What’s is remembered, lives.

When you die

people will talk you up

fatten your totem pole into fierce faces

of defiance

because you were strong, because your blood carried

the weight of your legacy and your ancestors

when you die

I will wear your ring on my finger if I am still around

and every sunset will pull the moon down

her mauve redolence

aching in my chest

to hold you against me

for when you die

memory will become a marriage

between us, and the ether

I will live in the past ever more so

recalling the days we spent

living our life in each other’s gastropods 

it is my belief we carry within us

the seeds of ancestors and loved ones

blood and violets, oshibana in focus

and each step we make on this earth

we walk alongside the invisible ones

who hold us up when the going gets tough

recently, the going has been very tough and I have

beseeched the stoicism of those who are not here

to see me through

I don’t have their solidity, you know

nor their earnest lust for life

at times I think a brawny wind could

carry me off

I have at best, one foot on the ground

the other is hurtling in a rêver

a dream of less grief, less pain

where we can unfurrow our sails

and drift on burnished water

I was asked not long ago

what I most wanted out of life

and it seemed such a banal question

when struggling to survive

but really that’s the point isn’t it?

To keep putting one foot in front of the other

staring at the setting sun as it blooms

fattened orb of life

just as capable of destroying

a metaphor surely …

for our riddled

minds

(homage to Nomadland)

The rhyme of girls who skin their knees

She always knew she was a girl

by the way older women treated her

their higher standards expected

than if she were a boy

for boys … could climb trees and expose their underwear

while she was scolded and told not to be ‘a little harlot’

boys came barreling in full of spunk and fury

exhibiting their mirth with muddy feet

to ladies who smiled indulgently and patted their

ruffled heads

glancing over at her, with disapproving eyes

and a tut of the chin which said; “I hope you are not

going to track that mud into the kitchen and if you do

be prepared to clean it up. What kind of girl climbs

trees and gets herself full of dirt?

The unspoken and the spoken

those days she sought sympathy when her heart

felt like bursting

responses varying from; “maybe you didn’t ‘try hard

enough, you should apply yourself next time” to “don’t

go on about your problems so much, we all have problems

you are not the only one!” While they fretted and discussed

the poor boy whose horrible girlfriend left him

how grief stricken he was afterward, they could do nothing

it was so hard to watch

not difficult at all to watch her fall

almost amusing

almost delightful

female expectations a bar far too high

even for a gymnast

whilst boys ran beneath it

in spastic freedom

from the quiet exceptionalism of their gender

through the eyes of a woman

she learned early on

to keep her thoughts and wishes to herself

for each vulnerability would be handled roughly

turned against her like a shard of glass

piercing deep

she learned, to do for herself as the boys

were fed, dressed, coveted, admired, flattered

and grew fat and indulgent on it

rather like farm yard pigs

she grew strong in that way pain lends

a thin weed

trying to survive by the side of a busy road

filled with fumes and cars belching their poison

yet she knew if she wanted to survive

she could not walk along that road

by herself, taking short cut

through fields, because that’s where

women were raped

among thorny bushes, hands reaching out

grasping for them, hungry and snarling

she was told it was her fault if she

succumbed and her fault if she died from

fighting them off and her fault if she was

there when she shouldn’t have been

but nobody said it was their fault

or asked them to explain

why after being fed, clothed, petted and cossetted

by women

they chose

to make women their victim

no, that nobody had an answer for

maybe if they did, they would say

women did this to them, poor dears

it’s not the fault of a man! He was spoilt

and that’s a woman’s fault! She didn’t

teach him correctly, he had no choice!

And all the women who gave her

cross looks when she came in with her knees

scuffed from climbing a wall or when she ran

ungainly across the lawn and they chided her

for being ‘unladylike’

smiled at the fattened calf and said

oh my daughter would be so lucky

to marry a man like him! If only she

tried, a little harder.”

WHAT WE VALUE

Our society worships entirely the wrong animal, venerating them and reducing others to ash.

