverished

she didn’t know what it meant to

live in sin be born to sin

she felt sin was a choice

you made or did not make

and she did not choose

to sin except

by laying in bed reading

on Sunday listening to

the vowels of the faithful

herding their flock

We believe

Use your long words

describe the smell of memory

antiseptic

there in your transparent igloo

born to incubate

smoke before it’s legal on your mother’s habit

bequeath me the tendency

to live without need

from pockets we pull

the nurture the seed

sprouting in defiance

when everything else died of frost bite

against the ire of a late Winter storm

gusting itself into white rage

through the glass you see

yourself being re-made

in the eyes of old women whose wrinkles

make a universal puzzle

and the swell of hills

cast over with violet

a heaven of sorts in setting light

glazing countertops

for foot prints of unseen beast

leading off into nearby copse

could we will ourselves

another go around?

stepping backward into

infancy, chewing the umbilical

surrounded by potential like

a wet firework strains to explode

would it be any different?

your hands, molding my shape

DNA

the type of pasta eaten

over Lake Como the day

of conception

holy was the love that bore the wish

lost in steepled weather vein

glistening against straining light

a mockery of control

just out of reach

there she is

eighty years from now and

just re-born

in unfurled leaves and first sprouting

green a forbidden thing

among the white ushers and

dark flitting ponderable

marveling we can be conscious

of ourselves and of nothing more

than a stream aching to unfreeze

creep closer to living

inch by inch

two warm bodies without a thing between them

aside the shame of knowing

we live both futile and richly

worming our way into the meat

and tender bruise of absolving

those things we believe we need

Faithless

kal-yuga-2God did not speak to me

when I laid my head on your cold chest

He did not utter counsel nor

light a pathway

though still I listened

for an utterance or bright star

reflecting faith

I thought

if God is within me

I must find my own way

painting my feet the color of observance

ground ripe with reverberation

as forehead touching, I bowed

to some saint or sound beyond my own

phallic in his disapproval of my unwrapped head

there are so many Gods of men

and not so many who favor women

I asked GIA do you know why

the female Goddess is so quiet?

She smiled and the world split itself

into many fingered dancers

surely you know girl

she is everything and all around us

no need for words

they are the threadbare pockets of men

who failing to curb their lust

turn instead to science and Viagra

you do not need to concern yourself

Kali knows the direction well

she has danced it in blue slippers

every full moon

and women who carry their children

low in orchid womb

taste her in the brine of the Yangtze river

and the very tips of their new born’s tongue

as she licks her way into consciousness

we pass from each other the key

mother’s and life entwined as one set of beads

fickle is life

long the chain of dancers

holding their children high like

honeycomb candles lit for prayer

beneath the rusty hem of the world