WHAT WE VALUE

Our society worships entirely the wrong animal, venerating them and reducing others to ash.

The news recently devoted a good portion of the sports coverage to how much money certain sports figures were going to be paid for kicking a ball across a field. And this in a time when our jobs are dissolving, our society is being wrecked, our economy may be irrecoverable and certain industries will cease to exist en mass. Put simply, there will not be jobs to come back to folks but apparently we still need to pay these guys billions for their service to humanity?

I cannot understand how ANY society and how any of us can tolerate/accept a sports figure being paid anywhere NEAR that sum for what they do when those who really do jobs worth paying, are dying in droves because they are not receiving enough personal protective gear to protect themselves.

When did we start paying someone to kick a ball millions and a nurse who saves our life, hundreds?

What’s wrong with us?

If I were an alien observing our planet, I would seriously wonder if we all were crazy in our assessment of VALUE. What we value. What we do not. If nothing else, Covid-19 has given us a chance to see this once and for all and try to do something about it.

We have marched for Black Lives Matter during this time because it was over-due and our raw emotions on the subject burst out of their polite shell and filled the streets with ire and a desire for equality but how many of us really want equality? Not all of us that is for sure, look around and you can see it in every facet of life, a desire to be above someone else somehow.

We still routinely under-react and permit by our inaction, serious hideous crimes like rape to go unpunished in this country and others.

It’s the year 2020 and we still think inequality for women is acceptable in some forms and fashion. Let us not forget what Maya Angelou said about wanting to vote for a white woman over a black man. She said – women were the original oppressed group, thus we should work backward until all oppressed parties are equal. I agree with her.

We still think hate crimes against Jews and telling Jews that Israel should not be their country is somehow acceptable, despite those Jews having descended from that country. Would we say the same to Black People about Africa. Of course not! So why do we say it to Israel? Because of the Palestine Question which Europe in particular has decided to side with, uncaring of the history of persecution toward Jews and their right to have some land of their own. Of course we shouldn’t persecute Palestinians either and of course, Israel has made mistakes but it’s now about what optics politicians choose and what side of the story is half-revealed via inaccurate news reporting. It’s essentially about which side looks right to support? Because Trump supports Israel, most left-wing supporters are against it. Yet it is not that simple and never should be. Lest we forget our history.

We still think homosexuality is unnatural and abhorant and that being queer isn’t natural. We don’t say it out loud because it’s not popular to say it, but we think it and we act it and gays know. They know.

We talk about slavery and how horrific it was, but half the time we just pay lip service to the deeper issues, because we don’t know our history so we don’t mention Native Americans and how they were exterminated en mass and continue to be disenfranchised. We’re so proud of ourselves for changing the Red Skins but we think that’s enough. Or how slavery has never really gone away, it’s just changed hands and outfits, but it’s still well and thriving in many forms.

So it’s never enough. Until everyone is equal and inequality and racism are a thing of the past. But will they ever be? With people who seem to thrive on discrimination and putting themselves ahead of others and putting others down? If people think wearing a mask is too much, is it any wonder they really don’t give a shit if you are sick or you are vulnerable? Don’t they just want you to die and bugger off?

Likewise with illness, with chronically sick people, it’s never enough to just have laws that allow them to not be discriminated against because discrimination comes in a myriad of differing forms. Subtle. Unreachable. Devastating. People of color have to put up with this EVERY SINGLE DAY as do women, as do gays, as do sick people. Just one roll of the eye says everything. Says; ‘we think you are pathetic‘ invalidates an entire moment.

Chronic illness is a little like amputation. Obviously anyone who has suffered an amputation will refute this and rightly so. But metaphorically it remains akin to the loss of a limb. You are left flailing, unsure of how to right yourself, and continue as once you were. A part of you is lost.

They talk of periods of adjustment. The stages of grieving: Anger for what you have lost. Shame imposed by a society who now judges you weak. Acceptance of a ‘new normal’ that includes intolerable things such as chronic pain etc. For many, those stages of grieving never really end, they cycle and you go through different dilutions depending upon how you progress.

But progress is perhaps not the right word. In our linear society where so much is expected. For someone to drop off and no longer thrive, in nature they would be left behind to perish. In our society they are carried along but reminded frequently, of their burden, of their ineptitude.