The news recently devoted a good portion of the sports coverage to how much money certain sports figures were going to be paid for kicking a ball across a field. And this in a time when our jobs are dissolving, our society is being wrecked, our economy may be irrecoverable and certain industries will cease to exist en mass. Put simply, there will not be jobs to come back to folks but apparently we still need to pay these guys billions for their service to humanity?

I cannot understand how ANY society and how any of us can tolerate/accept a sports figure being paid anywhere NEAR that sum for what they do when those who really do jobs worth paying, are dying in droves because they are not receiving enough personal protective gear to protect themselves.

When did we start paying someone to kick a ball millions and a nurse who saves our life, hundreds?

What’s wrong with us?

If I were an alien observing our planet, I would seriously wonder if we all were crazy in our assessment of VALUE. What we value. What we do not. If nothing else, Covid-19 has given us a chance to see this once and for all and try to do something about it.

We have marched for Black Lives Matter during this time because it was over-due and our raw emotions on the subject burst out of their polite shell and filled the streets with ire and a desire for equality but how many of us really want equality? Not all of us that is for sure, look around and you can see it in every facet of life, a desire to be above someone else somehow.

We still routinely under-react and permit by our inaction, serious hideous crimes like rape to go unpunished in this country and others.

It’s the year 2020 and we still think inequality for women is acceptable in some forms and fashion. Let us not forget what Maya Angelou said about wanting to vote for a white woman over a black man. She said – women were the original oppressed group, thus we should work backward until all oppressed parties are equal. I agree with her.

We still think hate crimes against Jews and telling Jews that Israel should not be their country is somehow acceptable, despite those Jews having descended from that country. Would we say the same to Black People about Africa. Of course not! So why do we say it to Israel? Because of the Palestine Question which Europe in particular has decided to side with, uncaring of the history of persecution toward Jews and their right to have some land of their own. Of course we shouldn’t persecute Palestinians either and of course, Israel has made mistakes but it’s now about what optics politicians choose and what side of the story is half-revealed via inaccurate news reporting. It’s essentially about which side looks right to support? Because Trump supports Israel, most left-wing supporters are against it. Yet it is not that simple and never should be. Lest we forget our history.

We still think homosexuality is unnatural and abhorant and that being queer isn’t natural. We don’t say it out loud because it’s not popular to say it, but we think it and we act it and gays know. They know.

We talk about slavery and how horrific it was, but half the time we just pay lip service to the deeper issues, because we don’t know our history so we don’t mention Native Americans and how they were exterminated en mass and continue to be disenfranchised. We’re so proud of ourselves for changing the Red Skins but we think that’s enough. Or how slavery has never really gone away, it’s just changed hands and outfits, but it’s still well and thriving in many forms.

So it’s never enough. Until everyone is equal and inequality and racism are a thing of the past. But will they ever be? With people who seem to thrive on discrimination and putting themselves ahead of others and putting others down? If people think wearing a mask is too much, is it any wonder they really don’t give a shit if you are sick or you are vulnerable? Don’t they just want you to die and bugger off?

Likewise with illness, with chronically sick people, it’s never enough to just have laws that allow them to not be discriminated against because discrimination comes in a myriad of differing forms. Subtle. Unreachable. Devastating. People of color have to put up with this EVERY SINGLE DAY as do women, as do gays, as do sick people. Just one roll of the eye says everything. Says; ‘we think you are pathetic‘ invalidates an entire moment.

Chronic illness is a little like amputation. Obviously anyone who has suffered an amputation will refute this and rightly so. But metaphorically it remains akin to the loss of a limb. You are left flailing, unsure of how to right yourself, and continue as once you were. A part of you is lost.

They talk of periods of adjustment. The stages of grieving: Anger for what you have lost. Shame imposed by a society who now judges you weak. Acceptance of a ‘new normal’ that includes intolerable things such as chronic pain etc. For many, those stages of grieving never really end, they cycle and you go through different dilutions depending upon how you progress.

But progress is perhaps not the right word. In our linear society where so much is expected. For someone to drop off and no longer thrive, in nature they would be left behind to perish. In our society they are carried along but reminded frequently, of their burden, of their ineptitude.

For many who suffer mental illness, physical illness, both, there is a lot of shame attached to their existing after this fact. Even as people do not come out and say it directly (and believe me, many do!) there is a thin veil that is easily penetrable. People know when they are treated differently, seen differently, worse, judged without jury.

Being ‘sick’ in any manifestation is seen as a ‘weakness’ by our society. This invariably goes back to the ‘dog-eat-dog’ notion of surviving. The weakest link perishes or is a burden to the whole. But these days, with our so-called faith and mercy in place, one might imagine a little more compassion? And if you did, you would be sorely disappointed.

Since getting sick in 2017 I have felt intermittently well enough to continue working and ‘accomplishing’. But as with any pendulum, when it swings deeply toward illness, I am right back at the horror point of when it all began, down on my knees, imploring the universe for healing. And for the most part I have done this alone, because as all those who have been sick for a time will attest, most people do not stay by your side. Even those you expect to.

You can’t plan any longer. A trip is a fear because what if you get sick? Then someone suggests; maybe it’s in your head, maybe you are making yourself sick? And no matter how many times you prove otherwise, they think maybe it’s a choice, just like being gay is a choice, right?

Wrong. You can’t rely upon yourself like you used to because you never know how it’s going to be, how you are going to be. And usually you could be relied upon 100 percent and now that’s gone and somehow you still have to plan a future, but how do you plan a future if you can’t rely upon yourself?

I try to take something from every experience I have, including negative ones. Without learning we don’t grow we just regurgitate and I would rather grow even if I’m throwing up and in pain as I do it. I have taken from this experience what is obvious, but I have also tried to take from others experiences, and have noticed disturbing patterns among those I know who have also been sick for a while or a very long while.

People leave.

People don’t care.

Poverty goes hand in hand with illness.

Anxiety and fear are natural outcomes for a plethora of reasons.

Loneliness can kill.

What I have come to see is this. Sick people are TRUE WARRIORS.

They fight the unimaginable that most of us never have to endure. They have to get pacemakers in their 40s, they have to struggle through taking 2 hours to get dressed and STILL MANAGE TO SHOW UP and this strength – this strength is what I have learned the most from my experiences and listening to others. Strength comes in many forms. We dismiss most of those forms but they are real.

I watch people who have seizures and brain tumors, fight and fight and fight and I realize, we’ve got it backwards. We should be applauding these people not marginalizing them. But we do everything backwards, because as a whole we are poisoned by false ideas of what is valuable and what is not. We toss aside those we deem un-valuable when they are perhaps some of the most valuable people in the world.

So if you are disabled in any way, be it in your head, or your body, remember that. You are some of the most valuable people in the world. Let nobody ever let you forget that. You are some of the most valuable people in the world.

This is written for my sister Angie. You inspire me every single day. You are that light in the dark that refuses to give up and because of you, I refuse to give up too.

SMITTEN Poets READ: The Girl Who Always Cries – Crystal Kinistino

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/

SMITTEN Poets READ: Walking By Hot Topic While Announcing Queerness, or So I Hoped by Kelsey Hontz

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/

SMITTEN Poets READ: Ephemeris | Morning Senses by Cristina DeSouza

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/

SMITTEN Poets READ: Friday Karaoke by Kindra M. Austin

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/

SMITTEN Poets READ: After the Fire – by Kim Harvey

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/

SMITTEN Poets READ: TESTIMONY by Carolyn Martin

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/

SMITTEN Poets READ: Willowy Rose And Chrysanthemum by Lynne Burnett

 

SMITTEN is coming out late October, 2019 via all good book stores. Published by Indie Blu(e) www.indieblu.net 

Please consider supporting this project of over 120+ talented poets and authors by purchasing a copy of SMITTEN for someone who appreciates beautiful poetry. https://www.facebook.com/SMITTENwomen/