For many who suffer mental illness, physical illness, both, there is a lot of shame attached to their existing after this fact. Even as people do not come out and say it directly (and believe me, many do!) there is a thin veil that is easily penetrable. People know when they are treated differently, seen differently, worse, judged without jury.

Being ‘sick’ in any manifestation is seen as a ‘weakness’ by our society. This invariably goes back to the ‘dog-eat-dog’ notion of surviving. The weakest link perishes or is a burden to the whole. But these days, with our so-called faith and mercy in place, one might imagine a little more compassion? And if you did, you would be sorely disappointed.

Since getting sick in 2017 I have felt intermittently well enough to continue working and ‘accomplishing’. But as with any pendulum, when it swings deeply toward illness, I am right back at the horror point of when it all began, down on my knees, imploring the universe for healing. And for the most part I have done this alone, because as all those who have been sick for a time will attest, most people do not stay by your side. Even those you expect to.

You can’t plan any longer. A trip is a fear because what if you get sick? Then someone suggests; maybe it’s in your head, maybe you are making yourself sick? And no matter how many times you prove otherwise, they think maybe it’s a choice, just like being gay is a choice, right?

Wrong. You can’t rely upon yourself like you used to because you never know how it’s going to be, how you are going to be. And usually you could be relied upon 100 percent and now that’s gone and somehow you still have to plan a future, but how do you plan a future if you can’t rely upon yourself?

I try to take something from every experience I have, including negative ones. Without learning we don’t grow we just regurgitate and I would rather grow even if I’m throwing up and in pain as I do it. I have taken from this experience what is obvious, but I have also tried to take from others experiences, and have noticed disturbing patterns among those I know who have also been sick for a while or a very long while.

People leave.

People don’t care.

Poverty goes hand in hand with illness.

Anxiety and fear are natural outcomes for a plethora of reasons.

Loneliness can kill.

What I have come to see is this. Sick people are TRUE WARRIORS.

They fight the unimaginable that most of us never have to endure. They have to get pacemakers in their 40s, they have to struggle through taking 2 hours to get dressed and STILL MANAGE TO SHOW UP and this strength – this strength is what I have learned the most from my experiences and listening to others. Strength comes in many forms. We dismiss most of those forms but they are real.

I watch people who have seizures and brain tumors, fight and fight and fight and I realize, we’ve got it backwards. We should be applauding these people not marginalizing them. But we do everything backwards, because as a whole we are poisoned by false ideas of what is valuable and what is not. We toss aside those we deem un-valuable when they are perhaps some of the most valuable people in the world.

So if you are disabled in any way, be it in your head, or your body, remember that. You are some of the most valuable people in the world. Let nobody ever let you forget that. You are some of the most valuable people in the world.

This is written for my sister Angie. You inspire me every single day. You are that light in the dark that refuses to give up and because of you, I refuse to give up too.

Anguish

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anguish

is a selfish emotion

and a raw cry

made from the belly of the beast and all those terrors unseen

something honest and hardly admitted

kept behind fan and sleight of hand

it is something you hide for fear of being told;

do you only think of yourself? Are you aware others have it worse?

why can’t you just GET A GRIP!

You know all this just as you know

you can’t take one more minute

one second longer

staring at now familiar nightmare

feeling it turning you inside out and back again

(as if jaws were attached to your innards, pulling like a lover would)

anguish is an exhaustion

hunchbacked and ready to tear its own eyes

where if you could you would

run away from yourself never to return

where if you could you would

S.T.O.P.

where if you could you would

scream and never quit

until either your heart refused to beat or

something changed permanently

O the salve of darkness, shrouding such horror

how you have begged for change, change, change

please make it BE ANYTHING BUT THIS

and much as you did, nothing ever would

ease up and chill out, letting the prisoners out in the sunny yard

NOT THIS TIME or so if felt when again and again

you returned to

anguish

who is not definitely no

friend

but the enemy you know better than you ever wished

dangling by garter

over an old dunking pond

the shape of witches still burned

screaming in treeline

We believe

Use your long words

describe the smell of memory

antiseptic

there in your transparent igloo

born to incubate

smoke before it’s legal on your mother’s habit

bequeath me the tendency

to live without need

from pockets we pull

the nurture the seed

sprouting in defiance

when everything else died of frost bite

against the ire of a late Winter storm

gusting itself into white rage

through the glass you see

yourself being re-made

in the eyes of old women whose wrinkles

make a universal puzzle

and the swell of hills

cast over with violet

a heaven of sorts in setting light

glazing countertops

for foot prints of unseen beast

leading off into nearby copse

could we will ourselves

another go around?

stepping backward into

infancy, chewing the umbilical

surrounded by potential like

a wet firework strains to explode

would it be any different?

your hands, molding my shape

DNA

the type of pasta eaten

over Lake Como the day

of conception

holy was the love that bore the wish

lost in steepled weather vein

glistening against straining light

a mockery of control

just out of reach

there she is

eighty years from now and

just re-born

in unfurled leaves and first sprouting

green a forbidden thing

among the white ushers and

dark flitting ponderable

marveling we can be conscious

of ourselves and of nothing more

than a stream aching to unfreeze

creep closer to living

inch by inch

two warm bodies without a thing between them

aside the shame of knowing

we live both futile and richly

worming our way into the meat

and tender bruise of absolving

those things we believe we need

la graine

laise

This brittle heart

has loved only once

she gives the impression

she is eternally shut

though within her lies

a seed of hope as dormant as

the buds beneath winter earth

but whom

shall bring forth rain and sun

permitting her entry once again

to consider the marvel of a world

where love is not common

nor easily found

where cutting oneself off and hiding

beneath heavily padded doors

is one way the sensitive heart survived

so long

yet we are sand running in opposite direction

a flame not to last eternity

for surely the beat of our hearts

reminds us

there are reasons for longing

watching another moment pass by

thinking

what if

out there

in unknown, there is a person

wishing just as I

for the other half

would it be

we could discover

each other

and close

the emptiness

within us

even for the short

space of a

life time

Uncommon

c51e6bc5e98678539d061ac9c04667afNot afraid of the usual fears

obscurity

ageing

indifference of lovers

I bought a pair of scissors

snipped out the dead bits

threw away the glamor and beguilement

seeing through gossamer trappings

yet I am still fearful

of uncommon things

dissolution and repetitive days

adding up to waste

working in a cubicle

coming home to warmed up left-overs

hanging washing on weekends

mowing lawns iced with Ready Grow

chores belaboring chores

like sore throated choir singers

duck behind pulpit for a shot of whiskey

I do not fear wrinkles earned

or sagging parts hidden beneath thick coats

those were with me before they were

lines on my days as I sat

20 years crossed legged

eating chocolate from vending machines

watching others my age hurl themselves

from one moment to the next

like waves that meet and

turn ever wilder

I preferred to roll my own

invite the boy who couldn’t form

complete sentences

but wrote

pretentious appealing poetry

with tight muscled drummers arms

back to my whistling dorm

to break the wood we were born upon

and his idea

he was in control

back then

carrying in my linen womb

the next twenty years

I developed an inkling for scars

battle worn and tired before

my knitting bones caught up

now you can’t scare me with your rebuke

I’ve lived beyond the yoke and tenderness of youth

but put me in an office, tighten my straps

affix the gag reflex

and watch me come undone

like a latch that appears well adhered

will spring suddenly

contents spill out aborted

across washed floor

This time will come again

yuri-shwedoff-wolf-pack-internetThe saw they used

had teeth like rabbits unaware

they were herbivores

her shell broke

like a blue egg

on turpentine floor

for the ants to summon

their legions and devour

she could smell her own fall

by the pinch of their envy

though why anyone should

be jealous she found absurd

as plates will chip

when placed on top of one another

we leave the best for last

scouring her hide with vinegar

all the holy and the ivy

thrown in pyre to await

her defeat

she tried to tell them

it’s not me you want

it’s yourselves

the competition is within

I am nothing

but a representation

the dreaming void

or lost moon

reflecting your own

do not bury me with nightshade

violet on my tongue

strangle my words

because you have none

this time will come again

as all circles are undone and reknotted

by fate and the scepter

in the wrists of those

cutting down

trees who only seek

that silence of being above

cacophony of rude arrows

felling our roots

though we strive

only

to master ourselves

 

 

Honey

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You demanded

I consider Heaven

I thought of lasting beyond

after life

it made me feel tired

like the rosy apple

has its season

its brief glory

then falls to become earth

recycle itself in

spell of worms

I replied

there is nothing I need

in Heaven

once you have

bloomed and sent nectar

into the recess of time

you need then to sleep

your head heavy with pollen

until the bees come

and make ten fold

your apple blossom dream